Myeloma Forum | lexi | Activity https://forum.myeloma.org.uk/members/lexi/activity/ Activity feed for lexi. Sun, 26 Apr 2026 02:46:32 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 e08b873c26c8ecffd7a4c5d139a8c8b4 lexi replied to the topic multiple mylenoma in the forum General http://www.myeloma.org.uk/forums/topic/multiple-mylenoma#post-92848 Sun, 10 Jun 2012 17:45:48 +0100 Hi
Only ever seen her oncologist
Regards Lexi

]]> b71f769ad09d7342dd99ed521c0948f7 lexi replied to the topic multiple mylenoma in the forum General http://www.myeloma.org.uk/forums/topic/multiple-mylenoma#post-92850 Sun, 10 Jun 2012 17:41:43 +0100 Hi
Thank you for that. I will have a word with the nurse before she goes for her next appointment.
I think pretending its not there is her way of coping.
She had only seen a doctor twice in the last thirty years, before this was discovered so you can imagine its come as a great shock cant accept she is 86 and things do start to go wrong…[Read more]

]]> 009a510dd59a6434e393ee2fb6cc2c5c lexi started the topic multiple mylenoma. in the forum General http://www.myeloma.org.uk/forums/topic/multiple-mylenoma Fri, 08 Jun 2012 22:27:19 +0100 hi

just want some ifo if anyone can help. My mum has mylenoma diagnosed 1 year ago. She did not take the news well and everytime we see the consultant she says she is fine, she has been, but recently she told me that she has funny feelings in her feet as if she is walking on sponges, she also seems to be getting itching on her body. Has anyone…[Read more]

]]> 4762bcf13d73eed960524bd37ef5475a lexi replied to the topic paraproteins in the forum Newcomers http://www.myeloma.org.uk/forums/topic/paraproteins#post-85646 Sat, 05 May 2012 20:15:57 +0100 Hi Jill

Thank you for taking the time to reply to my queries. My mum just got a letter from her consultant today to say the last paraprotein test was 22 and previously it had been 28 so that is a bit of an improvement. She goes back in July and if it remains the same then he said he would extend the time to 6 months.
She takes Sodium…[Read more]

]]> 8111a98ca992c387980305c9486e0419 lexi replied to the topic paraproteins in the forum Newcomers http://www.myeloma.org.uk/forums/topic/paraproteins#post-85644 Fri, 04 May 2012 21:37:47 +0100 Hi Everyone
Thank you for your replies. Its nice to be able to chat to people who are going through the same thing. My mum has not taken the news to well so its good just to hear how other people are coping with this illness.
Take Care to all of you going through this hard time x
Lexi

]]> 0e920ca7e99d143b2fd33e514acec137 lexi replied to the topic paraproteins in the forum Newcomers http://www.myeloma.org.uk/forums/topic/paraproteins#post-85642 Wed, 02 May 2012 21:52:38 +0100 Hi Eve
Thank you for your reply.
I did not realise how many people are affected by Myeloma until Mum was diagnosed with it.
Do you know who would know about paraprotein levels and what they mean ?

Best Wishes
Lexi

]]> ed5402c2bde2e9f736b7de0bfcbcdced lexi started the topic paraproteins. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/paraproteins Tue, 01 May 2012 22:35:51 +0100 Hi
My mum was diagnosed with smouldering mylenoma last year she is 85 now and still quite fit for her age. I cant really discuss anything with my mums consultant when I go in with her as she reaaly does not want to know and is still in denial about her diagnosis probably her way of coping.

When we were at the hospital yesterday her consultant…[Read more]

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