tom replied to the topic Relapse after 5 years in the forum Newcomers 13 years, 11 months ago
Hi Janet
Its a Bugger but I have had a cough and (forgive me) a lot of flem (uck) since i found out I had MM :-/ so it might be one of the symptom's when I think about it? anyways with my cough Elaine (the young bride) knows where I am in the shop lol.
Hope your soon better
Love and cough treatment
Tom "Onwards and Upwards" xxx
tom replied to the topic Has anybody heard from MIn? in the forum End of Life and Grief 13 years, 11 months ago
Hi Dai
Janet sounds a very lovely Lady and that am not surprised nor shocked as am sure you are a true gentelman and would only marry a Lovely Lady 😀
We know how you and Janet feel about Kids (gran or own) and you know how Elaine (the young bride) and I feel about ours what with all the photo's i have posted on F/B 😀
Our three…[Read more]
tom replied to the topic New bird(ish) in the forum General 13 years, 11 months ago
Hi Kirsty
Like the others a warm welcome to this great site?
Sorry you had to join us but as away now you have opened the doors 🙂
As for your first one the advice i can give so far is take it slowly and one day at a time, lots of members here going and gone through what you are about to do.
I cant advice YOU what to do but I can…[Read more]
tom replied to the topic Will there be anything else? in the forum Treatment 13 years, 11 months ago
Lol Dai as am sure you know I am (or was) a hairy ass docker so am now up to speed on that Lol.
And same goes for you Dai if you feel with the help of your brother that you could do the trip then I for one (and you for two) would say go on lad get on with it, you will enjoy it, it might be better to hire a Cmper van as you could stop and sleep…[Read more]
tom replied to the topic Has anybody heard from MIn? in the forum End of Life and Grief 13 years, 11 months ago
Ditto to that Dai, and it looks like she is very active and keeping herslf busy.
tom replied to the topic Will there be anything else? in the forum Treatment 13 years, 11 months ago
Well A well done you lot, and a well deserved trip to france I must say 🙂
Now I can uncross my fingers Have a great time and just give us a little thought when you are away 😎
Love and Hugs
Tom "Onwards and Upwards" xxxx
Ps Am not sure what Dai Means??:-P
tom replied to the topic Moving at last in the forum General 13 years, 11 months ago
Well Eve you certainly aint any of the above 😀
As I said in Last post I had mine all done prior to SCT some at the start of treatment some nearer my SCT , but am not sure anyone can say whats Normal with our Consultants (as good as the are) they all work in a different way.
Good Luck and hope you and Slim dont have anymore Hiccups…[Read more]
tom replied to the topic Rev & Dex – Cycle 2 & Holding in the forum Treatment 13 years, 11 months ago
A Well done that Dai and his new Friends. Its looking good dai and am sure your (The next comment will be copied and pasted :-0 ) Red Blood Cells (HGB) have dropped a full point from 10.7 to 9.8 and my Neutros are down a bit from 4.0 to 2.6 since my interim bloods a fortnight ago but my White Blood Cells (WBC's) at 5.0 and my Platelets at 147 are…[Read more]
eve replied to the topic New Need to talk in the forum Carers 13 years, 11 months ago
Hi Teresa
It never ceases to amaze me how many carers cope for years,on there own,not just people who are away from their family,people who just seem to manage on there own.
I am not one of them,I found this forum last year and must admit if I have any doubt or do not feel things are going the way they should,I tend to come on here and gets…[Read more]
eve replied to the topic Moving at last in the forum General 13 years, 11 months ago
Hi Everyone
Well Tom it,s good to know I am not a deaf grey haired old lady and Slims not got a Complete chemo ,brain.my daughter came for the first meeting for a SCT and she confirmed to me its not panning out as explained.
Explained to us as 2 consecutive day of test,then decisions ,then cyclo and injections then harvest then SCT.
After the…[Read more]
tom replied to the topic My beautiful brother in the forum End of Life and Grief 13 years, 11 months ago
Dear Jean
I am so sorry to read about your Brother has been taken.
May I send you and His Family and Friends My Condolences and Prayers.
Love and Hugs to you all at this Sad Time.
Tom xxx
tom replied to the topic finished my sct early, what now? in the forum General 13 years, 11 months ago
Hi Terry
Well they wanted rid of you or your counts shot up 13 days thats great going (I was 16) now then as for feeling crap, I still feel like that some days.
As for the feeling cold? since my SCT I have felt the cold more than ever before and I had mine done in 2009 :-/ I was always one to be out and about in a T Shirt but now av got a big…[Read more]
tom replied to the topic Will there be anything else? in the forum Treatment 13 years, 11 months ago
Hi Gill and Stephen
Like the ones afore me and the ones behind me I also cross fingers and anything els that can be.
Am sure you are correct it will be "Bugger" all (check spelling?)
Now here we are on the "Man" Thing he he Honest I dont know what to say apart from yep Ladie's you are correct we are Buffoons, Neanderthals the lot why??…[Read more]
eve replied to the topic FUEL BILLS in the forum Off topic 13 years, 11 months ago
Hi Bridget
Thanks for that tip,It has always been the case they are not obliged to tell you about all the help you can get,some things are very wrong with our society.
All this media attention,has increased attacks on disabled people,a couple of months ago,Slim was verbally attacked at the bank,he was on sticks and sat down,a man next to…[Read more]
eve replied to the topic Will there be anything else? in the forum Treatment 13 years, 11 months ago
Hi Gill
My fingers are crossed for you:-)
Why do men never tell you what,s going on ? Slim says it because I make a fuss and would cart him off to hospital!!!!,I call it caring !!
Lets hope its just a blip Gill,and you will get that holiday. I envy you,being able to get away,it is now 17 months since we came back from…[Read more]
eve replied to the topic My beautiful brother in the forum End of Life and Grief 13 years, 11 months ago
Hi Jean
So sorry to hear your news,even if it is expected,you still feel the blow.
Do people take comfort that people they love are no longer suffering,or feel there is no justice that some ones life has been cut short,and they will miss so much of loved ones future lives.
You have your faith Jean,this must give you some comfort,I hope the…[Read more]
tom replied to the topic HERE WE GO AGAIN !! in the forum Treatment 13 years, 11 months ago
Morning Bridget
I have a grandson that stayed over last nite as he said Grandma's at work on sunday and you will need me to stop and look after you till Grandma comes home 🙂 Well as for looking after me He went to bed before me and the little devil is still asleep lol.
Dont know what to say when its the Grandkids looking after us Lol we…[Read more]
tom replied to the topic CDT then PADS now DT PACE! in the forum Treatment 13 years, 11 months ago
Hi Andy
Its great to read you are on the up and doing well.
As for me Yep am a bloke also I had SCT and used to go to 2Castle Hill" every week for bloods and a check up, well the used to put me in a room on my own and a Nurse would come in and take bloods then I would go see the Dr, I asked why I was kept away from the other people and she…[Read more]
tom replied to the topic Tom's Jubilee Walk for Myeloma UK in the forum General 13 years, 11 months ago
Hi Tom and a warm welcome to the site, I also was diagnosed in 2009 (Jan).
Good Luck on your Fundraising.
From One Tom To Another Tom "Onwards and Upwards"
tom replied to the topic Moving at last in the forum General 13 years, 11 months ago
Hi Eve
Yep I think its Eve just being Eve 🙂 but if you wasn't Eve Just think where Slim would be now
You carry on being you it will do Slim good and when you ask questions you will feel better when you get the answers.
As for me prior to SCT I had a heart and Lung fitness test :-S but i had all the other scans in early days of…[Read more]