Thank-you so much for your replies Susie, Tony Farquharson and David Simister. It is very reassuring that there are people out there who know what we are going through and understand and have had similar experiences, and reply with helpful advice! David Simister, I’m so glad you saw an improvement and were able to walk distances again. That gave me some hope. And I wasn’t aware of the infoline so thank-you for drawing that to my attention. Dad still hasn’t seen any improvement so he managed to get an appointment with the specialist and is going through more tests and scans and different drug combos so at least they are paying attention now.
Thank-you again for your support. Good luck to you all. x