Hi Susan, how are you? Did you get a follow up with your hematologist? Xx

Thanks Susan, I’m in a much better place now but typically now have this to deal with. My husband and I went to a fertility specialist and got a thorough check and everything was ok. Only thing that showed was low progesterone and I’ve been prescribed pessaries as a result. I was extremely stressed out last year and I believe the miscarriages were…[Read more]

Should also say that I’m from Ireland so maybe things are done a little differently here.

Hi,

My urine has been checked but the results aren’t back yet. The only result I have from that is the normal protein level is very low, which is good. Could be another few weeks for the urine electrophoresis as there’s a backlog apparently. Had the 24 hr collection one…vile. Also had full skeletal x rays, all normal thank God.

I had two…[Read more]

Forgot to say, I haven’t been formally diagnosed yet. MGUS has been mentioned as the trace paraprotein is still there. The hematologist has sent a letter to GP to repeat test in November.

Hi,

It’s horrible to feel like you’ve to chase up on these medical professionals. It seems, from what I’ve read and my own experience, that many GPs have never even heard of MGUS.

As for me, I’m 37 and I had bloods taken in January. One of the thyroid tests had a low background activity reading which can suggest low immunity so it was reflexed…[Read more]

Hi,

How frustrating for you! The lack of communication is astounding. Did you get any results back yet? The waiting is so horrible.

My follow up tests are in November, had a trace reading in January and May.

Hope you’re ok.

Best wishes,

Lucy xxx