Myeloma Forum | loulou | Activity https://forum.myeloma.org.uk/members/loulou/activity/ Activity feed for loulou. Sat, 02 May 2026 08:02:40 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 a7bc420644b7bc87c3404999443bdaa4 loulou replied to the topic "High Grade MGUS / MM" in the forum Newcomers https://www.myeloma.org.uk/forums/topic/high-grade-mgus-mm/#post-130447 Sat, 12 Nov 2016 15:12:46 +0000 Hi everyone,

Thanks for all the information you have provided.  I have a skeletal survey next week and will spend some time getting to grips with my blood tests…..I am slowly getting my head around it and thank you all for your advice – will report back soon xx

 

]]> eb4be0e8e52bd65a27f468a4c0706ece loulou started the topic "High Grade MGUS / MM" in the forum Newcomers https://www.myeloma.org.uk/forums/topic/high-grade-mgus-mm/ Wed, 09 Nov 2016 17:54:09 +0000 Hello, I am new.

Thankyou so far to the Debbie on the helpline who has helped me x

About me: 18 years MGUS (age 45). The paraprotien mainly so far affects my Corneas and have previously had thalidomide / dexamethasone to reduce PP level and stop it affecting my sight.  PP level went down and is slowly creeping up but has never been excessively…[Read more]

]]> be7710d7f0457ac1b16698e04ccd0b9e loulou became a registered member https://forum.myeloma.org.uk/activity/p/47500/ Wed, 09 Nov 2016 17:34:06 +0000 0