Aww Bless Tina I know how you feel, I was like that when I was missed (forgot about) for my stem cell transplant they sent some one else instead it put me back by 5 weeks 🙁 I wasn't Happy, but as David say's it all worked out in the end 😎

Love
Tom "Onwards and Upwards" xxx

Hi Nicola

Just wanted to send my thoughts to you, and hope you are all doing as well as you can.

Lots of Love and Hugs ((())))
Tom xxxxx

Hi Joe and Gem

I am pleased to hear you are both doing well in the circumstances.

Good Luck for Monday Gem

Love
Tom xxx

Hi Eve and Slim

Am pleased that things are moving along at last 😀 , Its good to have the treatment near home am sure all the travel isn't that good when you arn't feeling 100%

The train sound a good idea, and could Slim use his Blue badge to make less costly?.

Good Luck for it all and Give my regards to Slim.

Love
Tom "Onwards and…[Read more]

Hi Everybody
Well things are moving fast now,all dates have been moved forward.

Slim was lucky,he asked could he have anything done locally instead of travelling 85 miles to London,so they allowed him to have BMB in Canterbury.
Hoping he might be allowed to have the Cyclophosphamide 5 hr drip also in Canterbury.( fingers crossed ):-P

Off…[Read more]

Dear Nicola

I am so sorry your Dad has got to this stage so fast, My thought's are with you and your Family at this sad Time.

Please Take Care

Love and Hugs to you all
Tom xxxx

Hi Nicola

I am sure Micky will be soon sorted out, and I know that Hospitals aint that good for the rest and relaxing but it will be better for Micky as they can sort his problems out as they go along rather than re book another out paitants.

Give my regards to Micky and please tell him that I and others have been through it and came up…[Read more]

Hi Andy
Am sorry to hear the treatment is not doing its job 🙁 But Good Luck for the DT Pace? I also have not heard of that.

Tom "Onwards and Upwards"

Hi Paul

IT took me a long time to get Slim to claim benefits,his thinking, was he was retired.he would not get anything.
All though it was costing us a lot of money on petrol, parking,and general things that I would not normally buy,all his clothes were to big for him,plus lots of extra washing,not to mention the carpet that was ruined.

I…[Read more]

Hi Tina

Am sorry to hear you are having to delay your treatment 🙁 because if you are like me I want it all to start "Yesterday" but am sure its for the best, get shoulder all better then you can start again 🙂

Good Luck and roll on April 11th, its not long now xxx

Love

Hi Nicola

First and formost am with you on the Wine "Red" and next I know its hard to see a loved one feel and look ill its not good to watch, but on the bright side we have a lot of people on here that went to nearly bottom then something that was tried kicked in and worked as Dai says Keep your Dad as strong as you can and keep dad as…[Read more]

Hi Mavis
Lets hope this is just a blip and your BMB and your test comes back negative,Giving your condition you will not go on the intensive pathway,so should have a break in treatment.Slims has injected himself for over 6 months,because of blood clots,so you will soon learn

He did not loose his hair,but it got very thin,and blocked plug…[Read more]

Hi Shirley
Just replied to a post on treatment you might be able to answer a few questions???? sorry to put this on you .Eve

Hi Penny

First may I say I cannot help you,but I have replied to boost you up to the top again ,otherwise some post get lost

I think I am correct in saying Shirley has had one from a sibling and there are a few people in the process,I know Shirley does not post much,so look out for a girl in a cowboy hat LOL.I think she is based in…[Read more]

Hi Mavis

Well am sorry the Honeymoon is over.

I was on CDT prior to my SCT, so Bad news is it made me tired and weak:-/ Good News It was the start of putting me into remission:-D (still no hair loss) then SCT I had that December 2009 it was OK Ish?

Would I go through it again? well it has to be a big yes. oh and lost my hair when in…[Read more]

Hi Chris
Congratulations on your forth coming wedding,you can say one thing about this B—-y Myeloma,it does put every thing into perspective.

Slim and I lived together for 30 years decided to get married before mm came along just never got round to it,finally set a date,but never made it as he ended up in ITU,so are marrage took place in…[Read more]

Hi Dai
Thanks for that info I have had a little bit of dicomfort on my shoulder but I put that down to doing too much and or sitting in a drafty room at work ?

And re your new? treatment I have said before if anyone can do it your the Man 😎

All the best Dai
Tom "Onwards and Upwards"

Hi Valerie
Not sure how I missed this post?

But am Pleased it is getting sorted out, have a great time in Venice (Am jel)

Love Tom "Onwards and Upwards" xx

Hi Chris

Pleased you are doing good (well as good as we can be) The blue badge is a godsend saves you money and park nearer to where you need to be (cept in Scunthope General Hospital).

I tried to get something from the State and all I got was £63 per week and when I went back to work after a few months I got told by tax man I owed them…[Read more]

Hi Dai

The frozen shoulder being a new area of MM can you throw more light on that for me please as I have discomfort rather than pain in my right shoulder (lol i hade to check which side it was on L/R lol)

I hope you dont suffer too much on the early days of your treatment.

I dont kow if you buy water I used to as our water aint that…[Read more]