Hi Emma,
i was diagnosed in July 2017 aged 39, I presented in a&e with kidney failure and spent a week in ICU where they diagnosed my MM. I went through 4 cycles of RVD and am now just home from my stem cell transplant. I was very apprehensive having read a lot about the procedure and having young children I was worried that I would have to spend Christmas in hospital.
Thnakfully the transplant went much smoother than I had anticipated and I got discharged to go home at day +14, I’m now at day +23 I’m back eating normally with no taste issues or nausea. Although i’m Home i’m still avoiding mixing with people as I really don’t want to pick up an infection that would re-admit me but I do get out in the fresh air for a walk everyday.
i has no issues with mucositis, and I used ice pops and ice cubes during the melphalan infusion and for about two hours after. I made a point everyday in hospital to get up shower and dress not sure exactly what it done but at least it made it feel a bit more normal. I did have pretty bad diahorrea and stomach cramps for a couple of days and I pretty much ate nothing for 3-4 days to not put my stomach under any pressure.
i hope this helps and if you have any questions about my experience let me know.
