Myeloma Forum | linseyhewett | Activity https://forum.myeloma.org.uk/members/linseyhewett/activity/ Activity feed for linseyhewett. Thu, 07 May 2026 10:39:35 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 5cb47707ec40059ef1f6e3ce707aca54 linseyhewett replied to the topic AL amyloidosis..... Cardiac Amyloidosis in the forum AL amyloidosis http://www.myeloma.org.uk/forums/topic/al-amyloidosis-cardiac-amyloidosis/#post-123472 Mon, 03 Aug 2015 12:16:36 +0100 Hi,

I just want to give a bit of positive feedback about my amyloidosis, it’s not all doom and gloom.  I’m 45 and diagnosed almost a year ago now (after having a stroke)with mostly heart involvement, I had CVD 3 cycles and my light chains came down after the first.  I am now 3 months post chemo and feeling much better, I can walk further w…[Read more]

]]> 64e77a7f5b6e391f403e6a0f55ed6274 linseyhewett replied to the topic AL amyloidosis..... Cardiac Amyloidosis in the forum AL amyloidosis http://www.myeloma.org.uk/forums/topic/al-amyloidosis-cardiac-amyloidosis/#post-119850 Sat, 06 Dec 2014 11:26:23 +0000 Hi Sandra,

Yes I think we must be fairly local, I live in Maldon – moved here in October from Loughton while all this was going on so been a busy summer/ year!!

Sorry to hear you haven’t been well, is that to do with the treatment? or the condition? sorry to be nosy.  I was thinking that things might start dropping after fewer cycles ( trying…[Read more]

]]> 08288f75ee0788b340c318a9974b5e3d linseyhewett replied to the topic AL amyloidosis..... Cardiac Amyloidosis in the forum AL amyloidosis http://www.myeloma.org.uk/forums/topic/al-amyloidosis-cardiac-amyloidosis/#post-119845 Fri, 05 Dec 2014 17:24:36 +0000 Thank you Pat,

Thank you for replying, it’s great to know there are people out there who are prepared to give a little time to help you through this, even with the support of family and my partner is fantastic and so understanding and caring it’s such a stress for him too.

I have been very busy today and spent most of it doing housework,even…[Read more]

]]> e127ef9c99fdd36cb79b7747e50a4338 linseyhewett changed their profile picture https://forum.myeloma.org.uk/activity/p/36727/ Fri, 05 Dec 2014 11:26:49 +0000 0 d1db476c25c8ae12ae18018f8eab2798 linseyhewett replied to the topic AL amyloidosis..... Cardiac Amyloidosis in the forum AL amyloidosis http://www.myeloma.org.uk/forums/topic/al-amyloidosis-cardiac-amyloidosis/#post-119837 Fri, 05 Dec 2014 11:11:07 +0000 Hi,

 

I just rang the myloma helpline to see if there was anyone out there who I could talk to who was going through the same as me and when she showed me the discussion forum the first post to pop up was yours so I am very happy to be getting in touch.

I was diagnosed with cardiac AL amyloidosis at the end of November although my paperwork now…[Read more]

]]> 562668907e1b19a454462d0d827be3c7 linseyhewett replied to the topic AL amyloidosis..... Cardiac Amyloidosis in the forum AL amyloidosis http://www.myeloma.org.uk/forums/topic/al-amyloidosis-cardiac-amyloidosis/#post-119837 Fri, 05 Dec 2014 11:11:07 +0000 Hi,

 

I just rang the myloma helpline to see if there was anyone out there who I could talk to who was going through the same as me and when she showed me the discussion forum the first post to pop up was yours so I am very happy to be getting in touch.

I was diagnosed with cardiac AL amyloidosis at the end of November and have just started the…[Read more]

]]> 058d76a8cb3c3f379089a6997e29b515 linseyhewett became a registered member https://forum.myeloma.org.uk/activity/p/36725/ Fri, 05 Dec 2014 10:57:02 +0000 0