[lisa78Participant]

Hi
Thank you he seems to be responding very well. First urine infection he has had.

Thanks Tom yes he has been taking more fluids since being disgnosed, been in hospital more than being at home lately lol

It makes it easier to speak to people and read this on here from other people experiences.

Love
Lisa xx

[lisa78Participant]

Thank you for all the information. Mick had his infusion of immuniglobins and zometa and the next day had a temp of 39.2 and call the hospital ended up at A and E again.

He now has a urine infection and has to have a 5 day cause of iv antibiotics. Can't wait for him to come out hopefully Tuesday.
Love
Lisaxx

[lisa78Participant]

Thank you Tom for being supportive.

Quite alot to get your head round, We are ok about not having the SCT cos it isn't right for him, It is a litlle wierd cos they found the protien in blood and urine in July was diagnosed and on chemo by being of August a hospital stay as protien cause problem with his kidneys so all happened so fast and just went along with chemo and the infections along the way that now it seems to have calmed down now thats when I am coming up with all these questions.

Is now going to have immunaglobins and zometa every 4 weeks his paraprotien on the CTD went down to 3.8 but wouldn't go any lower will see the doc again in March fingers crossed it stays there.

Lisaxx

[lisa78Participant]

Hi
Thank you Dai his name is Mick we are we are in essex near Southend thank you it is useful he was only diagnosed in August when he was ill in hospital so still trying to take it all in what need to be done.

I have been checking temp everyday and he has been in a out with pneumonia all through CTD treatment and due to this and already having MS they have decided SCT isn't really a safe option for him but wasn't sure how long he will still be at high risk of infection after the chemo will have a look at the downloads thank you.

They have told him the paraprotien is down to 3.7 will contact you about the Zometa treatment he will have once a month. Suppose just worring a bit.
LIsa xx

[lisa78Participant]

Thank you Jox, It really helps to know it's normal and even though his is not having SCT doesn't mean you have to give up. I am showing him the posts and think they are helping.

Still trying to understand it all, I'm sure I will get there

Love Lisa xx

[lisa78Participant]

Thank you Tom My Husbands name is Mick should have mentioned it before.

He is being treated at Southend University Hospital, it has all been a bit of a roller coaster it was only found by a routine blood test in July and was in Hospital beginning of August with high protien levels and was damaging his kidneys he had treatment started the chemo and here we are.

Thank you Vicki I think he is fine with not have sct to be honest but not sure could be all hitting him now as it all happened quite fast before. He has MS as well and he took each time the pneumonia came on it was about 10-12 days of iv antibiotics and he has had several chest infections to with every thing they think it might be a little risky but Mick feels the same and doesn't want it

I might have a look at the psychologist thank you they may help.

He says he just aches and general feels like rubbish will keep and eye I think and if it no better will get the doctor to check him out
Love Lisa

[lisa78Participant]

Thank you for your reply had pneumomia 3 times which meant stays in hospital and chest infections been on antibiotics most of the time to be honest never used a themometer so much lol.

I always keep a check but didn't know if this normally happens like withdrawal or some thing. The hospital have been great with all this but often just say it normal but thought I could check with people who have been through it still coming to terms with it as well I suppose.
Lisa

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