Myeloma Forum | MANDY PHILLIPS | Activity https://forum.myeloma.org.uk/members/mandyphillips41/activity/ Activity feed for MANDY PHILLIPS. Thu, 09 Apr 2026 02:11:20 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 372170a68b17696c24d83bd80a63648e MANDY PHILLIPS replied to the topic Collapsed vertebrae in the forum Related conditions http://www.myeloma.org.uk/forums/topic/collapsed-vertebrae/#post-114810 Fri, 02 May 2014 11:15:19 +0100 Hi. I had a collapsed vertebrae T7 and I ended up having a Kyphoplasty operation. The minute I came round from the operation it was instant relief. It was definitely the best thing to do as 3 weeks later I had a stem cell transplant, without the operation I don’t think I could have done the SCT. It’s worth considering – good luck

]]> 735242688fe33d05c6b36f1b2f560d08 MANDY PHILLIPS replied to the topic My Remission is over!! in the forum General http://www.myeloma.org.uk/forums/topic/my-remission-is-over/page/2/#post-114302 Sun, 06 Apr 2014 18:09:22 +0100 Hi Everyone and thank you so much for replying… Things are certainly sent to try us!!
I have already posted in another forum the following:
My consultant paid me his daily visit on Thursday last week and advised me that I would need to have a hard think about which way I would like to go for the future… He could offer me a double stem cell tra…[Read more]

]]> 69bf788506796e92bc58fae30ca000df MANDY PHILLIPS started the topic Decisions - To have a transplant or not!! in the forum Treatment http://www.myeloma.org.uk/forums/topic/decisions-to-have-a-transplant-or-not/ Thu, 03 Apr 2014 19:45:21 +0100 Hi All

Just had a long conversation with my consultant. My myeloma is very aggressive and even after cycles of chemotherapy it is always there waiting to pounce. We discussed my options today (he is always very honest & straight with me) basically I can have a double transplant – I have my own stem cells, then course of strong chemo, then a…[Read more]

]]> 16305738117acdfc0639a6969c7ff619 MANDY PHILLIPS replied to the topic My Remission is over!! in the forum General http://www.myeloma.org.uk/forums/topic/my-remission-is-over/#post-113984 Tue, 25 Mar 2014 14:14:01 +0000 Hi Everyone.. Wow what a journey!!! I went to see the consultant at the Christie Clinic, by the way he is amazing – Dr Adrian Bloor – he saved my life – Twice! I was admitted on 29th `january as an emergency I had Kidney failure and the Myeloma was so aggressive. The doctor said it was wall to wall inside my body but he didn’t think my body…[Read more]

]]> 4912b354e570c29feab2711788790e8b MANDYPHILLIPS replied to the topic Mouth sores...to ice or not to ice that is the question. in the forum Side-effects http://www.myeloma.org.uk/forums/topic/mouth-sores-to-ice-or-not-to-ice-that-is-the-question/#post-112204 Fri, 24 Jan 2014 21:03:05 +0000 Hi Carol
Please try not to worry I don’t believe I was ever in remission. I suffered side effect from the start and I told my consultant last week about this as I never felt well. Also I have no faith in him whatsoever this is the main reason for me going to the Christie centre. I just hope & pray that this time around they get it right. Good luck…[Read more]

]]> c3dbb7d71922addae45facacbabee1c4 MANDYPHILLIPS started the topic Numb bottom lip and chin in the forum General http://www.myeloma.org.uk/forums/topic/numb-bottom-lip-and-chin/ Fri, 24 Jan 2014 18:32:01 +0000 Hi, as some of you already know I was told on Monday that the cancer was back after only 7 weeks in remission. (If I ever was in remission because I have never felt we’ll.

Anyway, I was wondering if anyone else was suffering from this:
My bottom lip & my chin feel completely numb, my lip feels very swollen but when I look in the mirror it…[Read more]

]]> 757dd178b924f0b56172acba0e7db381 MANDYPHILLIPS replied to the topic Mouth sores...to ice or not to ice that is the question. in the forum Side-effects http://www.myeloma.org.uk/forums/topic/mouth-sores-to-ice-or-not-to-ice-that-is-the-question/#post-112201 Fri, 24 Jan 2014 17:57:28 +0000 Hi Carol

I had iced lollies and they seemed to work for me, good luck withheld transplant, I had my first on in May 2013 and in November 2013 was told I was in remission. On Monday I was told the cancer was back so remission was only 7 weeks, looks like I have to do it all agains
Anyway, try the iced lollies and as I said before Good Luck ❌❤️❌

]]> 55792e64876f8da87eaf0c784ce46e0a MANDYPHILLIPS replied to the topic My Remission is over!! in the forum General http://www.myeloma.org.uk/forums/topic/my-remission-is-over/#post-112157 Wed, 22 Jan 2014 18:28:13 +0000 Hi Everyone & thank you so much for taking the time to reply.
I was at the hospital today & had a bone marrow extraction (owwww) they let my sister come in with me which definitely helped me. I go back tomorrow morning for a skeletal X-Ray & I have received an appointment at the Christie Centre in Manchester. Just hoping that whatever I choose…[Read more]

]]> 7de6461ab1798faa51f27b817e0047cb MANDYPHILLIPS started the topic My Remission is over!! in the forum General http://www.myeloma.org.uk/forums/topic/my-remission-is-over/ Tue, 21 Jan 2014 19:19:16 +0000 Hi everyone, well I got the worst news yesterday “Your cancer is back!
I got told In November 2013 that I was in remission so that’s roughly 7 weeks. The worst of it is that I was constantly telling my consultant that I didn’t feel well so how could i possible be in remission?
I don’t know how I am feeling, I suppose I feel like I am talking…[Read more]

]]> 89a07cb03c24ea4534eaeead5141244b mandyphillips41 posted a new activity comment https://forum.myeloma.org.uk/activity/p/72/#acomment-357 Sat, 28 Dec 2013 22:24:46 +0000 Hi Jimbob & thanks for the reply. I fully agree, I feel so sorry for my ever patient husband he must really be fed up with my ailments. I went back to my G.P just before Christmas & apart from the OxyContin & Oxynorm she has changed my medication to see if this helps. This change took place 10 days ago and all this has done is make me feel sick…[Read more]

In reply to - mandyphillips41 started the topic Bone Pain in the forum Related conditions Hi I was diagnosed on 12th October 2012 with Multiple Myeloma and I am now 6 months post stem cell transplant and I am feeling terrible […] ]]> 2e971157354eecbcbe24d94b517d9496 mandyphillips41 replied to the topic Lenalidomide & Maintenance in the forum Related conditions http://www.myeloma.org.uk/forums/topic/lenalidomide-maintenance/#post-111187 Fri, 06 Dec 2013 07:46:21 +0000 Hi Sims and thanks for the reply. I think is is definitely something I can mention to my specialist, I am seeing him on Tuesday and I think any input is a positive thing.

Good luck & take care

Mandy x

]]> 2d077380f73030b223a9b61cf9d10e0e mandyphillips41 replied to the topic Bone Pain in the forum Related conditions http://www.myeloma.org.uk/forums/topic/bone-pain-2/#post-111186 Fri, 06 Dec 2013 07:44:04 +0000 Hi Andy

Thank you so much for your reply 🙂

I am now seeing a Nuerologist on Tuesday so I will mention to him about bone pain possibly being related to the Stem Cell production.

Its a little depressing to think I may have to live like this if it is damage caused by the treatment, I don’t have much quality of life and I am only just 50. My…[Read more]

]]> 73649252e384915ef2bd3e5f26248bee mandyphillips41 started the topic Bone Pain in the forum Related conditions http://www.myeloma.org.uk/forums/topic/bone-pain-2/ Wed, 04 Dec 2013 23:41:51 +0000 Hi

I was diagnosed on 12th October 2012 with Multiple Myeloma and I am now 6 months post stem cell transplant and I am feeling terrible pains in my body mainly back, down shins to the top of my feet and down my fingers. I have seen a (sorry about the spellings) neurologist, rhuematologist and a back specialist. I have had a kyphoplasty, carpel…[Read more]

]]> cb982dd9a73615b6a327cea03be1798c MANDY PHILLIPS replied to the topic Anxiety in the forum Side-effects http://www.myeloma.org.uk/forums/topic/anxiety/page/2/#post-105248 Sun, 26 May 2013 21:13:27 +0100 Hi Mothas

Unfortunately I do not had a good view of the Mersey. But the rooms with the view are half the size of mine so I decided I would much sooner have the space.. 🙁 SHAME

MANDY X

]]> 94657775b7194c1e79c31b7c6805bbb1 MANDY PHILLIPS replied to the topic Anxiety in the forum Side-effects http://www.myeloma.org.uk/forums/topic/anxiety/page/2/#post-105251 Sun, 26 May 2013 21:10:48 +0100 Good Evening everyone

Well I will have been in for a week tomorrow and to be honest I don't know where the time has gone.. I had my SCT on Thursday and so far – so good!! Couldn't feel better if I tried. Its a real weird feeling laying/sitting here waiting to feel poorly.. when you just feel good.
Sorry I have not much to tell but it really…[Read more]

]]> 00c2f90a003d7c65a68d56cc72e68cc7 MANDY PHILLIPS replied to the topic Anxiety in the forum Side-effects http://www.myeloma.org.uk/forums/topic/anxiety/page/2/#post-105245 Thu, 23 May 2013 21:20:10 +0100 Thanks Tom.. I have been using the mouthwash also like its going out of fashion because mouth ulcers is something I have always suffered from and that scares me hence I also use the mouthwash and the Nystatin. Right nurse has give me a sleeping tablet as I haven't had much sleep the past 2 nights.. good night everyone
Mandy x

]]> 1e17a13f772d128243d107634e820c77 MANDY PHILLIPS replied to the topic Anxiety in the forum Side-effects http://www.myeloma.org.uk/forums/topic/anxiety/page/2/#post-105243 Thu, 23 May 2013 21:05:26 +0100 I am eating a lot but mostly all of the wrong things – I have developed a terrible sweet tooth – got to stop it I dont want to gain the weight… I will keep you posted about the x-ray – fingers crossed I am right and the doctor is wrong. hehehe, Mandy x

]]> b21e6d38bbbafe5c1412a983fb11be25 MANDY PHILLIPS replied to the topic Anxiety in the forum Side-effects http://www.myeloma.org.uk/forums/topic/anxiety/page/2/#post-105241 Thu, 23 May 2013 21:03:18 +0100 Thanks Tony.. thats very reassuring – about the weather at least.. haha. I love the outdoors and have such a happy social and family life I am not going to let anything take that away from me and I am going to be a Nanny in October so thats something worth fighting for 🙂 Its also my 50th birthday in October so that 2 good things to get better…[Read more]

]]> 6bc0d8a0dd5d4046d101cd58543fa8a9 MANDY PHILLIPS replied to the topic SCT. Husband still unsure? Can anyone help? in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-husband-still-unsure-can-anyone-help#post-102613 Thu, 23 May 2013 20:40:50 +0100 Hi Gill

I was diagnosed last October, I am in hospital now having had my SCT today. I was on the clinical trials prior to this and I must confess the side effects I suffered were really rough. My feelings are what choices do I have so after talking to myself, reading other peoples journeys I decided I didn't really have any other choice. I…[Read more]

]]> 05a305234fdae4a795f56af33761e5f7 MANDY PHILLIPS replied to the topic Anxiety in the forum Side-effects http://www.myeloma.org.uk/forums/topic/anxiety/page/2/#post-105239 Thu, 23 May 2013 20:25:34 +0100 Hi Megan and Tom and anyone else that is following me x

Thanks for asking – yes I had my second stem cells put in today and everything was fine, they bought a portable x-ray machine to my room to x-ray my abdomen to check if I have a blood clot as my ankles and legs are still very swollen – I don't think of myself as a medical person whatsoever…[Read more]

]]> becf68bb164df9486999269099f8dd95 MANDY PHILLIPS replied to the topic Anxiety in the forum Side-effects http://www.myeloma.org.uk/forums/topic/anxiety#post-105236 Thu, 23 May 2013 10:25:00 +0100 Hi Eve

Yes I have had my hair cut into a short bob I wasn't brave enough to go any shorter just in case a miracle happens and I don't lose it – ha wishful thinking. I am already stuck in my room not allowed out for at least 2 weeks.
Yes it's still the old hospital but the new one Is in the process of being built as we speak and it will be…[Read more]

]]> 29f9d0ee082e6fbdfcc36d29bbb5deed MANDY PHILLIPS replied to the topic Anxiety in the forum Side-effects http://www.myeloma.org.uk/forums/topic/anxiety#post-105234 Thu, 23 May 2013 08:18:04 +0100 Hi everyone, well I am on day 4 of my 28 day stay in the royal hospital In Liverpool – so far so good. I have had the intensive chemo on Tuesday and yesterday I had some of my stem cells put back in. I will be having the remaining put in today. I am still very swollen – face, ankles & feet. The doctor is prescribing me with an injection today…[Read more]

]]> 692b2d53fdfa05aacfd6548c1f5b5065 MANDY PHILLIPS replied to the topic Anxiety in the forum Side-effects http://www.myeloma.org.uk/forums/topic/anxiety#post-105233 Thu, 09 May 2013 22:30:47 +0100 Thank you Tom.. I love this site, everyone is so positive and supportive:-) [i][/i][b][/b]

]]> 40584511e31ee38c9c29ca85b677f37a MANDY PHILLIPS replied to the topic Anxiety in the forum Side-effects http://www.myeloma.org.uk/forums/topic/anxiety#post-105231 Thu, 09 May 2013 19:27:14 +0100 Hi everyone, hope you are all feeling ok at the moment. Well I had my operation last week and I must say it was a great success, I have no pain from the fractured vertebras at all.
But, would you believe I now have pain from muscle spasms, the hospital have given me some diazepam to help relax my muscles, they also increased my oxycodone to 110…[Read more]

]]> bf8caa74073727d264d07f5825a563b0 MANDY PHILLIPS replied to the topic Anxiety in the forum Side-effects http://www.myeloma.org.uk/forums/topic/anxiety#post-105229 Fri, 26 Apr 2013 18:14:23 +0100 Thanks so much everyone for the understanding and encouragement Not had a very good week with sickness and anxiety but maybe it's because I go for my operation on Monday to repair my Vertibraes at least once that is done the pain will hopefully subside leaving me stronger for the SCT. Thanks again, it's amazing to know other people care and it…[Read more]

]]> 273f7aa45ad7259b3e856ddb9a655b08 MANDY PHILLIPS started the topic Anxiety. in the forum Side-effects http://www.myeloma.org.uk/forums/topic/anxiety Wed, 24 Apr 2013 00:06:39 +0100 Hi. I was diagnosed with MM in October 2012 and I have recently finished my 5th cycle of treatment (I am on the clinical trials) I feel like I have had a real rough journey from Day 1 and cant help but wonder if this is because I am on the trials and maybe I should have opted for the basic treatment so as the side effects were less.

I have had…[Read more]

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