tom replied to the topic 10 week check up since STC in the forum General 13 years, 9 months ago
Hi Carol
Yep Gremlins me thinks :-0 Plzd you feel better today and I hope the Nebz sorts you out better? saying that I have had a cough for years?? its the only way the young Bride can find me in a shop with the Cough Cough every now and then Lol.
Tina I think all of us that have had the "Dex" :-0 there av wrote it Dex feel the same but it…[Read more]
tom replied to the topic 10 week check up since STC in the forum General 13 years, 9 months ago
Hi Carol
First I dont know how your post has got hidden in the middle of here Lol.
And Second Welcome Home and I bet it feels strange? I know I did.
You know now that your strenth will recover it might just take a Month or two.
Keep strong and stay Fit.And long may the transplant work
Love and Hugs
Tom "Onwards and Upwards"…
tom replied to the topic looking good! in the forum General 13 years, 9 months ago
Hi Sarah and Henry
Well its great to hear AND see you are doing great. Keep it up Henry
Love to you Both
Tom "Onwards and Upwards" xxx
tom replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers 13 years, 9 months ago
Hi Ann and Pete
Well I strated My CTD in Feb 2009, all went well Except I got Out of breath that I had to go on sick in the may, I was that Bad that one of our neighbors came round to see me and lent me his shooting stick ( a walking stick with a seat on it) so I could still walk the dog but when I felt weary (and i did) I just popped open the…[Read more]
eve started the topic Better Days To Come. in the forum Carers 13 years, 9 months ago
Hi Everyone
Well it is early in the morning and the sun is out,is this the sign of better times? If I awake with a smile on my face will every one smile with me, lots of questions with no answers.
The world just seems to go on,although my world seems to have stopped lately.
I have always tried to look on the bright side of things,I felt so…[Read more]
eve replied to the topic moving on in the forum End of Life and Grief 13 years, 9 months ago
Hi Min
Lovely to hear from you,glad to see you back,you were missed:-(
I have watched Reiki being done,and for the life of me i do not understand what they do,but it did work for Matty,plus a friend of my daughter who,s husband died age 38 years,it has a very calming effect,so I think bring it on,if it helps.
Stress has a terrible effect on…[Read more]
eve replied to the topic The next step in the forum Treatment 13 years, 9 months ago
Hi Mari
Did Steve have enough stem cells or will they do another harvest!!!
Rosie my husband Slim is 68 this year and is having his first SCT starting Sunday,i think it,s not so much age,it,s how fit you are,because Slim had pneumonia which left scaring on his lungs,we thought they would say no,but they have said he is fit enough.They did decide…[Read more]
eve replied to the topic New and need advice on Myeloma XI in the forum Newcomers 13 years, 9 months ago
Hi Gail
I think the 3 cycle was the hardest for Slim,mainly because he was ill and we just thought it was the effect of the chemo,because he did not have a temperature, it was not picked up by our doctor or A&E,he had pneumonia and the steroids masked the infection.
So this is were you have to be firm if you think he is ill make sure they listen…[Read more]
eve replied to the topic 2nd bone marrow biopsy today in the forum General 13 years, 9 months ago
Hi Peggy
BMB are not the nicest thing to have,but they will show what is going on with your bone marrow,because some times the kappa light chain readings do not reflect what is going on in the bone marrow.
Your BP reacts to your condition,it can go up and down if your nerves or upset,so take deep breaths and keep calm,:-P
Myeloma does take…[Read more]
tom replied to the topic moving on in the forum End of Life and Grief 13 years, 9 months ago
The Great Lady has returned 😀
Hi Min what a thoughtful Lady you are, posting how you have and are getting through your bereavment, am sure you would make a great Couinceler for those that have lost loved ones:-D, and am sure this thread is the start and will help those that are and will go through it.
Love and Hugs
Tom xxx
eve replied to the topic Another 3 months in the forum General 13 years, 9 months ago
Hi Everyone
Just Looking in,This is what we need,good news,Wendy and David,lets hope we hear lots more.love Eve
tom replied to the topic New – but feel I know you already! in the forum Newcomers 13 years, 9 months ago
Hi Rosie
Shy ? you erm well I will wait for a few more posts before I answer that Lol.
And I think you are going to do a great job with advice and help just by looking at the few posts you have made so far 🙂
Keep up the good work Rosie
Love
Tom "Onwards and Upwards"
Ps am also Shy 😀 xx
tom replied to the topic Penny Lane in the forum End of Life and Grief 13 years, 9 months ago
And RIP Dear Penny x
tom replied to the topic 2nd bone marrow biopsy today in the forum General 13 years, 9 months ago
Hi Peggy
Al Say Ouch re the BMB but if you had a little snore then good on you girl 🙂
I know all about the trepidation after having tests done am sure we all do.
Hope all is well with the Snooze BMB 😀
Love
Tom "Onwards and Upwards" xxx
tom replied to the topic More later but… in the forum General 13 years, 9 months ago
Hey Dai am sure you didn't expect anything different, keep on keeping strong 🙂
Tom "Onwards and Upwards"
tom replied to the topic Newbie in the forum Newcomers 13 years, 9 months ago
Hi Gail
Well I thought I had replied to this one?? might have gone into cyberspace?
So A Warm welcome to you and Howard, you have got the good group and you will find the folk on here very good for info and a cyber hug as and when (well even when you feel you dont need it) you need it.
Love
Tom "Onwards and Upwards" xxx
tom replied to the topic Busy Week in the forum Treatment 13 years, 9 months ago
Hey Eve and Slim
Thoughts are with you and fingers are crossed for Slim's SCT
Love and Hugs to you all
Tom "Onwards and Upwards" xxxx
tom replied to the topic New – but feel I know you already! in the forum Newcomers 13 years, 9 months ago
Hi Rosie
Welcome to the Group, am sure you will be pleased you have made the "Plung" and wonder why you didn't do it before.
Keep strong and keep us posted in the treatment you are offered:-D
Love
Tom "Onwards and Upwards" xx
tom replied to the topic More later but… in the forum General 13 years, 9 months ago
Well we have been through the wars Dai 🙁 and may I say you cope with it realy well take in your stride and dont blame anybody (ang on am gonna read it again) erm read it again and ye am sure we are guilty of throwing in the "Its Ok it will get better" and "Biotics will soon sorth that one out" ye av done it Lol.
But seriously Dai I am…[Read more]
tom replied to the topic New to the site in the forum Newcomers 13 years, 9 months ago
Hi Vicky and Colin
Yes My Young Bride (Elaine) and I are doing great thanks, just waiting for the warmer weather to arrive 😎
Ps I think I might have something wrong with me :-0 :::::::::::::::::::::::::::::::: I dont like Golf Lol
Love
Tom "Onwards (and golf free) And Upwards" xxxxx:-D