Lynn16

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  • #152324

    lynn16
    Participant

    Hello
    I’m also fairly new to this though further on than you. I’ve got through the 16 weeks of chemo and am now waiting for the stem cell transplant. My advice on the latter would be to just engage with the information on the transplant as and when you feel you can. The literature sent out is very scary but once I talked to people who have been through it I got a very different picture. There is lots of experience on this forum too.

    On travel and activities during chemo – well I think you need to take care with regard to infection as you’ll be much more vulnerable. If you catch something it will take much longer than normal to fight it. I managed to grab a few days away in the UK during my chemo but such is the weekly routine of blood tests and treatment it’s tricky. However after the first month or two I only needed to get a blood test once a month rather than every week so that makes things a bit easier. The issue with travel overseas is a) insurance and b) potential of infection from travel I guess. Ask your doctor. I know some people with myeloma who have travelled overseas once they have been through all the treatment and are in remission but not before.

    Hope this helps. And Good luck!
    Lynn

    #152169

    lynn16
    Participant

    Hang in there! I was diagnosed in November and have just completed 4 times 4 week cycles of chemo and am now preparing for the stem cell transplant. As soon as the chemo started I began to feel better and the drugs are very well tolerated. I still get some pains around my ribs but nothing like what I was experiencing before diagnosis. The treatment is a long haul but do-able. I was told to take one day at a time and listen to your body. Good luck!

    #152035

    lynn16
    Participant

    Thank you so much Rosary and Rabbit for your responses and helpful advice. I’m about to be thrown into the maelstrom of meetings and assessments for the stem cell transplant – wish me luck!

Viewing 3 posts - 1 through 3 (of 3 total)