[lilipopsParticipant]

Hi Mulberry,

Thank you so much for your reply. I was worried about not having any more chemotherapy. Or indeed, why there was not chemotherapy before if they know of a delay. But I think in the main it is because I am on the standard treatment of therapy for someone like me. Anyway I am actually in hospital now, I had my high standard of chemotherapy now Melphalan on Tuesday and my stem cell transplant over 2 days, Wednesday and Thursday. So far so good. They are keeping at bay the nausea and sickness with medication but I am worried what next week will bring as this is when the more severe effects can kick in…

[lilipopsParticipant]

Thank you Mulberry for your reply. It is reassuring to hear about your friend who was diagnosed 18 years ago. I was supposed to have my stem cell transplant done on Wednesday. The consultant has told me that my paraprotein level has gone from 4.9 to 9 in 3 weeks. I have not had any chemotherapy since 8th December and there has been some delay in-between finishing chemotherapy and having my stem cell transplant. I am transitioning from one hospital to another as the stem cell transplant is not available in my hospital. I am feeling quite apprehensive now especially as the paraprotein level is rising. My PET-CT scan is booked in this Friday and MRI on Monday. As I understand it, if I have any bone lesions then I might have to go on chemotherapy before I have a stem cell transplant. Or I may be back in next week for the stem cell transplant.

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