Myeloma Forum | Majic30 | Activity https://forum.myeloma.org.uk/members/majic30/activity/ Activity feed for Majic30. Mon, 20 Apr 2026 08:04:04 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 5242a6561a26e7d68cb092172603980e Majic30 replied to the topic Heartbroken that he's gone in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/heartbroken-that-hes-gone/#post-121252 Thu, 12 Mar 2015 01:16:39 +0000 I too lost my best friend my husband in nov 2014.  He was 46 no age. Diagnosed in jan 2014 and all set for his sct, and out of knowhere and with no prior warnings he was taken …….. My life has been completly shattered i feel numb and helpless. We have 3 children aged 9,15 and 18 … My son is in a bad place very angry and the youngest girl…[Read more]

]]> 1c11d9e016e0668cb78f67bdd60acad0 Majic30 replied to the topic Lenolidimide or Dt-pace?? in the forum Treatment http://www.myeloma.org.uk/forums/topic/lenolidimide-or-dt-pace/#post-119768 Mon, 01 Dec 2014 07:54:58 +0000 Hi,

 

my husband passed away  last week. I was at his side, this happened so quick. His myelma was aggresive and we couldnt seem to gain control of it.. I wish each and everyone on this journey hope and strength.  I will contnue to support myeloma  and hope one day a cure can be found xxxxx

 

 

 

]]> fa3fa81d52f82f955a5f7c664a474c3c Majic30 replied to the topic Lenolidimide or Dt-pace?? in the forum Treatment http://www.myeloma.org.uk/forums/topic/lenolidimide-or-dt-pace/#post-119110 Mon, 27 Oct 2014 06:00:37 +0000 Hi all,

 

Hubby has discussed options with specialist- and agreed to stay on lenolidimide for 2wks then hv pp checked mid cycle! The dose is only at 15 not 25 so hopefully even with a reduced dose it will still have an effect.

if this doesnt go his way then he will unfortunatly have to go through dt-pace.

He hasnt had very good hospital…[Read more]

]]> b01d4f3d8040938d71ac566fd452f294 Majic30 replied to the topic Lenolidimide or Dt-pace?? in the forum Treatment http://www.myeloma.org.uk/forums/topic/lenolidimide-or-dt-pace/#post-118906 Sun, 19 Oct 2014 20:49:38 +0100 Thank you everyone, he still doesnt know what to do, like you say it must be his decision, we have devised a list of questions to be answered……. Maybe that may help,, we  have hosp apt for platlets tm and see specialist after. I personally feel the whole hospital experience  has left hubby  with little strength. Maybe  if we could bide a few…[Read more]

]]> 98ab0c76772eb6bac3e936cae43204cd Majic30 replied to the topic My story to Date in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-story-to-date-by-christaylor/page/2/#post-118905 Sun, 19 Oct 2014 20:28:16 +0100 Hi chris,

My husband has mm diagnosed january this year….. The journey has been a rollercoaster of emotions. We started on ctd he had stem cells harvested…pp started rising so treatment swapped. This site is great, lovely people  giving their stories and lending a lstening ear ….. Just what you need sometimes x

]]> 536ed822fd76884091bf825b8aef2ac7 Majic30 started the topic Lenolidimide or Dt-pace?? in the forum Treatment http://www.myeloma.org.uk/forums/topic/lenolidimide-or-dt-pace/ Sat, 18 Oct 2014 09:18:37 +0100 My husband after lots of thinking went on to lenolidimide last month instead of dt-pace…….. After 3 days in he became poorly and ended up in hosp with pneomnia and spent 12 days beng given: blood,platlets antibiotics etc !!

we think this was just bad luck not due to new med, however now hes home mobility poor, he seems weaker yet we saw…[Read more]

]]> 65c0d52c3d61532a5f13f8fe7685d0c7 Majic30 replied to the topic Dt-pace in the forum Treatment http://www.myeloma.org.uk/forums/topic/dt-pace-2/#post-117772 Thu, 28 Aug 2014 22:13:18 +0100 Where would i find  the blog please

 

thanks

]]> 3f5187414058c3c7386e458437142000 Majic30 replied to the topic Dt-pace in the forum Treatment http://www.myeloma.org.uk/forums/topic/dt-pace-2/#post-117665 Sun, 24 Aug 2014 00:41:45 +0100 Thank you for the replies:

 

we dont want to swap our consultant at all….. Its just sometimes we see different and get a completly different view on things

alot of the problem from our perspective is TIME ….. There never seems enough to explain things and the reasoning behind them . We know because hubby is only 46 he fits criteria for DT…[Read more]

]]> 09e4f060a52d07c96ee26472321c8de9 Majic30 started the topic Dt-pace in the forum Treatment http://www.myeloma.org.uk/forums/topic/dt-pace-2/ Thu, 21 Aug 2014 19:32:35 +0100 Had CTD 4 cycles, pp down to 1.7 then had harvest. Numbers crept up after having 2 boosters prior to harvesting !!!! Although told no connection! Put on VD numbers gone from 20-27 now trying VCD as a one off but have been pre warned that DT -Pace is likely the next step.

 

having read up on everything we don’t want to go down this route yet…[Read more]

]]> 5195642a8b36a3dba148505374e2524c Majic30 replied to the topic Newcomer just diagnosed with multiple myeloma. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/newcomer-just-diagnosed-with-multiple-myeloma/#post-117406 Mon, 04 Aug 2014 07:32:23 +0100 Hi bryn,

 

My husband is 45 diagnosed early this year with mm. He had been having back pain until one day he sneezed and i found him collapsed on the floor unable to move. We discovered soon after he had spinal chord compression caused by a tumour on his spine.this was what was causing his back to spasm.

5 days radio and with help of a zimmer…[Read more]

]]> 017fd91e4f6ce7549f4286c333441028 Majic30 replied to the topic Sct date in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-date/#post-116134 Sun, 22 Jun 2014 08:42:40 +0100 Hi all,

 

things  are not looking promising with sct !!! Husband had check up last thurs asked what bloods were from  june 2nd when he was last in brum…… They were 8.3 !! The previous one was 2.8 !!!!!! Bearing in mind he was due in at qe ths weds. Hes annoyed and really frustrated as no one picked this up in 3 weeks, if he hadnt of asked i…[Read more]

]]> 6235620ef60f06c2c0f688aa57d60068 majic30 changed their profile picture https://forum.myeloma.org.uk/activity/p/2603/ Mon, 02 Jun 2014 22:43:54 +0100 0 cff2273fca821163d2887843d168b139 majic30 changed their profile picture https://forum.myeloma.org.uk/activity/p/2602/ Mon, 02 Jun 2014 22:43:02 +0100 0 748d5c5123f3dd918c9c35d35800f26b Majic30 started the topic Sct date in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-date/ Mon, 02 Jun 2014 17:22:43 +0100 Just had the date of 25th june for sct, husband having his back cemented beforehand which has pleased him!   It seems to all be comming together quickly now for him. Lets hope everything goes to plan and that  he doesnt have too many side effects of treatment. Is anyone else due at QE on this same date at all??? We are looking to attend the m…[Read more]

]]> 6dffba10790eae381b471f61fcfd5031 Majic30 replied to the topic 10 years and Counting ...... Nearly !!! in the forum Under 50s http://www.myeloma.org.uk/forums/topic/10-years-and-counting-nearly/#post-115667 Fri, 30 May 2014 18:19:29 +0100 Hi,

 

hope you dont mind me asking Richard, how come you havent used your own stem cells ? My husband has a brother not tested at present. And we got the impression it was better to use your own stem cells……. We have done so much reading that we still really dont understand which is the right direction we should be going in. We have good…[Read more]

]]> 721e09c6304e4bb749b6de30e5223718 Majic30 started the topic Harvest info in the forum General http://www.myeloma.org.uk/forums/topic/harvest-info/ Sat, 10 May 2014 08:56:25 +0100 Hi, just a couple of questions,,, my husband having blood harvested on monday. Could anyone tell me  will he be allowed anyone with him during the procedure? My daughter wants to be with him help with the boredom? Ive also got to find out if transport will allow her to accompany him. I cant get in touch with transport to ask,i know she would go…[Read more]

]]> bf5b1e8f297e9067d351e0e6bb49e26a Majic30 started the topic Info prior to sct in the forum General http://www.myeloma.org.uk/forums/topic/info-prior-to-sct/ Sun, 02 Mar 2014 14:16:18 +0000 Just wondering if para proteins are going down nicely, say 13 to 5 in first cycle and then to say 0 by fourth…….. Why would HDT be necessary of chemo…….. Something that has been explained but I still don’t get??? It seems to defeat the whole cycles therapy doesn’t it ????  Husband doing well 3rd cycle ….. Think sct will be planned about…[Read more]

]]> 1c602c1f3108df8a9f657f0ddee40dfb Majic30 replied to the topic Myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/myeloma-2/#post-113281 Mon, 24 Feb 2014 22:11:07 +0000 Thanks Mavis and everyone else… Meeting went ok came away much clearer and hv read through the sct booklet tonight. its a lot to take in ATM but once we know how things are working in the cycles we will be faced with where to go next x

]]> 05ca6711df1ed0799a4a6627b03b4699 Majic30 started the topic Myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/myeloma-2/ Fri, 21 Feb 2014 17:30:42 +0000 My husband recently diagnosed with 10% he had spinal cord compression caused by tumour. Given radiotherapy to reduce this. Fortunately he’s managed to mobilise a little with stick and morphine.however his spine showed disease and this has been diagnosed as symtomatic myeloma. He’s 45 not sure what to make of it all so far but we are aware of the…[Read more]

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