Hi David
I would agree, it just makes me wish I had put a high value on are years together 30 years together and 1 year married,I ask myself why we need such a wake up call as Myeloma to value what we are loosing.
I am feeling sorry for myself better give myself a kick up the bum.Love Eve

Do you know Eve if i could blush I would Lol

Well am pleased they didn't Chuck HIM out, yes I was under Castle Hill in Hull for my SCT and went every week to have bloods and check up then on my 10th day (or near as danm it) I had another BMB But hey Ho still in Remission since 2009 😀 and after all I went through it was well worth it 8-)…[Read more]

thanks Tom

It just what I need at this moment,a lovely man cheering me up and making me smile:-) 🙂 🙂

No they did not chuck him out,i think they have done all they can for him,because of this 100 day rule we are officially under Kings which is 86 miles away,they will keep looking at his bloods to see how he responds!!!!

I bought…[Read more]

Hi again Jeant

I was just looking through the post and thought I sounded very harsh I did not mean too, and must apologies to you.you are very worried and did not need me to tell you there is no answer.
The CRD has had good results its just about finding something that does the job,all the chemo,s have side effects and because people are…[Read more]

Grumpy old man Bless him Lol

Its a good job it was only a discharge note he made the mistake on the next patiant might be having his left leg removed just think of the mistake in that one? :-0
I do hope they didn't throw Slim out because the needed his Bed?

I know you will take care of Slim and wont let him do too much yet and dont forget…[Read more]

Hi Jo And Liz

Well my grumpy old man rang me at 8am yesterday to tell me he had been discharged so off I went to collect him,but when i got there,the doctor had made a mistake on paper work,so he had to be re discharged again by 11 he was loosing the plot,so all for a mistake in the paper work,Slim discharged himself,they were desperate for his…[Read more]

Hi Jean

Once when I was in the car with Slim,he was getting very jumpy and very annoying about my driving,he use to drive most of the time,i just came in handy when he had a drink and could not drive,but on this occasion we were on are way to hospital and he was so annoying i stopped the car.

He told me not to go any further as the car was…[Read more]

Hi Everyone

Helen it is a world wide Trial but it is not in all area,s of uk. I know in the South East Dr Pocop fought to get these trials allocated here.If they were not here Slim would not be on them as the nearest place that had them was Kings in London.86 miles away and sick patients would not be able to manage it.But you have the same…[Read more]

Hi
Oncologist this is a blood cancer were is the heamotologist ??????

Hi Jeant
My name is Eve,My husband has had CTD plus Velcade them SCT,I do not know any back ground,so it is very hard to make any comments.
The question you should be asking yourself is how much do I want to know,???

The experts have to answer your questions
So you must decide what you are going to ask.
If they are treating your husband…[Read more]

Hi Jean
Here are some tips that might help you

The anxiety is fairly normal,kicks in over silly things,Dex moments they are convinced they are right,so just remind him when he has taken his dex.Ormake a chart out of tablets then tick when anxiety starts tick under it,and you will see a patten emerge.
Massage seemed to help Slim and some one…[Read more]

Hi David

People on the Myeloma trials X1.are randomised by a computer after SCT.for maintenance therapy or no treatment,so it,s the luck of the draw.Great fun it is not.Love Eve

hi Karen
If your GP did an urgent referral you should have been seen with in 10 days.
Get on to your GP tell him that you have not had appointment through.This is the procedure.

Karen your pains could be a number of things,but if you start feeling sick or are in sever pain,you could have problems,after what happened to my husband I would…[Read more]

Hi Jean and Frank

Sorry I cant add to any of this only to send you both a CyBer (HUG). I know its scary when they tell you to come off something and have to wait for a few days before something else is sorted they might give Frank a reduced dose?

Keep strong they will soon find something that "Fits" Frank's set up.

Love and Hugs Sent…[Read more]

Just a quick reply

Min i think if you are not in a hospital that is dedicated to Myeloma your chances go down,as i said he is on a good ward fit for purpose,but when he was in A&E they were going to put him on a general ward,I told them side ward or private otherwise i take him home,someone got chucked out to provide bed.
The fact is the…[Read more]

Hi Eve and Slim
Am pleased it was caught fast enough the sooner the better 😀 and am afraid to tell you you will have more of these down the line 🙁 but if you are all on top of it as soon as it "Feels just not right" then am sure it wont last long, jump on the bugger as soon as 😎 and tell Slim its our sense of humour that helps us cope I…[Read more]

Hi Karen

Welcome to the group and i am sorry you had to join.

I hope you are soon seen I know its a worry we can do without.
I was fortunate enough to be seen pretty fast and started my treatmen within two months, and i hope this helps "I am now in remission and drug free" 😀

Good Luck in your road to remission

Love
Tom "Onwards…[Read more]

Hi Wendy

Yes I still drink at least three Litre a day.
I put mine in 500 mil Bottles and fill up from the tap, we have a water filter in the tap pull forward for normal cold and push back and it comes through the filter and I put three bottles in fridge and are refilled when empty its better to count?? but I drink more than the three ltr, I…[Read more]

Hi Sue
I am pleased you found out am sure its all too much to take in at the moment and a worry when we read things that differ from our Dr advice.

Hope all goes well

Tom "Onwards and Upwards" xx

Hi Jean
Sorry I did not send you some best wishers,when hubby started chemo ,I know how much it was getting to you,its strange when the time comes,you just accept this is the way it,s going to be:-P My thoughts have been with you,just not had the time to post much with so much going on in our lives.

Same apply,s for any one else I have…[Read more]