Hi,

I just want to give a bit of positive feedback about my amyloidosis, it’s not all doom and gloom.  I’m 45 and diagnosed almost a year ago now (after having a stroke)with mostly heart involvement, I had CVD 3 cycles and my light chains came down after the first.  I am now 3 months post chemo and feeling much better, I can walk further w…[Read more]

Hi Sandra,

Yes I think we must be fairly local, I live in Maldon – moved here in October from Loughton while all this was going on so been a busy summer/ year!!

Sorry to hear you haven’t been well, is that to do with the treatment? or the condition? sorry to be nosy.  I was thinking that things might start dropping after fewer cycles ( trying…[Read more]

Thank you Pat,

Thank you for replying, it’s great to know there are people out there who are prepared to give a little time to help you through this, even with the support of family and my partner is fantastic and so understanding and caring it’s such a stress for him too.

I have been very busy today and spent most of it doing housework,even…[Read more]

Hi,

I just rang the myloma helpline to see if there was anyone out there who I could talk to who was going through the same as me and when she showed me the discussion forum the first post to pop up was yours so I am very happy to be getting in touch.

I was diagnosed with cardiac AL amyloidosis at the end of November although my paperwork now…[Read more]

Hi,

I just rang the myloma helpline to see if there was anyone out there who I could talk to who was going through the same as me and when she showed me the discussion forum the first post to pop up was yours so I am very happy to be getting in touch.

I was diagnosed with cardiac AL amyloidosis at the end of November and have just started the…[Read more]