[lottieParticipant]

Hi Judy,
Sounds like your diagnosis was discovered like my one was.
Thank you for all the information on your treatment, this helps a lot as like you say you are on similar treatment and it was great to hear how you were progressing with it. I appreciate everyone’s system will respond differently but this was helpful.
I have received the Myeloma Info pack and found that extremely useful and like you say details on suggested questions was helpful.
I have not been told what stage my Myeloma is at, I may find that out at my Consultants appointment.
I have found everyone so very helpful and cannot fault the medical staff either.
Good luck to you too, let me know how you get on with your stem cell appointment.
Best wishes

Lottie.

[lottieParticipant]

Hi Mulberry,
Thank you so much for your responses and information, was lovely to hear you had met up with Myeloma patients who were diagnosed years ago, that was good to hear.
I just want to get on with treatment now and hoping I don’t have too many side effects.
Thank you again.

Best wishes

Lottie

[lottieParticipant]

Hi KH0305

Thank you so much for your detailed response and information details.
I have been reading a lot of information from this site too but still seems all a bit unreal at the moment.
I will certainly let you know how I get on.
Thank you again.
Best wishes

Lottie

[lottieParticipant]

Hi Kevin,
Thank you so much for your response and information.
I am still coming to terms with this as I had no symptoms so came as quite a shock.
I was so glad to hear that you are in remission and have been for a while, long may that continue.
Best wishes

Lottie

[lottieParticipant]

Thank you to everyone for all the comments, very much appreciated.

I have received details of the treatment the consultant is planning:-

Bortezomib
Thalidomide
Daratumumb

Steroid: prednisolone and dexamethasone

Has anyone had the sane treatment and are there any particular side effects anyone had. I know everyone’s system reacts differently but interested to know.

Thank you all.

Lottie

[lottieParticipant]

Thank you for your lovely response.

Still in shock and up and down.

Trying to keep busy and positive.

Lottie

[Author]

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