lorrainey replied to the topic FAILED SCT I THINK!!!! in the forum Treatment 13 years, 2 months ago
Hi Kay,
So sorry your SCT didn't work as well as expected. I understand totally your disappointment because mine didn't either. My PP was 25 after my SCT and I was gutted to say the least. I went on Revlimid 25mg maintenance treatment and after a year I finally reached remission 🙂 I stayed on it for a further 6 months but my Prof took me off…[Read more]
lorrainey replied to the topic Revlimid and fluey aches in the forum Side-effects 13 years, 3 months ago
Hi Debs,
I was on Revlimid 25mg for 18 months and I was achey continually. It got better as time went on but I didn't realise how bad I was until I stopped taking it in May this year. My Prof stopped it to give my body a break due to the aches and pains, just for a couple of months but my bloods have improved since being off it and my PP is…[Read more]
lorrainey replied to the topic REPRIEVE AT THE ELEVENTH HOUR in the forum Treatment 13 years, 3 months ago
Hi Jo,
Fantastic news, really pleased for you and I have every faith that you will reach your 3 years remission 😀
love and hugs
Lorraine xxxxx
lorrainey replied to the topic WELL THE DEVIL IS BACK in the forum Treatment 13 years, 4 months ago
Hi Jo
I'm so sorry to read that the beast is back. I wish you well with your
treatment and hope it kicks it into touch very soon. Take care
of yourself and keep us posted how you're doing.
Love n hugs Lorraine xxxx
lorrainey replied to the topic Joining you all at last in the forum Newcomers 13 years, 4 months ago
Hi David,
A very warm welcome from me too. Pleased to hear you're doing well and long may it continue 🙂
Take care
Lorraine xxx
lorrainey replied to the topic bad news 🙁 in the forum General 13 years, 4 months ago
Hi Gina,
So sorry to hear your sad news about your mum, ditto all the above.
Take care
love n hugs Lorraine xxx
lorrainey replied to the topic Hot Flushes in the forum Side-effects 13 years, 5 months ago
Hi Debs and everyone,
Yes I too went into early menopause after my SCT. My periods stopped immediately and hot sweats started…yuk! Hate them! My gp gave me some meds which have helped immensely, sorry I can't remember the name, it's french!
I have also come to terms with it, definitely not wanting anymore children with mine being 20 and 18…[Read more]
lorrainey replied to the topic Kath (aka GrannyGrump) in the forum General 13 years, 5 months ago
Dear Julie
I'm so sorry to hear your sad news about your mum. It's good to know she passed away as she wanted with her family by her side in the comfort of her own home.
My heartfelt condolonces go out to you, your dad and all your family.
May your mum Rest in Peace.
Love and hugs Lorraine xxx
lorrainey replied to the topic Not Good News in the forum Carers 13 years, 5 months ago
Hi Gill
Thinking of you both and I really hope Revlimid works for Stephen. Positive thoughts and cyber hugs winging their way across the channel to you both.
love n hugs Lorraine xxx
lorrainey replied to the topic another 3 months in the forum General 13 years, 5 months ago
Hi David
Great news, so pleased for you 🙂 Njoy your break from appointments.
Love n hugs Lorraine xxx
lorrainey replied to the topic More good news! in the forum General 13 years, 5 months ago
Hi Jet,
Absolutely fantastic news! So pleased for you and as everyone else has said it's great to hear good news, it gives us all a lift 😀
Wishing you a very long, happy, trouble free remission!
Take care of yourself
love n hugs Lorraine xxx
lorrainey replied to the topic Some good news! in the forum General 13 years, 5 months ago
Sorry forgot to add….. Good Luck David, will be thinking of you on Friday!
love n hugs Lorraine xxxx
lorrainey replied to the topic Some good news! in the forum General 13 years, 5 months ago
Hi Liz & Kev,
Fantastic news!! 😀 Enjoy your holibobs, and wishing Kev a very long, happy, pain free remission! I love hearing good news like yours!
love n hugs Lorraine xxx
lorrainey replied to the topic WEDDING ANIVERSERY in the forum Off topic 13 years, 5 months ago
Hi Jo
Congratulations on your 46th Wedding Anniversary, wishing you many more 🙂
Love n hugs Lorraine xxx
lorrainey replied to the topic New to forum but no stranger to MM in the forum Newcomers 13 years, 6 months ago
Hi Alexis and John
A very warm welcome from me too, I hope you find this site as helpful and supportive as we all do…it's the best one on the net 😉
love n hugs Lorraine xxx
lorrainey replied to the topic Kidney Failure in the forum Related conditions 13 years, 6 months ago
Hi Martin,
So sorry to read about your father, my sincere condolonces to you and your family.
love n hugs Lorraine xxx
lorrainey replied to the topic Radiotherapy Appointment Tomorrow!! Yippee!! in the forum Treatment 13 years, 6 months ago
Hi Bridget,
I hope you have a better day today, sorry you were so sick with the RT
🙁
Thinking of you.
love n hugs Lorraine xxx
lorrainey replied to the topic Fingers Crossed For Me Please in the forum Off topic 13 years, 6 months ago
Hi Gill and everyone,
Well done for going to your class, i'm pleased you enjoyed it 🙂
I can guarantee Gill that you will be teaching me lol! I've been here 7yrs now but still only 'get by' with my french….jeez that's really bad isn't it? :-S I went to french lessons for 3yrs and was doing ok, then the dreaded MM decided to join me and…[Read more]
lorrainey replied to the topic My father in the forum Carers 13 years, 6 months ago
Dear Sarah,
I'm so sorry to hear of your fathers' passing. My sincere condolonces to you and your family.
Love and ((((HUGS)))
Lorraine xxx
lorrainey replied to the topic 28 days post SCT in the forum General 13 years, 6 months ago
Hi Helen,
Pleased to hear you're on the road to recovery, wishing you a very long and happy remission.
Take care of yourself.
love n hugs Lorraine xxxx