[lindawintonParticipant]

Hello Sandra, I too had shingles during my fight with MM. Not nice as you say. It comes about because your system s low, it's very common in cancer patients apparently.

[lindawintonParticipant]

Morning Jan, can't sleep tonight so have been on the site and read your story with interest . Mine is very similar in that I have vertebrae trouble , only two, and trouble with painful ribs . I take oxynorm and that really does help. I had a SCT four and a half years ago after six cycles of treatment and all is well at the moment. It's a tough journey but there are so many people with worse illnesses than this. We have to stay positive and enjoy everything around us. I work in a school office and am lucky to be back at work after a year off. I don't do as much at wrk, home or in terms of sport but I am determined to enjoy what I can.

All the best with your journey and your future health.

Linda

[lindawintonParticipant]

Hi Clare, with a good response like your mum has had I think it would be worth having the SCT. I had it over four years ago and felt it consolidated the chemo treatment and gave me a better chance of a good remission. I have been apart from a monthly infusion of primidrinate (bone strengthner), treatment free for over four years and lead a relatively normal life. I take morphine for back and rib pain, this works well, my husband reckons I'm a cheep date as two drinks and I'm buckled. Don't left your mum be put off by the horror stories of a transplant , it's tough but each journey is different and there is lots to help you through the bad bits. I found the recover the worst as it was slow and boring. If I can help let me know. Good luck to you both
Linda

[lindawintonParticipant]

hello Mika, I've just joined the site and read your story. What hope you give, thanks so much. I've had myeloma for five years and have been symptom and drug free for four years now and would be delighted to be around for 20 Year plus.

I had the standard treatment then a stem cell transplant. It hard at the time but when you've got people to live for its not to hard to do.

Hope your still as well,

Take care, Linda

[lindawintonParticipant]

Hi Susanne, I've just joined the site and read your message , hope your feeling okay. I was diagnosed five years ago and had six cycles of CVad treatment then a sct. It was a rough time but you get through,you and your family have been through a lot already that I'm sure you'll manage just a wee bit more. It's worth the fight just to be with them.
The sct is the same as pregnancy in that each person's experience is there own. You can here rotten stories and some that are okay it all depends on how you take to it but don't be scared off by bad stories. It really is bearable.
If you have any question just give me a shout and i will try to help.

Take care, Linda

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