Myeloma Forum | EricParkin | Activity https://forum.myeloma.org.uk/members/lyneric/activity/ Activity feed for EricParkin. Thu, 09 Apr 2026 05:38:49 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 1db02ccfa74db3b6459c05999decad32 EricParkin replied to the topic Loose bowels & occassional dizzy spells in the forum Side-effects http://www.myeloma.org.uk/forums/topic/loose-bowels-occassional-dizzy-spells/#post-125723 Wed, 13 Jan 2016 15:09:53 +0000 Thank you for your replies. I forgot to mention I have been prescribe Loperamide to help control my bowel problem. This helps but can’t stop the problem. Ellen I have already been seen by the gastro clinic & had a colonoscopy. The only problems the found were diverticulitus & IBS. I was told both these conditions were slight. But I will ask about…[Read more]

]]> f26b67493160d47a6527d6dd9dfb7c62 EricParkin started the topic Loose bowels & occassional dizzy spells in the forum Side-effects http://www.myeloma.org.uk/forums/topic/loose-bowels-occassional-dizzy-spells/ Wed, 06 Jan 2016 13:39:24 +0000 I was diagnosed in January 2012. Had SCT September of that year. Since then I have been on maintenance as part of the Myeloma X1 trial. I’m on Revlimid 10mg, 21 out of 28 days. The main side effects have been tiredness & fatigue, this is common with Myeloma, so I just pace myself. This past year though I have been having loose bowels. A…[Read more]

]]> 824269e0bdd04cee90ba0cfc89ad94bb EricParkin replied to the topic revlimid and vorinostat in the forum Side-effects http://www.myeloma.org.uk/forums/topic/revlimid-and-vorinostat/page/2/#post-104986 Tue, 08 Jan 2013 16:17:59 +0000 I have started my maintenance, on the Myeloma X1 trial, this week. So it's to early to say what will happen. I am only taking Revlimid. When I took this as part of my initial treatment I ended up with DVT in my right leg. After my SCT I was weaned of Clexane & put on Warferin, so far everything is ok. Since my SCT in august I have continued to…[Read more]

]]> 3a9172409c3cc0c0bb815f1d1fb0e1d2 EricParkin replied to the topic Itchy Scalp/face/neck in the forum Side-effects http://www.myeloma.org.uk/forums/topic/itchy-scalpfaceneck#post-104266 Sat, 08 Dec 2012 14:28:24 +0000 Hi everyone. I'm just over 3mths post SCT & don't have anymore itching. When I did I was told by a friend, whose daughter had similar symtems, to try Pure Aloe Vera gel. This did the trick, calming the itching until it stopped altogether. Got mine from Holland & Barrett, on offer, it's normally between £6 – £7. Hope this helps.

]]> b8408a22104a2b668beba110bdaac1ec EricParkin replied to the topic New and need advice on Myeloma XI in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-and-need-advice-on-myeloma-xi/page/3/#post-85263 Thu, 15 Nov 2012 11:45:23 +0000 Hi Alison. Not been randomised yet, back at hospital in 3wks for Zometa. Will make a decision then. I'm good after SCT, that's why I'm concerned about side effects making me feel worse. But I suppose any problems I can always drop out of trial. I'm also on Warfarin because of a clot I developed whist on RCD.

Hi Eve. About your trips abroad.…[Read more]

]]> 47c94d5d693f0988fb49ad6d4ed152e0 EricParkin replied to the topic New and need advice on Myeloma XI in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-and-need-advice-on-myeloma-xi/page/3/#post-85259 Wed, 14 Nov 2012 12:32:34 +0000 Thanks Eve, trust me to do it wrong.:'-( My wife & I are just a bit worried, because of the side effects, that I may feel worse than I do at present. But I understand if I stay on the trial I will have access to the latest drugs & be monitored closely. Eric

]]> f33a7e293276920b00dc3790069ff592 EricParkin replied to the topic New and need advice on Myeloma XI in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-and-need-advice-on-myeloma-xi/page/2/#post-85242 Tue, 13 Nov 2012 14:34:12 +0000 Hi Adam. I was diagnosed in Jan 2012. Went on the RCD trial like yourself. After 5 cycles was refered for SCT. Had this end of Aug. All went well and I'm in remission & now feeling very good. Now the dilemma is do I stay on the trial. My wife & I are worried that I may have side effects that make me feel worse as I am feeling so good at the…[Read more]

]]>