Hi Ann

A warm welcome to the forum.

Use these threads as your sounding board and ask manything you feel you need to know nothing is too sill a question so if you feel it ask it.
David is correct MM is an Individual Illness.

What Hospital will Hubby be having his treatment as I find it good if you know someone else is or had treatment in…[Read more]

Hi Trish and peter

Your welcome, I also had Zometa every four weeks for two years post SCT. struggle to find a vien near the end though Lol.

All the best

Tom "Onwards and Upwards" xx

Hi Trish

Well I had same in 2009 and I am in remission (well thats what am told) and have been since before my SCT it was the CDT that put me into remission.

Good Luck on Hubby's treatment and recovery.

Tom "Onwards and Upwards" xx

Hi Stan

Sorry to hear about your Partner is going through a rough patch.

I think its all been said above just want to say welcome and Good Luck to you Both and soon get a reason for the pain.

Tom "Onwards and Upwards"

Hello Stan

Welcome,I can well understand your concerns,have you mentioned to the doctor the MM history?

Some Myeloma,s do not give any indication in the blood,there are number of different Myeloma,s and the correct blood test plus urine test have to be done. This will indicate if myeloma is possible,the only positive test is a bmb,if they…[Read more]

Hi Tracey

Just quick reply as doing this on I pad in hospital

Slim takes Amitriptyine 10m to help him sleep they have just upped his dose to 25m because they also use this for PN as this is used for PN might be worth asking you doctor. Eve

Hi Duncan, Yes you are in the right place, if you ring Ellen she will be able to tell you about it plus send you booklets. There are a few people on here with Amyloids so I am sure they will reply when they see your post. I believe there are only about 600 cases a year and Royal Free is the…[Read more]

and I am on Tom Lappin and photo of my young bride and I 🙂 xxxx

Hi charlielouise?s

A warm Welcome to the site. and am sorry you had to join, but we have some great folk on here to help and give advice.so any thing you need to know just ask and more so if you feel you need to vent your stress or anger at times here is the best place 😀

Good Luck on the MM road.

Love to you Both

Tom "Onwards and…[Read more]

Your welcome Jean and am sure you know we all have fingers and iccle toes crossed for you and Frank for wednesday 😎

Love Tom "Onwards and Upwards" xxx

Your more than Welcome Helen, and am sure I dont know what you mean?? lol

And Eve you dont need to get your hair done it looks great as it is (and saves money lol)

Week end nearly over 🙁 I hope you all had a great time 😀

Love
Tom "Onwards and Upwards" xx

Hi All
They are good profile picture,Think I will have to get my hair done and try it out .LOL Eve

Hi Ali
Welcome to the site,

I think we all worry when a new hospital,is on the cards,I know I did,,what you have to remember is they are designated units.All new to us,but something they deal with on a day to day bases.

It will seem over whelming at first,but treat it all as another learning curve,it will help if family go with your mum as…[Read more]

Hi Tracey

I am sitting here this morning,and the sun is coming up I have tears in my eyes,and truthfully I do not know why,I do not know if its because I read your post,and thought,poor girl or if I was just seeing myself a little bit further down the line.So it must be me just being a bit tearful.have to find my little white pills again,they…[Read more]

Mavis I cant find you?? see if you can find me am down as Tom Lappin hope to contact soon 🙂 xxxx

Hello Jean

I also had two spells in Hospital in early days with infection's and here i am SCT in Dec 209 and sat here healthy (if not wealthy Lol) and doing great.

The best place for us when not on top of the MM is Hospital as we get stronger drugs that work faster than the take home ones ?

Hope Frank is soon Better.

Love and Hugs…[Read more]

Hi Ali and Mum

A warm welcome to [u][b]YOUR[/b][/u] group, its your group now so please use it, if you want advise or if you want to moan, have a winge or just shout and (nearly) Cuss about this darn MM :'-(

As for me I am 56 and had my SCT in December 2009 so this is the place to ask and ask away.

Sending you and Mom strength to travel…[Read more]

Hi Kay

I know what you mean that "The Body Kicks" when you have done too much 🙁 as ytou know am back at work (light dutie's) 5 days 6/2 every day, am just about done by the friday so 4 days sounds good as we have had a couple of 4 day weeks and that was great 🙂 money still comming in and not as weary 🙁 but hey ho its a job and its money…[Read more]

Hi Mavis

Well I will try and find you on F/B

Words of wisdom? from me erm erm lol OK I know its scary so a few tips DONT accept any friends req that you dont know who they are 😀 NEVER EVER click on a link that they ask you to click unless its your friend and you know that its due or they have told you about and Have fun.

From One…[Read more]

Lol Dai you might get me a bad name with the drink Lol, but its nearly true Lol

No drink in hand (at the moment) Tom "Onwards and Uowards" x