Hi Helen
For your husband it must be great,waking up to a different woman beside him every week:-)Eve
Bald dark grey then blonde LOL
I usually have my hair very short,because I do not like sitting in hair dresses,last time they just were too scared to cut enough off,so now with this wind i look if i have been dragged through a hedge…[Read more]

Hi Helen
Are you going to post a picture,I think you will look good as a blond!!

Slim has lost his Denis Healy eye brows,and still has no hair to shave with,he says it,s coming back as bum fluff!!(I think that,s what he said:-P )

I must admit,looking forward to Slims hair coming back,he has always had a good head of straight hair,but I…[Read more]

Hi Well Friday was an easy day,bloods in the morning then waiting for the call to go back in for platelets.It never came,so rang up,Slims platelets have gone up to 26,still boarder line,but they decided platelets not needed.

Have another appointment on Monday,same again bloods,so we will see what results,that brings.

Can anyone tell me when…[Read more]

Hi Onlyme

As Tom said cat nap it does work,It is hard,and your Dad does not sound if he is coping well,The house can wait,i think you need to take your Dad on that walk with you,he is trying to be brave for all of you,you cannot help your mum much but you can help your Dad,come to terms with what is going on.

It is exhausting,but you will be…[Read more]

Happy New Hair Cut Helen, I hope Blondes have more fun you will have to let us all know Lol.

I used Oillatum on my skin and still do 🙂 but what it wants is a good few days of sunshine 😎
Catha Lata Blondie 😀

Love Tom "Onwards and Upwards" xx

Hey Only Me

Keep going Girl I know its hard and I feel harder for the Carer/watcher than us with MM, as while we are confined to bed we can sleep.

I hope the walk done you some good but please look after yourself also, you dont want to find yourself too Ill to visit, am sure its difficult to sleep but the power nap is also good for you half…[Read more]

Hi Vicky and Colin

Well I see as normal you have had some great and honest answers 😀

Just to add a little bit more The treatment I went through from start to this day was for me "Pain Free" except when I was having the growth injections I had pain in my rib cage and that was intermittent for I think four days.

And Like Helen said…[Read more]

Dear Avis
I do admire all these people who go the extra mile,it is so nice the firm you work for is making Myeloma there charity of the year.

I find it takes me all my time just to function and I am just the carer.

I wish you well Avis .Eve

Hi you two
I can only say take the chance you have been given,Slim and I were very unsure,one because his own consultant thought Slim had to much damage to his lungs.So at the end of the day it had to be Slims choice,I would never have forgiven myself if I pushed him,and he died.

He has now had his SCT,and he said it was not as bad as he…[Read more]

Hi you two

Your more than welcome I and Elaine(the young bride) knows all too well how bad BUT how good its been for me, and as for the "Red Stufff" yep am partial to that its good for the MM 😀 and yes the Vodka is even Better for the MM 😎 drink too much and you forget you have it Lol.

Keep strong and live life with a smile

Love…[Read more]

Hi Vicky and Colin

Wow what a rush now?

Well to answer one of your Q's I had my SCT in dec 2009 yes it was hard but and this I mean if it fails would I do it again Too true I would 😀 yes its hard yes its a long time in the "Getting Better" Dept but well well worth it 😎 because I sit here now two years and six months down the line in…[Read more]

Hi Only Me

I am so sorry to hear your Mum has got more to fight than MM and trust me Girl its Ok to feel down at times like these.

That said I do wish and pray your Mum has longer with you all and is up for the fight, as always we never know what is around the corner.

Keep strong and tell your Dad i am sending prayers for your…[Read more]

Please do not worry about feeling down,this is were you should come when you do,as we all understand and lots of us have been in situations that have been very difficult.
A year last Easter Slim was in ITU,we actually got married in ITU so that in its self explains how bad things were,he still tells everyone I married him when he was full of…[Read more]

That is very sad news for you and your family,I would say you have done the right thing in not telling your mum,but if she starts guessing i would tell her as,she might have things to say,that need to be said.

We tend to try to protect the person that is ill,but sometimes its good to talk about it,as you find out what they would like,I know…[Read more]

Dai
All that sounds like a wonderful heavy day,you must be very proud,as an event like that takes a lot of organisation and lots of hard work.

I wonder how these wonderful people find all the energy to do all these events,my Son in law has just done a support driver for people who cycled to Lands End from Canterbury in aid of Cancer plus…[Read more]

Hi Dee

I also am 56 (57 July) I was diagnosed with MM in jan 2009, I have had CDT as front line treatment then onto SCT in December 09, Now back at work (light dutie's) and doing great 😀 It aint a walk in the park this MM trip but would I do the same treatment again ? well I have to answer a big YES as at the moment it has given me over two…[Read more]

Hi Dee

WE live in Deal kent,it is my husband who has Kappa Light Chain Myeloma,
He is treated at Canterbury,He was diagnosed after many months of pain,and weight loss,that was August 2010,finally diagnosed February 2011 18 months on Myeloma Trials X1 which might be available to your Dad ,he finished Chemo, he has just had a Stem Cell…[Read more]

Hi Dee
I know all this is worrying,and you will continue to worry,but take some deep breaths,and think I can do this,and the calmer you stay,the more help you will be to your Dad.

Right now your Dad has a lot of the symptoms,which are not very nice,the first thing they will do is control the symptoms,stop Dad being sick,and help him regain…[Read more]

Glad to hear mum is feeling better,

When Slim was first taken in to hospital it was with AKF and hypo-calcuimia(spelling) ,within 48 hrs the difference was amazing,
The Kidneys should clear but it,s sensible to make sure your mums fluids is high to help clear any chemo.

As for sunshine its no fun for Slim long sleeves hat and factor 50:-(…[Read more]

Hi Mari Sarah and Min

My Problem Mari is I am deaf so phones are a no no,I hate them,miss a lot of the conversation!!!, so prefer to do face to face,If Slim goes on the phone by the time he has come off,he cannot remember what was said,lol
Would be interested to know how you get on Sarah,I know a few people who actually do counselling,may be…[Read more]