Hi. I had a collapsed vertebrae T7 and I ended up having a Kyphoplasty operation. The minute I came round from the operation it was instant relief. It was definitely the best thing to do as 3 weeks later I had a stem cell transplant, without the operation I don’t think I could have done the SCT. It’s worth considering – good luck

Hi Everyone and thank you so much for replying… Things are certainly sent to try us!!
I have already posted in another forum the following:
My consultant paid me his daily visit on Thursday last week and advised me that I would need to have a hard think about which way I would like to go for the future… He could offer me a double stem cell tra…[Read more]

Hi Everyone.. Wow what a journey!!! I went to see the consultant at the Christie Clinic, by the way he is amazing – Dr Adrian Bloor – he saved my life – Twice! I was admitted on 29th `january as an emergency I had Kidney failure and the Myeloma was so aggressive. The doctor said it was wall to wall inside my body but he didn’t think my body…[Read more]

Hi Carol
Please try not to worry I don’t believe I was ever in remission. I suffered side effect from the start and I told my consultant last week about this as I never felt well. Also I have no faith in him whatsoever this is the main reason for me going to the Christie centre. I just hope & pray that this time around they get it right. Good luck…[Read more]

Hi Carol

I had iced lollies and they seemed to work for me, good luck withheld transplant, I had my first on in May 2013 and in November 2013 was told I was in remission. On Monday I was told the cancer was back so remission was only 7 weeks, looks like I have to do it all agains
Anyway, try the iced lollies and as I said before Good Luck ❌❤️❌

Hi Everyone & thank you so much for taking the time to reply.
I was at the hospital today & had a bone marrow extraction (owwww) they let my sister come in with me which definitely helped me. I go back tomorrow morning for a skeletal X-Ray & I have received an appointment at the Christie Centre in Manchester. Just hoping that whatever I choose…[Read more]

Hi Sims and thanks for the reply. I think is is definitely something I can mention to my specialist, I am seeing him on Tuesday and I think any input is a positive thing.

Good luck & take care

Mandy x

Hi Andy

Thank you so much for your reply 🙂

I am now seeing a Nuerologist on Tuesday so I will mention to him about bone pain possibly being related to the Stem Cell production.

Its a little depressing to think I may have to live like this if it is damage caused by the treatment, I don’t have much quality of life and I am only just 50. My…[Read more]

Hi Mothas

Unfortunately I do not had a good view of the Mersey. But the rooms with the view are half the size of mine so I decided I would much sooner have the space.. 🙁 SHAME

MANDY X

Good Evening everyone

Well I will have been in for a week tomorrow and to be honest I don't know where the time has gone.. I had my SCT on Thursday and so far – so good!! Couldn't feel better if I tried. Its a real weird feeling laying/sitting here waiting to feel poorly.. when you just feel good.
Sorry I have not much to tell but it really…[Read more]

Thanks Tom.. I have been using the mouthwash also like its going out of fashion because mouth ulcers is something I have always suffered from and that scares me hence I also use the mouthwash and the Nystatin. Right nurse has give me a sleeping tablet as I haven't had much sleep the past 2 nights.. good night everyone
Mandy x

I am eating a lot but mostly all of the wrong things – I have developed a terrible sweet tooth – got to stop it I dont want to gain the weight… I will keep you posted about the x-ray – fingers crossed I am right and the doctor is wrong. hehehe, Mandy x

Thanks Tony.. thats very reassuring – about the weather at least.. haha. I love the outdoors and have such a happy social and family life I am not going to let anything take that away from me and I am going to be a Nanny in October so thats something worth fighting for 🙂 Its also my 50th birthday in October so that 2 good things to get better…[Read more]

Hi Gill

I was diagnosed last October, I am in hospital now having had my SCT today. I was on the clinical trials prior to this and I must confess the side effects I suffered were really rough. My feelings are what choices do I have so after talking to myself, reading other peoples journeys I decided I didn't really have any other choice. I…[Read more]

Hi Megan and Tom and anyone else that is following me x

Thanks for asking – yes I had my second stem cells put in today and everything was fine, they bought a portable x-ray machine to my room to x-ray my abdomen to check if I have a blood clot as my ankles and legs are still very swollen – I don't think of myself as a medical person whatsoever…[Read more]