Hello cygnet, and thank you for responding!

I hadn’t thought about the insurance angle… very interesting and, in fact, smart. When we return to the Haem I will ask about that, just to make sure we are all on the same page.

I’m sorry you are going through this rabbit-warren of a disease. Have you started treatments? Are you still smoldering?

I…[Read more]

UPDATE about results… just received a copy of letter from haem to gp about the first visit. In it he gives this description:

IgG kappa monoclonal paraprotein 20g with abnormal serum free light chain ration, kappa 90, lambda 6, ratio 14.5 ;  protein: creatinine ratio 80.

Can anyone tell me the meaning of these? I believe he is in the MGUS…[Read more]

Thanks, Yvonne.

Yes, the uncertainty is scary. Then again, MGUS would be by far the best outcome, so, naturally, hoping to be uncertain for the duration. Flipping over into the smm category must have been (must be) quite frightening.  Hope you have good support as you go through this new form of uncertainty, Yvonne.

Strength!

lacey

Yvonne, i’m new here (as of, oh, say, 30 seconds ago) but still wanted to respond to your post.

My husband is in the diagnosis process. We are currently waiting for results of mri, skeletal scan, and a host of blood tests (his initial bloodwork showed 14 of the thing that when it hits 100 is bad… sorry i don’t remember the test or units… so…[Read more]