Hi Gill,
I also don't know what to say but just want you to know i'm thinking of you both. I don't post on here very often but I read all posts and follow everyones journeys. Stephen and I had our SCT's the same day, but unfortunately mine didn't work too well and have been on Revlimid since October 2009 and am now in remission. I was so pleased…[Read more]

Hi Kay,

My pp was 28 when I had my SCT and all my hair fell out too! I was dreading losing it and I got a wig, scarves etc but I shocked myself because I only wore my wig twice and never wore my scarves!

Good luck with your SCT

love Lorraine xxx

Hi Bluebird,
I'm so sorry for you and your families loss. Thinking of you all at this sad time.
Love & hugs Lorraine xx

Hi Nigel,
Welcome to a brilliant site, you've come to the right place for help and support. I also live in France, where abouts are you? I live in dept 53 and am under Professeur Lamy at Rennes who is brilliant. I was diagnosed February 2008 with smouldering myeloma but it progressed pretty quickly and I started treatment Velcade/Dex February…[Read more]

Hi Roz, it's so good to see you. I hope you're looking after yourself amongst everything else that you've had to deal with. Take it easy and take one day at a time, there's no rush.
Love n hugs Lorraine xxx

Hi Min & everyone, what a great idea!! I don't post very often but I do read the posts frequently.
I'm Lorraine, 42 and live in France with my wonderful hubby Daren and two children Leanne 19 and Josh 17 and our boder collie Izzy 2. Sadly we lost our older border Jess in January 🙁 I was diagnosed in February 2008 with smouldering MM but it…[Read more]

Hi all,
I'd like to tell you of my experience of getting disability benefit. I live in France so know it's different than in the UK but I applied last February 2010 and they check applications rigorously here..(not saying they don't in the UK) Your application goes to a panel and they decide if your application is worthy or not. They have an…[Read more]

Hi Dai & Min,
I got the same email too, and like you Min I thought it was probably from a site that I joined ages ago. I have ignored it but will now do a virus check too.
Sorry Michelle that you and your son are going through a rough time, I hope it gets sorted very soon.
Take care all, love n hugs Lorraine X

Hi Keith,
Sorry to read this, I wish you all the best with round two.
love n hugs Lorraine xxx

Hi Min,
I'd like to thank you for the recommendation too. I've ordered some flexi-joints for my 15 and half yr old border collie Jess whose back legs have also gone very weak. It's good to hear of something that actually works 🙂 I'll let you know how we get on with them.
Lorraine xxx

Hi Jo, i've been on Revlimid for just over a year and I came out in a rash on my neck and face soon after I started taking it. I had it for the first three months, it was at its' worst during the first cycle then began to fade and eventually cleared up altogether thankfully. It wasn't itchy but very lumpy and red. My Professeur was concerned…[Read more]

Hi Roz,
I'm so sorry to read of Michaels passing, I have followed your posts and am truly saddened by this. I will be thinking of you tomorrow (((hugs)))
Love & hugs Lorraine xxx

Hi Fran, I also want to say I hope all is going ok with your SCT and that i'm thinking of you too.
Love n hugs Lorraine x

Hi David,
I just want to say I wish you well for your SCT. I had mine June 2009 and I was a 'guinea pig' for a new mouthwash, sorry I can't remember the name of it now but I don't think it was the same as yours. It was brilliant, I didn't get any soreness or ulcers whatsoever, I hope you have the same results with yours. Your hossy room…[Read more]

Hi one & all,

I finally got here too!! I haven't posted on the old site for a long time due to 'forgetting' my login details. I have been reading the blogs regularly tho so i've been keeping up with what's been going on with everyone. I'll blog soon to let you know what's been happening with me….not that it's very exciting lol! Good to see…[Read more]