Myeloma Forum | lorrainesmith | Activity https://forum.myeloma.org.uk/members/lorrainey/activity/ Activity feed for lorrainesmith. Sat, 25 Apr 2026 22:37:41 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 5b1df49fa3a4541eb750eec48e510e91 lorrainesmith replied to the topic new arrival in the forum Off topic http://www.myeloma.org.uk/forums/topic/new-arrival1359543044/page/2/#post-110666 Sat, 09 Feb 2013 17:29:33 +0000 Awww what lovely news to read. Congratulations to all of you with your new arrivals and older grandchildren. I'm too young for them yet…so I tell my kids 😉 hehe! I hope to get them one day and be as happy as all of you.

Take care all of you and enjoy those little bundles of joy!

Love n hugs Lorraine
xxxxx

]]> 5d2ad396c1ecf3bcb300f7ce315081de lorrainesmith replied to the topic Here We Go Again in the forum Treatment http://www.myeloma.org.uk/forums/topic/here-we-go-again1359065333#post-101545 Fri, 25 Jan 2013 11:47:33 +0000 Hi Keith,
I'm so sorry you're still having such a rough time, I truly hope these tranfusions help you even if it's a little bit. Sorry you can't get away on holiday, i've everything xd that you will be able to sometime soon. Pleased the abdominal pain has eased off and I hope you manage to get some sleep too. I sincerely hope the treatment's…[Read more]

]]> b15f5244aa50a8117f91ae3c2388d0c3 lorrainesmith replied to the topic Bendamustine Bombed? in the forum Treatment http://www.myeloma.org.uk/forums/topic/bendamustine-bombed#post-101430 Thu, 10 Jan 2013 13:57:16 +0000 Hi Keith

Just to say i'm thinking of you and like everyone else i'm hoping it's just a blip with your paraproteins. Stay strong and keep up the good fight, we're all behind you.

Love and hugs Lorraine xxxx

]]> d434da851c8c2cbffe70c5d02f7ff467 lorrainesmith replied to the topic Just got a diagnosis in the forum Newcomers http://www.myeloma.org.uk/forums/topic/just-got-a-diagnosis#post-87081 Wed, 09 Jan 2013 10:50:19 +0000 Hi Deb,

I'm sorry you've had to join us but you will get lots of help and advice from the lovely people on here 🙂

It's very daunting when you receive the diagnosis of myeloma, I remember feeling exactly how you describe. I got diagnosed at 39 nearly 5 yrs ago, smouldered for a year then it became active so had Velcade/Dex for 8 cycles…[Read more]

]]> 33d409dc03abf7852b69b35f49a012a3 lorrainesmith replied to the topic Happy Birthday in the forum General http://www.myeloma.org.uk/forums/topic/happy-birthday#post-93901 Tue, 04 Dec 2012 21:54:12 +0000 And it's a very happy 3rd birthday from me too Tom 😀

Mine are 3 and half years old so ur catching up 😛

Here's to many, many more happy birthdays for ur ickle stem cells 😀

Keep well and long may it continue!

Love n hugs Lorraine xxxxx

]]> 9668839d70ddbce41352a588e066b25f lorrainesmith replied to the topic Good News! in the forum General http://www.myeloma.org.uk/forums/topic/good-news1352110080#post-93743 Tue, 06 Nov 2012 22:11:20 +0000 Hi Mavis,

That's fantastic news, so chuffed for you 🙂 I'm nearly 3 and half years
post SCT and in complete remission…long may it continue for us both!

Love n hugs Lorraine xxx

]]> 4593edab7a64b9f4e9f1aadab149e2c0 lorrainesmith replied to the topic velcade in the forum Newcomers http://www.myeloma.org.uk/forums/topic/velcade#post-86822 Fri, 19 Oct 2012 22:25:52 +0100 Hi Michael,

I hope Josephine is bearing up. I live in France and had Velcade as first line treatment back in February 2009, they had just finished a trial for it and because of the results they decided to use it as first line treatment.
I have everything crossed for good results for Josephine.

Take care

love n hugs Lorraine xxx

]]> 2b717f18f3a06a5593a6103ebab4d2b7 lorrainesmith replied to the topic Sad news in the forum Under 50s http://www.myeloma.org.uk/forums/topic/sad-news/page/2/#post-107032 Fri, 19 Oct 2012 22:00:06 +0100 Hi Rachel,

I'm so shocked and saddened to hear of Pauls passing. My sincere
condolonces are sent to you and your family.

Take care of yourself,

love n hugs Lorraine xxxx

]]> 6f9b12e2cd8eedc57461cf6654a5bb2b lorrainesmith replied to the topic We lost our dad. in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/we-lost-our-dad#post-107888 Fri, 19 Oct 2012 21:55:32 +0100 Hi Vicky,

I'm so sorry to hear you've lost your lovely dad to this dreadful
disease. My sincere condolonces go to you, your mum and all your family.
Take care, look after yourself and your mum.

Love n hugs Lorraine xxx

]]> cd2c58f59661024006dbf13db9b12c9a lorrainesmith replied to the topic Greece in the forum General http://www.myeloma.org.uk/forums/topic/greece#post-93550 Mon, 24 Sep 2012 11:21:46 +0100 Hi Andy & Steph,

Sounds wonderful! Enjoy your holiday and keep well 🙂

Love n hugs

Lorraine xx

]]> 7293147444319cab3865959be13546bd lorrainesmith replied to the topic Stephen has gone in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/stephen-has-gone#post-107776 Wed, 12 Sep 2012 13:48:37 +0100 Dear Gill,

I'm so sad to read that Stephen has passed, my sincere condolonces to you and your family.

Lots of love

Lorraine

xxx

]]> de0ca1566977703e8435bd0ba48c2438 lorrainesmith replied to the topic No really - this is good news in the forum Off topic http://www.myeloma.org.uk/forums/topic/no-really-this-is-good-news#post-110469 Fri, 07 Sep 2012 20:58:25 +0100 Hi David

Fantastic news, so pleased for you 🙂

Good luck with your treatment, hope it's as kind to you as possible.

Love n hugs Lorraine
xxxxx

]]> 9eaeb3a0af48d264a0ba46ac61a9dbec lorrainesmith replied to the topic Good News in the forum General http://www.myeloma.org.uk/forums/topic/good-news#post-93384 Fri, 31 Aug 2012 15:37:38 +0100 Dear Eve & Slim,

Great news, i'm so pleased for you after everything you've been through. Have a wonderful time on your cruise, i'm sure you will 😀

Love n hugs Lorraine xxxx

]]> 029e40ef7cb0aac88803f771a731e54b lorrainesmith replied to the topic And the GOOD news is in the forum Off topic http://www.myeloma.org.uk/forums/topic/and-the-good-news-is#post-110439 Fri, 24 Aug 2012 11:07:37 +0100 Dear David,

I'm so sorry to hear your news, I hope the treatment kicks it into touch and is kind to you.

Take care, love n hugs Lorraine xxx

]]> 69379cd1c006c0e1c177656fa92c779c lorrainesmith replied to the topic Good luck Tom! in the forum Off topic http://www.myeloma.org.uk/forums/topic/good-luck-tom#post-110414 Fri, 17 Aug 2012 00:33:42 +0100 Hope all went well today Tom, have been thinking of u 🙂

Can't wait to hear all about it!

Love n hugs Lorraine xxx

]]> 1d022cb9ffab4fca2dc65264cc485480 lorrainesmith replied to the topic Wish Me Luck as I have in the forum Off topic http://www.myeloma.org.uk/forums/topic/wish-me-luck-as-i-have#post-110361 Sun, 15 Jul 2012 18:45:08 +0100 Good luck Tom, i've got everything crossed ur interview goes well 😀

Don't forget ur friends if u do win 😉 hehe

xxxxxx

]]> 28b34049ab957de58bd85ce5ccf3a91b lorrainesmith replied to the topic Good News X Two in the forum General http://www.myeloma.org.uk/forums/topic/good-news-x-two/page/2/#post-93002 Sat, 07 Jul 2012 23:13:14 +0100 Hi Tom & Elaine,

Have only just seen your post but wanted to say that's fantastic news for you both! So chuffed for u and long may it continue 😀

Few voddys have been in order I reckon 😉

Love n hugs to u both Lorraine xxxx

]]> 2c2ed96701f12e659bdee201dc7f2fae lorrainesmith replied to the topic Brocho - Bridget Rochfort in the forum General http://www.myeloma.org.uk/forums/topic/brocho-bridget-rochfort/page/2/#post-92896 Tue, 19 Jun 2012 13:34:41 +0100 Dear Siobhan,

I too read about your mums passing on facebook and am in utter shock, many tears have been shed. Your mum was a lovely lady and a great inspiration to all of us on here.
My sincere condolonces go out to you and all your family at this extremely sad time.

Love & hugs Lorraine xxx

]]> 3c916085f7eebe63852ebcb25c2597e9 lorrainesmith replied to the topic POSTBONED in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/postboned/page/2/#post-107592 Sun, 29 Apr 2012 08:42:08 +0100 Dear Eve & Slim,

I'm so sorry to hear your sad news, my thoughts are with you and your family at this terribly sad time.

Love & hugs Lorraine xxxx

]]> ba656573e92707360921965a0b245d97 lorrainesmith replied to the topic Treatment Free :-) in the forum Treatment http://www.myeloma.org.uk/forums/topic/treatment-free-#post-98880 Thu, 23 Feb 2012 19:30:10 +0000 Welcome to my gang Tom, it's great being drug free 😀 I've been
off everything for 9 months now and apart from feeling tired all
the time i'm doing well.

Well done and long may it continue for you 😀

Take care

Love n hugs Lorraine xxx

]]> 9d04c318b5addce5857c07f4a90b7920 lorrainesmith replied to the topic FAILED SCT I THINK!!!! in the forum Treatment http://www.myeloma.org.uk/forums/topic/failed-sct-i-think#post-98618 Fri, 06 Jan 2012 09:37:56 +0000 Hi Kay,

So sorry your SCT didn't work as well as expected. I understand totally your disappointment because mine didn't either. My PP was 25 after my SCT and I was gutted to say the least. I went on Revlimid 25mg maintenance treatment and after a year I finally reached remission 🙂 I stayed on it for a further 6 months but my Prof took me off…[Read more]

]]> d3eb7c10096429461b841b931b583b39 lorrainesmith replied to the topic Revlimid and fluey aches in the forum Side-effects http://www.myeloma.org.uk/forums/topic/revlimid-and-fluey-aches#post-104342 Wed, 30 Nov 2011 22:58:38 +0000 Hi Debs,

I was on Revlimid 25mg for 18 months and I was achey continually. It got better as time went on but I didn't realise how bad I was until I stopped taking it in May this year. My Prof stopped it to give my body a break due to the aches and pains, just for a couple of months but my bloods have improved since being off it and my PP is…[Read more]

]]> ac052027aea5e9e1696d7fb6ccbc45f2 lorrainesmith replied to the topic REPRIEVE AT THE ELEVENTH HOUR in the forum Treatment http://www.myeloma.org.uk/forums/topic/reprieve-at-the-eleventh-hour#post-98534 Fri, 25 Nov 2011 23:09:30 +0000 Hi Jo,

Fantastic news, really pleased for you and I have every faith that you will reach your 3 years remission 😀

love and hugs

Lorraine xxxxx

]]> 7d8dd33c5713944c7e40f7c7b6df5ddd lorrainesmith replied to the topic WELL THE DEVIL IS BACK in the forum Treatment http://www.myeloma.org.uk/forums/topic/well-the-devil-is-back#post-98499 Mon, 14 Nov 2011 19:10:11 +0000 Hi Jo

I'm so sorry to read that the beast is back. I wish you well with your
treatment and hope it kicks it into touch very soon. Take care
of yourself and keep us posted how you're doing.

Love n hugs Lorraine xxxx

]]> fe61c7a95fd6a0ba96eb1affc4b9fc25 lorrainesmith replied to the topic Joining you all at last in the forum Newcomers http://www.myeloma.org.uk/forums/topic/joining-you-all-at-last#post-85311 Mon, 07 Nov 2011 15:13:38 +0000 Hi David,

A very warm welcome from me too. Pleased to hear you're doing well and long may it continue 🙂

Take care

Lorraine xxx

]]> a6958c4a185f129338e0f64107ccd6c8 lorrainesmith replied to the topic bad news :-( in the forum General http://www.myeloma.org.uk/forums/topic/bad-news-#post-91622 Sat, 29 Oct 2011 09:49:11 +0100 Hi Gina,

So sorry to hear your sad news about your mum, ditto all the above.

Take care

love n hugs Lorraine xxx

]]> 6cc849e6cf96014b8da2fab614cbd80f lorrainesmith replied to the topic Hot Flushes in the forum Side-effects http://www.myeloma.org.uk/forums/topic/hot-flushes#post-104119 Tue, 11 Oct 2011 08:12:31 +0100 Hi Debs and everyone,

Yes I too went into early menopause after my SCT. My periods stopped immediately and hot sweats started…yuk! Hate them! My gp gave me some meds which have helped immensely, sorry I can't remember the name, it's french!
I have also come to terms with it, definitely not wanting anymore children with mine being 20 and 18…[Read more]

]]> dcf13fa3047eac65c8c846bcf43fe49b lorrainesmith replied to the topic Kath (aka GrannyGrump) in the forum General http://www.myeloma.org.uk/forums/topic/kath-aka-grannygrump#post-91487 Fri, 07 Oct 2011 08:47:45 +0100 Dear Julie

I'm so sorry to hear your sad news about your mum. It's good to know she passed away as she wanted with her family by her side in the comfort of her own home.
My heartfelt condolonces go out to you, your dad and all your family.

May your mum Rest in Peace.

Love and hugs Lorraine xxx

]]> 6f61ad014dee69bf2fd054a275cef781 lorrainesmith replied to the topic Not Good News in the forum Carers http://www.myeloma.org.uk/forums/topic/not-good-news/page/2/#post-106175 Mon, 03 Oct 2011 11:16:47 +0100 Hi Gill

Thinking of you both and I really hope Revlimid works for Stephen. Positive thoughts and cyber hugs winging their way across the channel to you both.

love n hugs Lorraine xxx

]]> a355fa75e3d31dc46729f8c87387fbad lorrainesmith replied to the topic another 3 months in the forum General http://www.myeloma.org.uk/forums/topic/another-3-months#post-91388 Fri, 30 Sep 2011 20:54:31 +0100 Hi David

Great news, so pleased for you 🙂 Njoy your break from appointments.

Love n hugs Lorraine xxx

]]> a258f064e6e4cfe405943b083233b1b2 lorrainesmith replied to the topic More good news! in the forum General http://www.myeloma.org.uk/forums/topic/more-good-news#post-91368 Wed, 28 Sep 2011 09:52:49 +0100 Hi Jet,

Absolutely fantastic news! So pleased for you and as everyone else has said it's great to hear good news, it gives us all a lift 😀

Wishing you a very long, happy, trouble free remission!

Take care of yourself

love n hugs Lorraine xxx

]]> 1a421dfd25112b721e2d5e8501714dbb lorrainesmith replied to the topic Some good news! in the forum General http://www.myeloma.org.uk/forums/topic/some-good-news1317055534#post-91338 Mon, 26 Sep 2011 20:00:13 +0100 Sorry forgot to add….. Good Luck David, will be thinking of you on Friday!

love n hugs Lorraine xxxx

]]> 4a5d6a25d5acbbf1cfe30c938912dbe9 lorrainesmith replied to the topic Some good news! in the forum General http://www.myeloma.org.uk/forums/topic/some-good-news1317055534#post-91340 Mon, 26 Sep 2011 19:58:58 +0100 Hi Liz & Kev,

Fantastic news!! 😀 Enjoy your holibobs, and wishing Kev a very long, happy, pain free remission! I love hearing good news like yours!

love n hugs Lorraine xxx

]]> c7bca7f92e513ec274405aa534b15ada lorrainesmith replied to the topic WEDDING ANIVERSERY in the forum Off topic http://www.myeloma.org.uk/forums/topic/wedding-aniversery#post-109715 Mon, 26 Sep 2011 19:50:59 +0100 Hi Jo

Congratulations on your 46th Wedding Anniversary, wishing you many more 🙂

Love n hugs Lorraine xxx

]]> 567fba6a1ce97f26e932547daa11a1b2 lorrainesmith replied to the topic New to forum but no stranger to MM in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-forum-but-no-stranger-to-mm#post-85047 Mon, 19 Sep 2011 06:57:44 +0100 Hi Alexis and John

A very warm welcome from me too, I hope you find this site as helpful and supportive as we all do…it's the best one on the net 😉

love n hugs Lorraine xxx

]]> c41853ef14e00ac946c0c3d8ee9b80e5 lorrainesmith replied to the topic Kidney Failure in the forum Related conditions http://www.myeloma.org.uk/forums/topic/kidney-failure/page/2/#post-105546 Sat, 17 Sep 2011 00:24:55 +0100 Hi Martin,

So sorry to read about your father, my sincere condolonces to you and your family.

love n hugs Lorraine xxx

]]> 41616a629493e917618c79846131ffd5 lorrainesmith replied to the topic Radiotherapy Appointment Tomorrow!! Yippee!! in the forum Treatment http://www.myeloma.org.uk/forums/topic/radiotherapy-appointment-tomorrow-yippee/page/3/#post-98142 Fri, 16 Sep 2011 10:13:49 +0100 Hi Bridget,

I hope you have a better day today, sorry you were so sick with the RT
🙁
Thinking of you.

love n hugs Lorraine xxx

]]> 05c722fb0a9ef97fa37a57d4bcff71c2 lorrainesmith replied to the topic Fingers Crossed For Me Please in the forum Off topic http://www.myeloma.org.uk/forums/topic/fingers-crossed-for-me-please#post-109671 Thu, 15 Sep 2011 10:24:38 +0100 Hi Gill and everyone,

Well done for going to your class, i'm pleased you enjoyed it 🙂
I can guarantee Gill that you will be teaching me lol! I've been here 7yrs now but still only 'get by' with my french….jeez that's really bad isn't it? :-S I went to french lessons for 3yrs and was doing ok, then the dreaded MM decided to join me and…[Read more]

]]> c6224b00b604cc739b7b51199448aed6 lorrainesmith replied to the topic My father in the forum Carers http://www.myeloma.org.uk/forums/topic/my-father#post-106115 Thu, 15 Sep 2011 07:00:30 +0100 Dear Sarah,

I'm so sorry to hear of your fathers' passing. My sincere condolonces to you and your family.

Love and ((((HUGS)))

Lorraine xxx

]]> 7ce6ffcf80de7aa2e3c8b02e1d801181 lorrainesmith replied to the topic 28 days post SCT in the forum General http://www.myeloma.org.uk/forums/topic/28-days-post-sct#post-91204 Wed, 14 Sep 2011 07:07:23 +0100 Hi Helen,

Pleased to hear you're on the road to recovery, wishing you a very long and happy remission.

Take care of yourself.

love n hugs Lorraine xxxx

]]> c95a922a98937dbfee64d11646599ab1 lorrainesmith replied to the topic Velcade 6 - Yippee! in the forum Treatment http://www.myeloma.org.uk/forums/topic/velcade-6-yippee#post-98204 Tue, 13 Sep 2011 20:17:11 +0100 Hi Dai

Fantastic news, so pleased for you 😀 Long may it continue as Tom says!

I hope the remaining 2 cycles of Velcade are kind to you 😉

love n hugs Lorraine xxx

]]> 83a870fbeb04d15fe6ed3b2a4b20b28f lorrainesmith replied to the topic Neatropaenic Sepsis in the forum Side-effects http://www.myeloma.org.uk/forums/topic/neatropaenic-sepsis#post-104237 Sat, 10 Sep 2011 21:33:57 +0100 Dear Min,

Thankyou from me too for your very brave post. ((((BIG HUGS)))) and love to you.

Take care

Lorraine xxx

]]> 732867fae22091d797eeb489836e83a5 lorrainesmith replied to the topic Radiotherapy Appointment Tomorrow!! Yippee!! in the forum Treatment http://www.myeloma.org.uk/forums/topic/radiotherapy-appointment-tomorrow-yippee#post-98119 Fri, 09 Sep 2011 13:30:48 +0100 Hi Bridget,

Sorry i've only just seen your post, don't know how i've managed to miss it :-/

What great news that you have an appointment for RT next week, i'm so pleased your Prof is doing this for you and I have Everything crossed that you only need one session…but if you do need more I so hope it rids you of the horrendous pain you are…[Read more]

]]> c7d73d11644e84c0736280c214457ff3 lorrainesmith replied to the topic Peter in the forum General http://www.myeloma.org.uk/forums/topic/peter/page/3/#post-90389 Wed, 07 Sep 2011 06:20:16 +0100 Dear Min,

I too will be thinking of you and your family today.

love n hugs Lorraine xxxx

]]> b0b96966695a059fa1615321e0c39acc lorrainesmith replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic http://www.myeloma.org.uk/forums/topic/about-as-ff-topic-as-you-can-get-2/page/2/#post-109083 Mon, 05 Sep 2011 12:26:08 +0100 LOL Gill!! You're right there!! 🙂

Here's the next one: HYSTERICAL

Leaving CAL …..

]]> ae4b83bb02a4687eeb11c932dfe87822 lorrainesmith replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic http://www.myeloma.org.uk/forums/topic/about-as-ff-topic-as-you-can-get-2/page/2/#post-109081 Mon, 05 Sep 2011 10:46:39 +0100 Hi guys,

EDUCATION

leaving ION

xxx

]]> 1a47ed3cb1aac9dd4a364ec459fb8b28 lorrainesmith replied to the topic Levels back up... :-( in the forum Treatment http://www.myeloma.org.uk/forums/topic/levels-back-up-#post-98058 Mon, 05 Sep 2011 06:44:43 +0100 Hi Chelle,

Sorry i've only just seen your post and want to say Good Luck at the hospital today, I'll be thinking of you and hoping you get a positive treatment plan for your husband.

Take care

love n hugs Lorraine xxx

]]> 1340696697c3301fa23e398d02082973 lorrainesmith replied to the topic New to the forum in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-the-forum/page/4/#post-84899 Sat, 03 Sep 2011 19:27:40 +0100 Hi Ted,

Sorry i'm late in saying hello, unfortunately I missed ur post :-/ You've joined a fab site with some wonderful friendly folk who will help, support and advise you as much as possible…such a shame we're all here for this b****y disease.

Take care.

love n hugs Lorraine xxx

]]> 350fbb8f11a8cedef838798d46e5dd6a lorrainesmith replied to the topic Welcome Paul in the forum Under 50s http://www.myeloma.org.uk/forums/topic/welcome-paul#post-106875 Fri, 02 Sep 2011 20:28:16 +0100 Hi Paul

Sorry you've had to join the friendly site that none of us wanted to join…meant in the nicest of ways 😉 I just want to say good luck with your treatment and I hope you have good results with it. I took Revlimid after my SCT for 18 months and it put me in remission 😀 I suffered quite a few side effects with it but it was worth…[Read more]

]]> fd636f0d2e2107ca93f637ad6dfc11e2 lorrainesmith replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic http://www.myeloma.org.uk/forums/topic/about-as-ff-topic-as-you-can-get-2#post-109067 Fri, 02 Sep 2011 19:49:24 +0100 Hi All,

What a great game, my brain needs to be worked at times :-S

Here's mine TEACHER

Lorraine xx

]]>