[magicmomentsParticipant]

Very sad to report that hubby lost his short but courageous fight against Myeloma almost 3 weeks ago. His last blood tests showed free light chains at over 24,000 !

Hubby passed away very peacefully at home cared for by his loved ones. His funeral was a lovely personal celebration of his life.

Donations from the funeral will be made to myeloma UK shortly to help in finding a cure for this disease.

My heart is breaking with his loss but my spirit is not I won’t let this disease destroy my life too x

[magicmomentsParticipant]

 

 

• This reply was modified 8 years, 3 months ago by  magicmoments.

[magicmomentsParticipant]

Hi Karen

My hubby had CDT and became quite suddenly became terribly depressed after cycle 2 after lots of reading we realised it was more than likely the dexamethasone (in some centres in america they prescribe antedepressants as standard) saw GP and he was prescribed sertraline an antidepressant also accessed some talking therapies both have worked well. I think we often focus on the physical aspect of cancer focusing on the treatment and beating the disease that we forget to address the psychological effects and needs which are just as important.

Good luck

Some hospices have day units where he can aces complementary therapies and talking therapies especially for patients with cancer as they are really different to those with normal depression.

 

[magicmomentsParticipant]

Hi

Sorry I have not replied to you till now it has been a very emotional time.

Following discharge from hospital hubby had blood tests at GP eGFR an amazing 89! Yippee. We all very pleased in the kidney function recovery. However the following week his kidney’s started to nose dive and 10 days after those blood results his EGFR was 16 just as he had started his 2nd cycle of Velcade. He eas admitted to hospital and transfered to a regional kidney unit thankfully. Kidneys continued in decline until last week he started dialysis as they failed completely. We have been told he has relapsed again and free light chains after their amazing reduction from 5000 down to 49! In the space of less than 3 weeks gone up to 3200…. therefore relapse number 2.

Haematologist has said his myeloma is obviously very aggressive and has commenced on Revlimid. Although we are hoping for a remission we know our chances are slim as he relapsed only 4 weeks after his 1st relapse.

Hubby is still in hospital but hoping for home soon only barrier is waiting regular dialysis slot locally oh and the spells of feeling very cold fir a couple of hours  then spiking a temperature!

Devastated is an understatement especially as this we believe is his last treatment option available at present.  🙁

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