Myeloma Forum | lizFirth | Activity https://forum.myeloma.org.uk/members/lizf/activity/ Activity feed for lizFirth. Sun, 12 Apr 2026 03:46:48 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 30dd16b97c4319539ccfdf50e9668110 lizFirth replied to the topic Recently diagnosed with Plasmacytoma in the forum Newcomers https://www.myeloma.org.uk/forums/topic/recently-diagnosed-with-plasmacytoma/#post-137060 Mon, 05 Feb 2018 13:48:24 +0000 Hi Karl
I was like you in 2011 had bad back and it showed spinal collapse at L5 and had kyphoplasty and spinal fusion L4-S1 followed by 5 weeks radiotherapy. Then watch and wait 3/12 till Dec 2014 when it tested its ugly head. My PP had started at 8 and grad went up over time. I then had 4 months chemo followed by SCT June 2015 I have since been…[Read more]

]]> 2230b244cdeb1b14d9ea34e2d539af86 lizFirth replied to the topic Not sure what is happening after my Plasmacytoma in the forum Related conditions http://www.myeloma.org.uk/forums/topic/not-sure-what-is-happening-after-my-plasmacytoma/#post-124677 Wed, 21 Oct 2015 10:54:09 +0100 Hi I had a plasmacytoma of L5 with collapse of said vertebrae in February 2011. Treated with kyphoplasty spinal fusion L4-S1 and 5 weeks radiotherapy. Been on 2 monthly bloods and watch and wait till Oct 2014 when I had an increase in back ache paraproteins had increased slowly overtime. On diagnosis pp was 8 and after MRI scan in Oct found more…[Read more]

]]> 565de9d652d65da597f189424f431c21 lizFirth replied to the topic SCT at Southampton. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/sct-at-southampton/#post-124168 Wed, 16 Sep 2015 12:15:30 +0100 Hi Ian
I had a SCt at SGH on 26th June 2015 and I have to say it wasn’t nearly as bad as I thought it would be.I was diagnosed Feb2011 with collapsed L5 and had Kyphoplasty and Spinal Fusion in Mar 2011 at QA followed by radiotherapy. I then was reviewed 2 monthly on the watch and wait and started treatment last Nov when I had further back ache…[Read more]

]]> dd6bee6bd16a0aea52e8d8fee0058078 lizFirth replied to the topic Delay in SCT in the forum Newcomers http://www.myeloma.org.uk/forums/topic/delay-in-sct/#post-123156 Tue, 21 Jul 2015 05:29:55 +0100 Dear Brian
I am coming in today for a Dr review I could pop my head round the door on C6 as I have something to give them. Would you be up for a very brief visit.
Liz

]]> 736bcba59622f2e7b8e19feb4343c85a lizFirth replied to the topic Delay in SCT in the forum Newcomers http://www.myeloma.org.uk/forums/topic/delay-in-sct/#post-123140 Mon, 20 Jul 2015 12:50:57 +0100 I have just come out of SGH last week after waiting nearly a month to be admitted. I too have had a stem cell transplant and sailed through it aged 52. I did get nausea,tiredness,sore throat and oesophagus and a bit of diarrhoea but it wasn’t as bad as I expected. I spiked a temperature which was immediately assessed with blood tests,blood…[Read more]

]]> e5d34ce7ef48546bc67b297fdbfa6fc1 lizFirth replied to the topic Plasmacytoma - looking for good news in the forum Newcomers http://www.myeloma.org.uk/forums/topic/plasmacytoma-looking-for-good-news#post-86523 Tue, 11 Sep 2012 17:12:41 +0100 Hi Charlotte.

I had my kyphoplasty and spinal fusion done at the same time 3 weeks 3 days after my MRI found the plasmacytoma and fractured L5. Back pain went instantly on awaking apart from surgical soreness. My back aches now particularly on flexion activities but I still play tennis. It feels well supported and I can touch my toes. On CT…[Read more]

]]> 2b7aed4f4e11829c9de4e1fd7dbccd2c lizFirth replied to the topic Plasmacytoma - looking for good news in the forum Newcomers http://www.myeloma.org.uk/forums/topic/plasmacytoma-looking-for-good-news#post-86515 Wed, 29 Aug 2012 17:10:15 +0100 Hi Charlotte
I had plasmacytoma L5 Feb 2011 Kyphoplasty and spinal fusion L4-S1 and 5 weeks radiotherapy but no drug treatment. Now on watch and wait review every 2 months. Are your paraprotein levels very low? mine are hovering around 21. Advised no treatments unless CRAB signs.
Keep in touch
Liz

]]> 9206698ec4056853c25a8cdac3db5239 lizFirth replied to the topic Plasmacytoma in the forum Related conditions http://www.myeloma.org.uk/forums/topic/plasmacytoma1313622173/page/3/#post-105584 Wed, 29 Aug 2012 16:56:26 +0100 Hi Richie
I had exactly the same as you aged 48 Plasmacytoma diaganosed Feb 2011 collapsed L5 vertebrae. 3 weeks 3 days MRI Scan to kyphoplasty and spinal fusion L4-S1 followed by 5 weeks radiotherapy. Not allowed to do much apart from physio for 3 months. Now back to playing tennis although I still have some backache on flexion activities. Ever…[Read more]

]]>