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	<title>Myeloma Forum | louishenry | Activity</title>
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				<title>louishenry replied to the topic Best Resource on Multiple Myeloma in the forum General</title>
				<link>https://www.myeloma.org.uk/forums/topic/best-resource-on-multiple-myeloma/#post-137652</link>
				<pubDate>Fri, 13 Apr 2018 20:20:24 +0100</pubDate>

									<content:encoded><![CDATA[<p>Hi Dan, are you UK based? If so the information on this site is absolutely unbeatable, dozens of booklets downloadable or in paper form, always up to date, thorough but understandable. I&#8217;ve had myeloma for more than 3 years now and whenever I move on to a new treatment I can always find information here. The consultant and the nurses are very good&hellip;<span class="activity-read-more" id="activity-read-more-53043"><a href="https://www.myeloma.org.uk/forums/topic/best-resource-on-multiple-myeloma/#post-137652" rel="nofollow">[Read more]</a></span></p>
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				<title>louishenry replied to the topic Health &#38; Fitness Tips in the forum Off topic</title>
				<link>https://www.myeloma.org.uk/forums/topic/health-fitness-tips/#post-136305</link>
				<pubDate>Fri, 01 Dec 2017 20:14:11 +0000</pubDate>

									<content:encoded><![CDATA[<p>I&#8217;m sure it is, but tell the teacher about myeloma. I do mainly Pilates which I find really helpful but I miss out or modify any exercises that put body weight on one or two bones, since our bones are like Swiss cheese!</p>
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				<title>louishenry replied to the topic The best hospital to treat Myeloma??? in the forum General</title>
				<link>https://www.myeloma.org.uk/forums/topic/the-best-hospital-to-treat-myeloma/#post-135251</link>
				<pubDate>Thu, 28 Sep 2017 14:20:24 +0100</pubDate>

									<content:encoded><![CDATA[<p>Southampton is very good. I was diagnosed at St Mary&#8217;s on the Isle of Wight but I signed up for a clinical trial which meant all my treatment was and is at Southampton. It&#8217;s well worth the journey.</p>
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				<title>louishenry replied to the topic New to the Forum in the forum Newcomers</title>
				<link>https://www.myeloma.org.uk/forums/topic/new-to-the-forum-2/#post-133323</link>
				<pubDate>Tue, 09 May 2017 08:56:03 +0100</pubDate>

									<content:encoded><![CDATA[<p>Hi Teresa, I spent most of yesterday in C7 in Southampton, they&#8217;re lovely there, though the waits get tedious. In nearly two and a half years I&#8217;ve only managed 12 months remission but being on treatment doesn&#8217;t stop me staying active and enjoying life. Do what you can when you can and don&#8217;t worry about the future until it happens.</p>
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				<title>louishenry replied to the topic Posture/sitting in the forum Newcomers</title>
				<link>https://www.myeloma.org.uk/forums/topic/posturesitting/#post-133322</link>
				<pubDate>Tue, 09 May 2017 08:45:15 +0100</pubDate>

									<content:encoded><![CDATA[<p>&lt;p style=&#8221;text-align: center;&#8221;&gt;We&#8217;re all different but good posture is good posture with or without myeloma. I do Pilates twice a week and find it very helpful, though I sit out exercises that seem to put a lot of stress on bones. Lots of exercise, healthy diet, always helps. Our bodies need all the help they can get as they deal with the mm and&hellip;<span class="activity-read-more" id="activity-read-more-49618"><a href="https://www.myeloma.org.uk/forums/topic/posturesitting/#post-133322" rel="nofollow">[Read more]</a></span></p>
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				<title>louishenry replied to the topic fruit and veg after stem cell transplant in the forum General</title>
				<link>https://www.myeloma.org.uk/forums/topic/fruit-and-veg-after-stem-cell-transplant/#post-133190</link>
				<pubDate>Thu, 27 Apr 2017 12:30:26 +0100</pubDate>

									<content:encoded><![CDATA[<p>I only got 12 months from my first one so I won&#8217;t be offered a second, but if it was recommended I would go for it. It&#8217;s unpleasant but the really horrible bit only lasts a week or so.</p>
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				<title>louishenry replied to the topic Hello from the states in the forum Newcomers</title>
				<link>https://www.myeloma.org.uk/forums/topic/hello-from-the-states/#post-133168</link>
				<pubDate>Mon, 24 Apr 2017 12:34:07 +0100</pubDate>

									<content:encoded><![CDATA[<p>Yes.</p>
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				<title>louishenry replied to the topic Hello from the states in the forum Newcomers</title>
				<link>https://www.myeloma.org.uk/forums/topic/hello-from-the-states/#post-133152</link>
				<pubDate>Mon, 24 Apr 2017 08:41:53 +0100</pubDate>

									<content:encoded><![CDATA[<p>Hi Michael, I occasionally look at the Myeloma Beacon forum but I&#8217;ve never contributed so I haven&#8217;t had to log in. It&#8217;s always interesting to see a wide range of information and views but treatment options are quite different here in the UK so you might find some things less applicable in your case. We&#8217;re all facing the same MM beast though.</p>
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				<title>louishenry replied to the topic Mistletoe in the forum Treatment</title>
				<link>https://www.myeloma.org.uk/forums/topic/mistletoe/#post-133151</link>
				<pubDate>Mon, 24 Apr 2017 08:32:49 +0100</pubDate>

									<content:encoded><![CDATA[<p>Talk to your hospital consultant first, see what she/he thinks about it. Personally I&#8217;d be very sceptical.</p>
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				<title>louishenry replied to the topic Daratumumab in the forum General</title>
				<link>https://www.myeloma.org.uk/forums/topic/daratumumab/#post-133086</link>
				<pubDate>Sat, 15 Apr 2017 18:14:20 +0100</pubDate>

									<content:encoded><![CDATA[<p>&lt;p style=&#8221;text-align: center;&#8221;&gt;Interesting article. It all comes down to marketing strategies. The high cost of developing these drugs has to be covered somehow. If that is done with very high initial cost but some compassionate offers to deflect public criticism it is still a major problem for us and for the NHS. If only research could be funded&hellip;<span class="activity-read-more" id="activity-read-more-49363"><a href="https://www.myeloma.org.uk/forums/topic/daratumumab/#post-133086" rel="nofollow">[Read more]</a></span></p>
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				<title>louishenry replied to the topic New diagnosis in the forum Newcomers</title>
				<link>https://www.myeloma.org.uk/forums/topic/new-diagnosis/#post-132701</link>
				<pubDate>Mon, 27 Mar 2017 08:57:48 +0100</pubDate>

									<content:encoded><![CDATA[<p>When I was first diagnosed, nearly two and a half years ago now, I was in full panic mode at the unexpected diagnosis so I&#8217;ve no idea what the initial treatment was but there was something to bring down the calcium levels. There should be a specialist nurse at the hospital haematology who can talk all this through with you and your brother or if&hellip;<span class="activity-read-more" id="activity-read-more-49148"><a href="https://www.myeloma.org.uk/forums/topic/new-diagnosis/#post-132701" rel="nofollow">[Read more]</a></span></p>
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				<title>louishenry replied to the topic New diagnosis in the forum Newcomers</title>
				<link>https://www.myeloma.org.uk/forums/topic/new-diagnosis/#post-132697</link>
				<pubDate>Sun, 26 Mar 2017 13:20:52 +0100</pubDate>

									<content:encoded><![CDATA[<p>I&#8217;m surprised at this much delay. Time to pester and ask what&#8217;s happening I think. When I was diagnosed they wouldn&#8217;t even let me go home and started treatment straight away. The good news is that when treatment does start he will feel a lot better quite quickly.</p>
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				<title>louishenry replied to the topic What happens if SCT fails? in the forum Treatment</title>
				<link>https://www.myeloma.org.uk/forums/topic/what-happens-if-sct-fails/#post-132358</link>
				<pubDate>Sun, 19 Mar 2017 14:59:00 +0000</pubDate>

									<content:encoded><![CDATA[<p>To be more precise, they will give you lots of bags of platelets and if necessary​ more drugs to improve the engraftment process, after which your body, unless you are catastrophically unlucky, will start producing its own.</p>
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				<title>louishenry replied to the topic What happens if SCT fails? in the forum Treatment</title>
				<link>https://www.myeloma.org.uk/forums/topic/what-happens-if-sct-fails/#post-132356</link>
				<pubDate>Sun, 19 Mar 2017 14:03:34 +0000</pubDate>

									<content:encoded><![CDATA[<p>The answer, as always, is it all depends. Mine was successful but only for a year. Whatever happens you and your team will sit down and say, right, what next? Nowadays there are so many alternatives and combinations, even drugs not available in NICE guidelines are available through trials, each year you survive there are more treatments coming&hellip;<span class="activity-read-more" id="activity-read-more-49032"><a href="https://www.myeloma.org.uk/forums/topic/what-happens-if-sct-fails/#post-132356" rel="nofollow">[Read more]</a></span></p>
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				<title>louishenry replied to the topic How long once chemo stops? And how do you make the decision to stop? in the forum General</title>
				<link>https://www.myeloma.org.uk/forums/topic/how-long-once-chemo-stops-and-how-do-you-make-the-decision-to-stop/#post-132240</link>
				<pubDate>Sat, 11 Mar 2017 11:07:22 +0000</pubDate>

									<content:encoded><![CDATA[<p>That is such a hard decision. What we all want is the best, most effective treatment. At some point that is palliative care, pain relief. Personally I&#8217;m not there yet but it will come. The language of fighting and warriors doesn&#8217;t help as every time the myeloma comes back it seems like defeat and failure. It isn&#8217;t, it&#8217;s just what happens with this&hellip;<span class="activity-read-more" id="activity-read-more-48919"><a href="https://www.myeloma.org.uk/forums/topic/how-long-once-chemo-stops-and-how-do-you-make-the-decision-to-stop/#post-132240" rel="nofollow">[Read more]</a></span></p>
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				<title>louishenry replied to the topic Bump in the road in the forum Newcomers</title>
				<link>https://www.myeloma.org.uk/forums/topic/bump-in-the-road/#post-132155</link>
				<pubDate>Tue, 07 Mar 2017 20:03:19 +0000</pubDate>

									<content:encoded><![CDATA[<p>&lt;p style=&#8221;text-align: left;&#8221;&gt;This happened to me with CTD, very good for 4 cycles then the pp started going up again. I got moved on to VCD which did the trick, I had a stem cell transplant and a year of remission. I&#8217;m about to start treatment again, probably Velcade and Dex. The nurse today was encouraging me with all the new treatments coming&hellip;<span class="activity-read-more" id="activity-read-more-48833"><a href="https://www.myeloma.org.uk/forums/topic/bump-in-the-road/#post-132155" rel="nofollow">[Read more]</a></span></p>
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				<title>louishenry replied to the topic Remission in the forum Newcomers</title>
				<link>https://www.myeloma.org.uk/forums/topic/remission-2/#post-132140</link>
				<pubDate>Mon, 06 Mar 2017 17:03:28 +0000</pubDate>

									<content:encoded><![CDATA[<p>Hi Lynne, to give you a very unhelpful but probably accurate answer, myeloma is such an individual disease that anything from zero to six years or more is very possible. Certainly on average the remission after a stem cell transplant is longer than after just chemo, but there are many many exceptions. If your medical team don&#8217;t think a transplant&hellip;<span class="activity-read-more" id="activity-read-more-48812"><a href="https://www.myeloma.org.uk/forums/topic/remission-2/#post-132140" rel="nofollow">[Read more]</a></span></p>
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				<title>louishenry replied to the topic Hi I have Multiple Myeloma and am so scared in the forum Newcomers</title>
				<link>https://www.myeloma.org.uk/forums/topic/hi-i-have-multiple-myeloma-and-am-so-scared/#post-131836</link>
				<pubDate>Thu, 09 Feb 2017 20:16:11 +0000</pubDate>

									<content:encoded><![CDATA[<p>Hi Simon, if you find Facebook useful you might consider joining the UK Myeloma Support Group. It is good for shared experience and mutual support, thought this site is much better for information. My worry was that I would not be offered a SCT as my kidney function is not brilliant. It is not nice, but the unpleasant part only lasts a week or so&hellip;<span class="activity-read-more" id="activity-read-more-48496"><a href="https://www.myeloma.org.uk/forums/topic/hi-i-have-multiple-myeloma-and-am-so-scared/#post-131836" rel="nofollow">[Read more]</a></span></p>
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				<title>louishenry replied to the topic Transplant anxiety in the forum Newcomers</title>
				<link>https://www.myeloma.org.uk/forums/topic/transplant-anxiety/#post-131742</link>
				<pubDate>Wed, 01 Feb 2017 13:33:09 +0000</pubDate>

									<content:encoded><![CDATA[<p>Yes the SCT is horrible but only for a few days. You might be in for three weeks but it&#8217;s only a few days in the middle when you feel really rough.</p>
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				<title>louishenry replied to the topic Osteonecrosis in the forum Related conditions</title>
				<link>https://www.myeloma.org.uk/forums/topic/osteonecrosis/#post-131641</link>
				<pubDate>Tue, 24 Jan 2017 10:10:54 +0000</pubDate>

									<content:encoded><![CDATA[<p>I&#8217;m on lenalidomide maintenance, neutrophils are a bit low but I&#8217;ve not had many infections.</p>
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				<title>louishenry replied to the topic Osteonecrosis in the forum Related conditions</title>
				<link>https://www.myeloma.org.uk/forums/topic/osteonecrosis/#post-131640</link>
				<pubDate>Tue, 24 Jan 2017 10:08:46 +0000</pubDate>

									<content:encoded><![CDATA[<p>Hi Jan, I&#8217;ve been on Zometa for two years since diagnosis. It was stopped for a few months when I had dental work done and again when my kidneys were complaining. The exposed bit is by my bottom right back tooth, on the inside of the jaw. The max fax doctor started with just mouthwashes then decided to scrape off a bit. It was very quick, not&hellip;<span class="activity-read-more" id="activity-read-more-48289"><a href="https://www.myeloma.org.uk/forums/topic/osteonecrosis/#post-131640" rel="nofollow">[Read more]</a></span></p>
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				<title>louishenry replied to the topic Osteonecrosis in the forum Related conditions</title>
				<link>https://www.myeloma.org.uk/forums/topic/osteonecrosis/#post-131639</link>
				<pubDate>Tue, 24 Jan 2017 09:30:13 +0000</pubDate>

									<content:encoded><![CDATA[<p>Hi Adrian, I spent a week in St Mary&#8217;s two years ago when I was first diagnosed. I signed up for the Myeloma XI trial so most of my treatment is at Southampton under Dr Jenner. I&#8217;ve been very happy with how I&#8217;ve been treated at both hospitals. I hope your appointment with him goes well.</p>
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				<title>louishenry replied to the topic Osteonecrosis in the forum Related conditions</title>
				<link>https://www.myeloma.org.uk/forums/topic/osteonecrosis/#post-131633</link>
				<pubDate>Mon, 23 Jan 2017 17:27:22 +0000</pubDate>

									<content:encoded><![CDATA[<p>I was referred to maxillofacial by my dentist when she spotted exposed bone in my mouth. The maxillofacial lady said it&#8217;s almost certainly caused by the Zometa, but if I need it I should carry on having it and she would sort out any problems. She has now twice scraped away the exposed bone and it has healed over OK. I can phone her directly now, I&hellip;<span class="activity-read-more" id="activity-read-more-48274"><a href="https://www.myeloma.org.uk/forums/topic/osteonecrosis/#post-131633" rel="nofollow">[Read more]</a></span></p>
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				<title>louishenry replied to the topic An improvement to posts stats? in the forum Off topic</title>
				<link>https://www.myeloma.org.uk/forums/topic/an-improvement-to-posts-stats/#post-131411</link>
				<pubDate>Thu, 29 Dec 2016 18:19:19 +0000</pubDate>

									<content:encoded><![CDATA[<p>It seems like this forum is underused and the Facebook group is overused. We&#8217;ll see what happens with the health unlocked forum.</p>
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				<title>louishenry replied to the topic Velcade and what to expect. in the forum Side-effects</title>
				<link>https://www.myeloma.org.uk/forums/topic/velcade-and-what-to-expect/#post-131348</link>
				<pubDate>Mon, 19 Dec 2016 11:12:10 +0000</pubDate>

									<content:encoded><![CDATA[<p>I moved on to Velcade VCD from thalidomide CTD when the CTD stopped working and found it similar but better, more effective and with fewer side effects, though I still had some neuropathy.</p>
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				<title>louishenry replied to the topic New diagnosis and VTD side effects in the forum Side-effects</title>
				<link>https://www.myeloma.org.uk/forums/topic/new-diagnosis-and-vtd-side-effects/#post-130737</link>
				<pubDate>Sat, 19 Nov 2016 18:02:02 +0000</pubDate>

									<content:encoded><![CDATA[<p>This does sound worse than usual but if this is the last week of her first cycle she will be able to discuss it with her consultant. To begin with you get the double whammy of the effects of the disease plus the effects of the treatment. I found after two or three cycles I got much more used to the treatment, CTD for me, and began to feel the&hellip;<span class="activity-read-more" id="activity-read-more-47606"><a href="https://www.myeloma.org.uk/forums/topic/new-diagnosis-and-vtd-side-effects/#post-130737" rel="nofollow">[Read more]</a></span></p>
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				<title>louishenry replied to the topic Generic drugs in the forum General</title>
				<link>https://www.myeloma.org.uk/forums/topic/generic-drugs/#post-130460</link>
				<pubDate>Mon, 14 Nov 2016 21:05:17 +0000</pubDate>

									<content:encoded><![CDATA[<p>I&#8217;m trying very hard not to get on my soapbox and rant about this. The drugs market is an unholy mess. Yes, drugs are very expensive to develop, no the drug companies should not be charging tens of thousands of pounds years after they have covered their costs. Nice is doing an excellent job negotiating the best deals possible but that is no&hellip;<span class="activity-read-more" id="activity-read-more-47547"><a href="https://www.myeloma.org.uk/forums/topic/generic-drugs/#post-130460" rel="nofollow">[Read more]</a></span></p>
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				<title>louishenry replied to the topic IMMUNISATIONS post SCT - necessary? in the forum General</title>
				<link>https://www.myeloma.org.uk/forums/topic/immunisations-post-sct-necessary/#post-130458</link>
				<pubDate>Mon, 14 Nov 2016 20:56:20 +0000</pubDate>

									<content:encoded><![CDATA[<p>Hi Sonia. It does seem to vary from hospital to hospital. I&#8217;m coming up to a year after stem cell transplant and tomorrow will be going for my first baby jab. I had a flu jab a fortnight ago. This disease is so individual I don&#8217;t think there is ever one standard treatment so I would trust the advice of the consultant.</p>
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				<title>louishenry replied to the topic Hello and Intro in the forum Newcomers</title>
				<link>https://www.myeloma.org.uk/forums/topic/hello-and-intro/#post-130456</link>
				<pubDate>Mon, 14 Nov 2016 20:46:43 +0000</pubDate>

									<content:encoded><![CDATA[<p>Hi Gary, I know how disappointing it is when you have always had a healthy active lifestyle to get a disease like myeloma. Not just disappointing but traumatic and panic inducing as well. The good news is that new drugs like carfilzomib are coming along all the time so the outlook is improving all the time, and the fitter and more active you are&hellip;<span class="activity-read-more" id="activity-read-more-47543"><a href="https://www.myeloma.org.uk/forums/topic/hello-and-intro/#post-130456" rel="nofollow">[Read more]</a></span></p>
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				<title>louishenry replied to the topic Just Diagnosed in the forum Newcomers</title>
				<link>https://www.myeloma.org.uk/forums/topic/just-diagnosed-3/#post-129821</link>
				<pubDate>Sun, 02 Oct 2016 16:58:08 +0100</pubDate>

									<content:encoded><![CDATA[<p>Sorry you&#8217;ve had to find your way to this site, which is definitely the clearest and most informative place. I hope your appointment tomorrow goes well. If you can just stay laid back and in the moment you&#8217;ll cope well with the treatment. They will probably get the myeloma under control fairly quickly but bone damage is harder to deal with. I&#8217;m 64&hellip;<span class="activity-read-more" id="activity-read-more-47097"><a href="https://www.myeloma.org.uk/forums/topic/just-diagnosed-3/#post-129821" rel="nofollow">[Read more]</a></span></p>
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				<title>louishenry replied to the topic Velcade   -  decision time in the forum General</title>
				<link>https://www.myeloma.org.uk/forums/topic/velcade-decision-time/page/2/#post-129736</link>
				<pubDate>Sat, 24 Sep 2016 16:21:07 +0100</pubDate>

									<content:encoded><![CDATA[<p>My experience was similar to Rebecca&#8217;s. First week twiddling my thumbs wondering what all the fuss was about, second week horribly horrible, third week recovering. I was in an individual room throughout in Southampton.</p>
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				<title>louishenry replied to the topic SCT a right choice ??? in the forum Newcomers</title>
				<link>https://www.myeloma.org.uk/forums/topic/sct-a-right-choice/#post-129560</link>
				<pubDate>Fri, 16 Sep 2016 20:53:08 +0100</pubDate>

									<content:encoded><![CDATA[<p>Fitness is more important than age, if the doctors are offering SCT your mum is obviously fit enough to cope. I am in my mid sixties and had a sct 9 months ago and was up and about after a few weeks, more or less back to full fitness after a couple of months. Myeloma is so variable you can never be sure how effective treatment will be, but I&#8217;ve&hellip;<span class="activity-read-more" id="activity-read-more-46925"><a href="https://www.myeloma.org.uk/forums/topic/sct-a-right-choice/#post-129560" rel="nofollow">[Read more]</a></span></p>
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				<title>louishenry replied to the topic High paraprotines in the forum General</title>
				<link>https://www.myeloma.org.uk/forums/topic/high-paraprotines/#post-129361</link>
				<pubDate>Tue, 06 Sep 2016 12:58:33 +0100</pubDate>

									<content:encoded><![CDATA[<p>It means don&#8217;t panic, the doctors will find a new combination of drugs to get them down again. This happened to me. It means a longer period on chemo but I&#8217;m sure she will get to remission.</p>
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				<title>louishenry replied to the topic Zometa in the forum Treatment</title>
				<link>https://www.myeloma.org.uk/forums/topic/zometa-2/#post-129139</link>
				<pubDate>Tue, 09 Aug 2016 16:56:50 +0100</pubDate>

									<content:encoded><![CDATA[<p>I had a bit of exposed bone in my mouth. The maxillofacial doctor sorted it out by scraping back a bit of bone, then mouthwashes. It healed in time for my SCT last November, no problems since then. She said if the Zometa helps the myeloma keep having it and I&#8217;ll sort out any problems that arise. So I&#8217;m still having it every four weeks</p>
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				<title>louishenry replied to the topic Relapsed just as finishing cyle 6 of initital treatment! in the forum Newcomers</title>
				<link>https://www.myeloma.org.uk/forums/topic/relapsed-just-as-finishing-cyle-6-of-initital-treatment/#post-128818</link>
				<pubDate>Sat, 16 Jul 2016 16:33:33 +0100</pubDate>

									<content:encoded><![CDATA[<p>I was diagnosed 18 months ago, went on the Myeloma XI trial. 4 cycles of CTD worked well but on the 5th cycle paraproteins went up a bit and on the 6th cycle went up a lot, so after a few weeks off treatment I went on to Velcade (VCD) which worked much better. 6 months ago I had an auto SCT and am now in remission and virtually back to normal&hellip;<span class="activity-read-more" id="activity-read-more-46179"><a href="https://www.myeloma.org.uk/forums/topic/relapsed-just-as-finishing-cyle-6-of-initital-treatment/#post-128818" rel="nofollow">[Read more]</a></span></p>
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				<title>louishenry replied to the topic Hi, i&#039;m new to this site in the forum Newcomers</title>
				<link>https://www.myeloma.org.uk/forums/topic/hi-im-new-to-this-site/#post-128453</link>
				<pubDate>Thu, 16 Jun 2016 15:29:39 +0100</pubDate>

									<content:encoded><![CDATA[<p>Having myeloma is horrible so feeling sad scared and anxious is very understandable. Being a fairly uncommon cancer you will probably only meet other people with the disease at the hospital. If you do Facebook there is a UK Myeloma Support Group you could join. This site is clear and informative but Facebook is good for chat and mutual support. It&hellip;<span class="activity-read-more" id="activity-read-more-45871"><a href="https://www.myeloma.org.uk/forums/topic/hi-im-new-to-this-site/#post-128453" rel="nofollow">[Read more]</a></span></p>
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				<title>louishenry replied to the topic Hi, i&#039;m new to this site in the forum Newcomers</title>
				<link>https://www.myeloma.org.uk/forums/topic/hi-im-new-to-this-site/#post-128449</link>
				<pubDate>Thu, 16 Jun 2016 09:07:10 +0100</pubDate>

									<content:encoded><![CDATA[<p>I well remember the feeling of panic and trauma in the first few weeks after diagnosis but it&#8217;s amazing how soon we get used to it. There&#8217;s no cure but the treatment is effective and as it begins to work you will feel a bit calmer and more positive. This site is brilliant for reliable information. I was diagnosed 18 months ago but after 12 months&hellip;<span class="activity-read-more" id="activity-read-more-45853"><a href="https://www.myeloma.org.uk/forums/topic/hi-im-new-to-this-site/#post-128449" rel="nofollow">[Read more]</a></span></p>
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				<title>louishenry replied to the topic Yet another new member in the forum Newcomers</title>
				<link>https://www.myeloma.org.uk/forums/topic/yet-another-new-member/#post-128400</link>
				<pubDate>Thu, 09 Jun 2016 20:41:03 +0100</pubDate>

									<content:encoded><![CDATA[<p>Hi Geoff, I will certainly agree that Southampton are tops. I was diagnosed December 2014. More than 12 months of chemo and a stem cell transplant later I&#8217;m pretty well fit again so keep popping the pills, you&#8217;ll get to remission eventually, fingers crossed!</p>
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				<title>louishenry replied to the topic SCT to start soon in Southampton in the forum Treatment</title>
				<link>https://www.myeloma.org.uk/forums/topic/sct-to-start-soon-in-southampton/#post-126826</link>
				<pubDate>Sun, 07 Feb 2016 15:53:41 +0000</pubDate>

									<content:encoded><![CDATA[<p>&lt;p style=&#8221;text-align: left;&#8221;&gt;Hi Sonia, I had my stem cell harvest and transplant at Southampton a few months ago and have got nothing but praise and thanks for all the staff there. Harvest was tedious but not painful at all. The sickness and diarrhoea and sore mouth are no fun when you have the transplant but in my case only lasted a little over a&hellip;<span class="activity-read-more" id="activity-read-more-43047"><a href="https://www.myeloma.org.uk/forums/topic/sct-to-start-soon-in-southampton/#post-126826" rel="nofollow">[Read more]</a></span></p>
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				<title>louishenry replied to the topic SCT very soon in the forum Treatment</title>
				<link>https://www.myeloma.org.uk/forums/topic/sct-very-soon/page/4/#post-125378</link>
				<pubDate>Tue, 15 Dec 2015 11:44:43 +0000</pubDate>

									<content:encoded><![CDATA[<p>Thanks for that Rebecca. I&#8217;m already more active than I expected, walking and cycling, but still feeling a bit queasy. Food tastes OK but drinks are most peculiar tasting. The only drinks that taste anything like normal are Coke, well cheap supermarket cola, and white wine! I&#8217;m all in favour of treats and indulgences. There&#8217;s a very nice little&hellip;<span class="activity-read-more" id="activity-read-more-42210"><a href="https://www.myeloma.org.uk/forums/topic/sct-very-soon/page/4/#post-125378" rel="nofollow">[Read more]</a></span></p>
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				<title>louishenry replied to the topic SCT very soon in the forum Treatment</title>
				<link>https://www.myeloma.org.uk/forums/topic/sct-very-soon/page/4/#post-125337</link>
				<pubDate>Thu, 10 Dec 2015 08:07:39 +0000</pubDate>

									<content:encoded><![CDATA[<p>OK Graeme, you win the race. I&#8217;ll be home tomorrow, greatly looking forward to it. Under 3 weeks so I can&#8217;t complain.</p>
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				<title>louishenry replied to the topic SCT very soon in the forum Treatment</title>
				<link>https://www.myeloma.org.uk/forums/topic/sct-very-soon/page/4/#post-125326</link>
				<pubDate>Tue, 08 Dec 2015 18:47:49 +0000</pubDate>

									<content:encoded><![CDATA[<p>Well done Graeme and hear hear on the thanks.</p>
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				<title>louishenry replied to the topic SCT very soon in the forum Treatment</title>
				<link>https://www.myeloma.org.uk/forums/topic/sct-very-soon/page/4/#post-125322</link>
				<pubDate>Mon, 07 Dec 2015 19:18:29 +0000</pubDate>

									<content:encoded><![CDATA[<p>Thanks for that Mike, I&#8217;m now SCT+12 and they are considering throwing me out on Friday, SCT+16, infections permitting. I&#8217;ve always been skinny, about 65 kg. I went down to 59.8, now back up to 63. Not so boring now I&#8217;m allowed out on the ward as long as I wear a mask. Graeme, I hope you&#8217;re also now on the way up</p>
<p>Louis</p>
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				<title>louishenry replied to the topic SCT very soon in the forum Treatment</title>
				<link>https://www.myeloma.org.uk/forums/topic/sct-very-soon/page/3/#post-125319</link>
				<pubDate>Mon, 07 Dec 2015 13:29:42 +0000</pubDate>

									<content:encoded><![CDATA[<p>Yay! Neutrophils up, throat not so sore, still on drip hydration and antibiotics but I think I&#8217;m winning at last.</p>
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				<title>louishenry replied to the topic SCT very soon in the forum Treatment</title>
				<link>https://www.myeloma.org.uk/forums/topic/sct-very-soon/page/3/#post-125318</link>
				<pubDate>Sun, 06 Dec 2015 19:22:16 +0000</pubDate>

									<content:encoded><![CDATA[<p>Andrew &#8211; that&#8217;s very encouraging, here&#8217;s hoping!</p>
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				<title>louishenry replied to the topic SCT very soon in the forum Treatment</title>
				<link>https://www.myeloma.org.uk/forums/topic/sct-very-soon/page/3/#post-125317</link>
				<pubDate>Sun, 06 Dec 2015 19:20:11 +0000</pubDate>

									<content:encoded><![CDATA[<p>Hi Graeme (Dino)</p>
<p>Sorry you&#8217;ve been having such a rough time. I had platelets yesterday and 2 units of blood today so hopefully I&#8217;ve avoided that crash. I think I&#8217;ve now tried the complete repertoire of mouth remedies: ice lollies, soluble paracetamol, squirty in your mouth stuff that tastes of toothpaste, oral morphine, plus all the mouthwashes.&hellip;<span class="activity-read-more" id="activity-read-more-42150"><a href="https://www.myeloma.org.uk/forums/topic/sct-very-soon/page/3/#post-125317" rel="nofollow">[Read more]</a></span></p>
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				<title>louishenry replied to the topic SCT very soon in the forum Treatment</title>
				<link>https://www.myeloma.org.uk/forums/topic/sct-very-soon/page/3/#post-125313</link>
				<pubDate>Sat, 05 Dec 2015 16:37:52 +0000</pubDate>

									<content:encoded><![CDATA[<p>Yep, been using Skype though when you&#8217;re dozy a 10 minute call is about right. I am glad the ward has WiFi. We are all so variable and individual that one person&#8217;s experience will always be atypical but I always like to hear other people&#8217;s experiences so I hope other people find this of interest.</p>
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				<title>louishenry replied to the topic SCT very soon in the forum Treatment</title>
				<link>https://www.myeloma.org.uk/forums/topic/sct-very-soon/page/3/#post-125311</link>
				<pubDate>Fri, 04 Dec 2015 15:12:10 +0000</pubDate>

									<content:encoded><![CDATA[<p>Bored. SCT+9, just spoken to the doctor, he says it shouldn&#8217;t feel any worse now but not much will change until +14 . Little temperature blips probably due to the mucositis but no big problems. You OK Dino?</p>
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				<title>louishenry replied to the topic SCT very soon in the forum Treatment</title>
				<link>https://www.myeloma.org.uk/forums/topic/sct-very-soon/page/3/#post-125275</link>
				<pubDate>Wed, 02 Dec 2015 16:34:14 +0000</pubDate>

									<content:encoded><![CDATA[<p>Vivid dreams: last night I dreamt I was eating my car. That&#8217;s what my mouth feels like.</p>
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				<title>louishenry replied to the topic SCT very soon in the forum Treatment</title>
				<link>https://www.myeloma.org.uk/forums/topic/sct-very-soon/page/3/#post-125274</link>
				<pubDate>Wed, 02 Dec 2015 16:30:59 +0000</pubDate>

									<content:encoded><![CDATA[<p>Hi Dino. Surprisingly I&#8217;m much better with food than drink. Half a glass of water this morning came straight back up but breakfast and lunch were OK. So they are putting in some hydration via the line. Otherwise pretty good, got dressed this morning after a few pyjama days. My wife&#8217;s problem is high winds stopping the high speed ferries from the&hellip;<span class="activity-read-more" id="activity-read-more-42089"><a href="https://www.myeloma.org.uk/forums/topic/sct-very-soon/page/3/#post-125274" rel="nofollow">[Read more]</a></span></p>
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