tom replied to the topic DT PACE in the forum Treatment 13 years, 9 months ago
Hi Paul
Sorry its not worked out SO FAR am sure we will have more bridges added as time goes on, stick with it and stay strong
and fingers crossed 🙂
Tom "Onwards and Upwards"
tom replied to the topic UPDATE ON MICHAEL in the forum General 13 years, 9 months ago
aww Sue I am sure its hard for you folk that are erm on the side lines and having to leave us MM folk alone to all the treatment, its a sad thing but it has to be done anm afraid.
You Time is somthing you want to do but cant because you wory too much about Michael.
Hope all is soon sorted out
Love and Hugs to you Both
Tom "Onwards…[Read more]
tom replied to the topic SCT Underway in the forum Treatment 13 years, 9 months ago
Hi Eve and Slim
Am sure Eliz will cope re the washing machine as my Young Bride has coped for over 36 years with a mere Male not able to use a washing machine? I fix it when its broke (if poss) and drag it out and take to the skip if i cant fix it so all I ask is the Young Bride is able to use it lol, and to be fair am same with…[Read more]
eve replied to the topic SCT Underway in the forum Treatment 13 years, 9 months ago
Hi Eliza
How an earth do you manage with a husband who cannot use a washing machine,!!!!
Teresa how are things going with you, I hope you and you husband are finding some quality of life,try to hold on to the thought the experts are not always right,some times you must have goals and dreams to hang in there.Slims goal is New Zealand,we have…[Read more]
eve replied to the topic DT PACE in the forum Treatment 13 years, 9 months ago
Hi Paul
Sorry to hear Velcade did not work,I think Andy G had the same treatment,may be it is an age thing as you produce more cels the younger you are ???
You must be feeling a bit down,it,s easy to tell you there is something round the corner but your options are getting reduced,I know some people have had SCT with a higher count might be…[Read more]
tom replied to the topic SCT Underway in the forum Treatment 13 years, 9 months ago
Hi Eve and Slim
Well Eve this post made me Lol (its just like having a baby lol)
And as for the water good lord I did struglle to drink the amount they wanted me to and the drip for me was far better, yep it was a struggle to unplug wrap cable up and find a FAST way to the loo (failed many a time but hey ho it gave my nurses a laugh to see…[Read more]
eve replied to the topic SCT Underway in the forum Treatment 13 years, 9 months ago
Hi everyone
Well Dai Slims mind set is never again,told him it,s a bit like having a baby will forget the bad bits,(no sympathy).
In Kings they keep them in for a month no matter what,so he has been warned as to drips,I can count three at this present moment plus pump,they do not do ice and do not encourage any food other than hospital food…[Read more]
tom replied to the topic Keep Calm & Carry on in the forum Treatment 13 years, 9 months ago
Now aint I said that before The "You can do it Dai, if anyone can then its you" and am as pleased as punch that you have proved me correct, way to go Dai Onwards and Bloomin Upwards, am sure you have more of the "Whatever it takes" in you than I have and I aint gonna let it take me without the Fight.
Keep strong Dai and keep fit 😎
(shed a…[Read more]
eve replied to the topic Hello to All in the forum Newcomers 13 years, 9 months ago
Hi jacque
My husband is in Kings having hit SCT at this moment,just getting his platelets, dong fine but is having problems eating,has come out with a rash on his legs but it does not seem as bad as I expected.
I think he has his low points in the morning,build up of throat over night plus feeling sick and rushing to toilet,expects to be…[Read more]
eve replied to the topic Race for Life completed and photos attached in the forum General 13 years, 9 months ago
Hi Sarah and Henry
Well done to both of you,Henry is doing very well it only seems like the other day you joined the site,and there you are SCT over thinking of going back to work and doing the race for life.
Well done keep the good work up,Eve
eve replied to the topic A Postcard from New Zealand in the forum Off topic 13 years, 9 months ago
Hi Helen
A beautiful place and its nearly winter there,I enjoyed the peace you do not have the flight paths or the motorways.
Slim and I next year,hoping to do Christmas but will have to see.
Have a lovely time. love Eve
tom replied to the topic Bence Jones protein in the forum General 13 years, 9 months ago
Hi Graham
Sorry you are not getting on well with your Dr 🙁 but i think that MM might scare them (i know tel me about it lol)
But I am blessed with a Consultant that told me I dont need to go to the Dr for MM if I feel I have a problem I just have to phone the Ward up for advice or help, and that is what I have done.
Good Luck on your…[Read more]
eve replied to the topic 18months later in the forum End of Life and Grief 13 years, 9 months ago
Hi Roz
So glad to see you are moving on with your life,it is hard when there is so many things around you,but it,s true what they say life goes on,children seem to bounce back,they have there own friends they can talk to about it and it is hard for anyone to take on anyone,s grieve .
Although i am here to help with my daughters grieve,we do…[Read more]
tom replied to the topic Race for Life completed and photos attached in the forum General 13 years, 9 months ago
Hi Sarah and Henry
Well done on doing the race for life, I remember my young Bride (Elaine)doing it the year after she had her op for breast cancer and the year i was told I had MM it was a very emotional time seeing the Number on her back with the words "I race for My Husband and Myself" gosh i can feel tears as I write this bugger…[Read more]
tom replied to the topic Newly diagnosed Monday at only 39. in the forum Newcomers 13 years, 9 months ago
Hi Antoinette
Hey am Sorry you are teary 🙁 go my way girl (it works for me) cry in shower you dont notice so much and more important I felt that if I have this MM it wont take me so I told my Consultant I dont want to wait (he did say we could pospone treatment) and i want to throw whatever he could while I was still young and fit (ish lol)…[Read more]
tom replied to the topic Newly diagnosed Monday at only 39. in the forum Newcomers 13 years, 9 months ago
Hi Antoinette
A Warm welcome to your site :-D.
Sorry you have got MM I was told in 2009 had 5 courses of CTD then stem cell transplant December 2009 am now in remission and doing well, am a iccle bit older than you am 56 soon to be 57 😎
The Harvest and return of my Stem cells was all done through my Femoral line, and to be honest all…[Read more]
eve replied to the topic Newly diagnosed Monday at only 39. in the forum Newcomers 13 years, 9 months ago
Hi Antoinette
Welcome to this site,we will help you all we can,there are lots of people on here who have been through the same thing as you,or who are carers to those people,it is very scary all the information you have to take in,medical jargon and worry.
Try not to look to far ahead and take one day at a time,forget SCT for now just try to…[Read more]
tom replied to the topic starting treatment in the forum Treatment 13 years, 9 months ago
Hi Jean and Frank
I can Copy what Deb's has said its the start to remission, and with that I wish you Luck it will happen but along they way you will feel a bit? rough, fingers crossed that you go through it as well as I did 😀 uphill but with a smile 🙂
Love and Hugs
Tom "Onwards and Upwards" xx
tom replied to the topic VELCADE SIDE EFFECTS in the forum Side-effects 13 years, 9 months ago
Hi Eve and slim
Well I for one (as a mere male) feels real sorry for Slim and his cough cough problem.
Onwards and upwards Tom xxx see the thought of it made me writ the end back to front lol xxxx
tom replied to the topic Revlimid Failed in the forum Treatment 13 years, 9 months ago
Hi Gill
Trust me girl we wait for no apologies from you 😎 and am sure our moderators understand the words sometimes need to be said to vent our frustation I for one aint got a problem with it 🙂
Love and (((HUGS))
Tom xxxx