[les81Participant]

good news today, saw the consultant and my light chain numbers are falling fast from 6,500 6 weeks ago to 650 3 weeks ago, so with luck a couple more cycles of chemo and i will be off the velcade. at that point i hope to see some improvement in kidney funtion with a lot of luck.
les

[les81Participant]

thx for reply jo.
lets hope you keep off dyalisis 3 times a week for 4hrs is not any fun, but if you add in travelling time its more like 6/7hrs each time.
i just hope some time i will come off it then i can live again, so wanted to go to australia and NZ next year but looked at price for one treatment and its around £400 so will not be going in near future lol.
we will win in the end
Les

[les81Participant]

i am on velcade sub cut, friday i start forth cycle and can say i have never had a problem with it. i take another chemo drug cyclo every friday and thats the one that knocks me out. they are talking about sct with me but being on dyalisis not sure how its going to work. going to see consultant on thursday so hope to find out a bit more on whats going on.
chin up Les

[les81Participant]

thx for all the messages, makes you feel so much better when you know your not on your own.
Les

[les81Participant]

hi eve, thx for reply.
had mcmilliam around and they have filled in all the forms, got my blue badge, waiting to here about DLA the DWP says they are going to write to GP so i need to get in and see them as i have not been to them since all of this happened so they have no idea what i am going through.
i am on velcade start of cycle 4 on friday and cyclo what ever the rest of name is, i can live with cancer but it dyalisis that i am having most problems with, my renal consultant does think they will get better but you always have that doubt.
i just feel down sometimes but no energy to do much to boost myself at the moment.
les

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