[lexiParticipant]

Hi
Only ever seen her oncologist
Regards Lexi

[lexiParticipant]

Hi
Thank you for that. I will have a word with the nurse before she goes for her next appointment.
I think pretending its not there is her way of coping.
She had only seen a doctor twice in the last thirty years, before this was discovered so you can imagine its come as a great shock cant accept she is 86 and things do start to go wrong !!!
thanks again
best wishes Lexi

[lexiParticipant]

Hi Jill

Thank you for taking the time to reply to my queries. My mum just got a letter from her consultant today to say the last paraprotein test was 22 and previously it had been 28 so that is a bit of an improvement. She goes back in July and if it remains the same then he said he would extend the time to 6 months.
She takes Sodium Clodronate daily but apart from that she has not had any treatment since her very first diagnosis when she had a blood transfusion but it did not make her feel any better so they said they would not do anymore apparently some people dont respond.
Am I right in thinking that it will eventually turn into full blown mylenoma but no one can predict when?

Thank you again for your help its nice to be able to chat to someone.

Take Care Hope your Mum stays well
All the best Lexi x

[lexiParticipant]

Hi Everyone
Thank you for your replies. Its nice to be able to chat to people who are going through the same thing. My mum has not taken the news to well so its good just to hear how other people are coping with this illness.
Take Care to all of you going through this hard time x
Lexi

[lexiParticipant]

Hi Eve
Thank you for your reply.
I did not realise how many people are affected by Myeloma until Mum was diagnosed with it.
Do you know who would know about paraprotein levels and what they mean ?

Best Wishes
Lexi

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