Your all more than welcome and you all are my inspiration, it’s not easy comming onto a site like this Mm am sure but for me it helps reading your good posts and we have many on here that are Onwards and upwards who also Vabyte and do whatever it takes and also know that every day is a gift.

So you all keep me going also

Morning Helen
As you can see by the time of the list I had my Dex yesterday lol.
I think you would beat me if ur July but am gonna race you anyways it gives us some thing to look forwards to dunt it.

I would think for me more autumn early winter for mine beds permitting.

Now the race us on

Helen
Do you have an idea when you will be doing yours ? Have you done the harvest? I forget too much these days so forgive me if you told me ha ha.

I am building up to my 2nd transplant all being well this year.
Had first in 2009 so remember what it was like and don’t have a problem doing it again as it gave me four years drug free and that…[Read more]

Hi Keith
And all the best for you, don’t forget use that mouth wash like it is going out of date I did with my first SCT in 2009 and South was not too bad, am due another one this year when the Velcade sorts the Mm out.

One day at a time Keith

Tom onwards and upwards x

Hi you all

Don’t know where the time has gone ?? Moved home in December (13th) and it’s been all go one way or another.

Anyway my treatment”…… On my third week of my third cycle and all doing well, just feel tired more than I used to but still manage to clock on at work and go out for a pint or three. Sleep like a log now except on my Dex…[Read more]

Hi Sarah

Well all that is good to know!!!!

The worst thing I can think of that Slim did in the early days of Dex,is he got an idea to put everything behind the wardrobe,and I said no,when I went out I came back to an empty cupboard and it was all behind the wardrobes!!!!!,I do not let Slim drive on any treatment!!! Apart from that argumentative…[Read more]

Hi Sarah

I cannot help but question the amount given of Dex ????

My husband is on his fourth treatment in three years,each time with Dex,and the days he has taken it are varied,example:he is at present on Velcade one injection a week,he takes 40 ml two days running!!!,when he had two injections a week he had four days of 40 which was changed to…[Read more]

Hi Jean

After the blip as I call it,it took a very long time to recover,eventually Slim was walking again,he started treatment about two weeks after he came out of hospital,I thought it was to soon,but he coped well,but treatment failed,went on to CDV and then SCT.

Nothing has stopped the Myeloma,no real remission,he started CDR,but had a…[Read more]

Hi All

I think once you understand what’s going on it’s easier to take control of,keep yourself busy,telling the cat off is a good one,it cannot answer back,as a carer the one thing that use to annoy me,was my hubby could not see it was the Dex that made him so stubborn and argumentative as time goes on it does get easier. I use to keep a bit of…[Read more]

Hi Jeff

Glad to see you are feeling better,and being positive all helps your condition.

CDR is very like the CDT treatment you had,as you are slightly older,once they are able to control your PP,they tend to use it as a maintenance drug until it stops working,some people have been on it for a long time,as you know everyone reacts different to…[Read more]

Hi Molly

There are a lot of people in the position as your husband,it does depend on how his heart is affected by it. The Royal Free Hospital in London is the only hospital who deals with it,but they liaison with local hospital,it is rare 600 cases a year.

I cannot pretend it not serious and tell you not to worry!!,but please get in touch with…[Read more]

Hi Jo

You must feel that the Damascus Sword is dropping!!,all these new treatments effecting people in different ways!!,I think even the experts are on a big learning curve with us.

Sorry Mandy about taking your post but Jo does not post much for herself,you have to drag the news of her condition out of her,said in a nice way Jo!!!,please post…[Read more]

Hi Dick

You take your chances!!! Slim was unfortunate ,as I have said before Slim is one of the 15 percent who is high risk,good results,but it comes back quickly,you seem to be in the same predicament as Andy,!! Cannot get your PP down!!!. Hindsight would be wonderful??

You have a lot going for you Dick, young,fit family plus time,so I think…[Read more]

Hi Dick

I am sorry to hear your SCT did not work, Helen R and you have both slipped it into someone else,s post!!!!!,I did the same when it happened to Slim,why do we do that??????

I think it,s because we do not want a lot of post saying ( I am sorry ) it’s bad enough going through SCT with nothing to show oft it !!!!,Slim looked on it as 6…[Read more]

Hello John

Just popping in to say hello!!,I hope your are doing ok,or at least as well as can be expected,as you had a rough deal,and no time to adjust.Eve

Hi Jean

That’s all good news,Slim came out in a wheelchair ,I bought a light weight one in the end,which is easier to fold,took months to get him completely on his feet,but he did it, it was the best buy I made as it has been used on and off for the last couple of years.

If you can afford to retire I would go for it,you might miss work but you…[Read more]

Hi Maureen

This time last year,I bet you thought you would never get,were you are now????

How is the Velcade going??? Keep his feet warm,and give his legs and feet a good massage,there legs get very stiff and you can actually feel the tension relaxing in the calfs,so worth it.

Glad you had a nice break in the lakes and also met Andy and Steph,Love Eve

Hi Jo

Slim,s not to bad in the circumstances . He finishes his second Cycle of Velcade on Thursday this week,hid bloods are taking a battering,has had to have platelets every week,but not blood yet,he has managed to fight off an infection,so that has not helped, three years of Myeloma is the best lesson you can have to become an expert on your…[Read more]

Hi Mandy

When you go through all you have and survive it,it should give you a boost knowing that you can fight it,let’s hope the kidneys regenerate and slowly get you back on track.the whole thing is so emotional,once you realise how close things were.
I would not bother trying to remember about ITU,locally they will do a dairy if we asked,but I…[Read more]

Hi Jean

I know it’s a worrying time for you!!! But if Michael has the will to fight it he will,it’s when they put him out and on a Ventilator,the chances diminish,it will take a lot of time to get over this,and they will make decision of his Chemo treatment secondary. But he will get there.

Slim had his Stint in ITU for nine days then the ward…[Read more]