[loubellaParticipant]

Thanks again for the additional information

[loubellaParticipant]

Another quick question for Rabbit please. Did you have the extra 2 months of induction chemo immediately after the stem cell collection process or did you have a gap/break with no treatment? (as you say, living to do and hoping to take a short, much needed holiday).
Secondly, is the maintenance treatment Lenalidomide and if so how do you get on with it, are you able to function normally in terms of wellness and energy levels?

Thanks again for your input

[loubellaParticipant]

Thank you so much Rabbit, that is very helpful, we have a meeting on Thursday to sign consent form for the stem cell collection. So my husband should expect to have 2 more months of the induction chemo after the stem cell collection, that is useful to know and helps with planning how we go forward.

[loubellaParticipant]

I am interested to hear from anyone else who declined the SCT after the 4 months DVTD induction treatment. My husband had an excellent response to the DVTD and is in remission. He is 67 years old, generally fit and healthy and very lucky that the Myeloma was diagnosed before any damage to bones or kidneys.
We feel that we have been steered quite forcefully towards the SCT even though our consultant is saying that in the near future the other treatments will make the SCT obsolete and no guarantee that the remission will necessarily be longer with the SCT than without. He is wondering if the risks of the treatment and long recovery period are actually worth it. We are not retired and run our own small business so the logistics of my husband possibly being unable to work for 3 or 4 months are going to be very difficult to plan for. Has anyone else any experience of what treatment is offered instead of the SCT. We possibly have the option of just going through the process up to the stem cell harvest, having the stem cells stored and then and then putting the process on hold.

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