Hi Sylvia, Thanks for that and yes am sure we do want to hear about the Good results, and my treatment is not that new or strange, i was on CDT for about 5 months and during that time I was taking about 49 Pills a day :-/ then went on to Stem Cell Transplant and walla I found myself in Remission and now drug free, Sylvia dont ask me what my PP's…[Read more]

Hi Eve Thanks for that 🙂 Lose me cos am fit not on your nelly am here to cheer you all up and wait for more to come round to my First class condition (your words not Elaines btw ha ha) as for Face book who else is on your contact list as I aint found you? do you have a photo on it?? here is a link to mine I think lol…[Read more]

Good Luck with your P Dai and hope you soon get told you can have what you want and need. Keep up the good work Dai and dont spill ur P

Tom "Onwards and Upwards" x

Hi Jean

I would take a run up to A/E and get it checked out best be safe than sorry
I did with my arm told them am not sure what I have done but I have MM and would like it Xrayed they were brill done me first in and out in an hour 🙂
Good Luck and hope its soon sorted

Love Tom "Onwards and Upwards" xxx

Hi Gill and Stephen

Sorry to read bout the chicken pox, we have just had two grandsons down with it it aint good but worse in the nether regions (double bless)

Hope all better soon xxx

Hi Dave a warm welcome to the site, pleased you found us, only had one SCT and just a mere Baby at 56 😀

Good Luck with whatever you get 🙂

Tom "Onwards and Upwards"

Hi Tom,
I am so pleased for you.I hope we are not going to loose you,now your fighting fit and officially stamped to be first class condition.:-(

We need more people like you on this site,to tell us the good side,it gives a lot of people hope,so don,t think about loosing us,still cannot find you or your breakfast on FB,or Mins.

Love Eve

Hi Tina
My husband was on the myeloma X1 trials had 6 cycles of CDT with a few hiccups in between,It is a 3 week cycle of tablets which you will take home with you nurses will go over all the tablets with you,there will be extra tablets to stop you feeling sick plus others.You need to write out a chart or get a dairy from Ellen its a must for…[Read more]

Thanks Jean yes I am well we are over the moon to be Drug and bleach free Lol And Long may it continue as you say xxx

Hi Bridget, Am sure you are correct we all need Good news as we travel along the MM route to remission.

And Jo Many Thanks for the BIG Hug ((hug)) and you know am sending one Back (((((((HUG))))))

And Dai am real pleased I…[Read more]

Hi Tina

Cant offer advice as I have never been on a "Trial" but wish you Luck, I have had SCT in 2009 and will say it has been worth it 🙂

Love Tom "Onwards and upwards" xxx

Aww Bridget

You are in the wars aint you bless. its a bugger to have this keep popping up, its great to have had it all done on the same day as its over and done with but am sure they could have found you a side room so you could dribble in peace:-D I hope the cold/fever and shivers you had are not the onset of flu?

Hope its soon sorted…[Read more]

Hi Bridget
Sorry to hear your having a hard time,i can understand you not wanting to go back another day for treatment,but all that time at hospital must have left you exhausted:-S lets hope it works.Eve

Hi Terry

Am pleased you got them little blighters out but am sure 6 wont be enough for two SCT? but hey ho you never know.

I found it strange that you had to make your own way to hospital?? I went into Scunthorpe General and had my Femoral Line fitted, stayed in Hospital over nite and was transported to Leeds (seacroft hospital) by Car and…[Read more]

Hi Everyone

Thanks for the info Ellen,I know this is a complicated complaint,but hope you understand how lack of knowledge does not help the patient.
Good luck Dai with your bottle,!!!
Hi Min no holiday yet,as have had a number of hospital appointments,hoping to fit a cruise in before May,looking good.
Min believe it or not if Peter is like…[Read more]

Dear Min

Well I wish you Luck and i thank you for being My Online Friend for a long time, I loved your strenth I also loved your Compassion and care to us all I for one will miss you on here with your kind words of strenth and Care.

I understand your reason for needing to leave the site and I send you on your way with a great big Hug…[Read more]

Hi Jill
My husband has just finished a course of Velcade which he found ok,except for the hospital visits at your mums age they will only do it once a week,but first it,s blood then velcade and it can be combined with her Zometa so one less hospital visit. It does depend on what hospital you attend some can do the whole process under 2 hrs.some…[Read more]

Hi Dai
Min is right about less liquid needs to be day before 24 hr bottle.!!!!

If I am correct Dai you have Kappa Light Chain like Slim,so bloods do not detect it and urine is the marker,so as Min says how do they know you have it back,have you had a MRI scan or BMB,if its showing in light chain test it has to be going through the kidneys…[Read more]

Hi Vic
A warm welcome to the site.

Sory I cant add anything to your Q re Kyphoplasty as i have not had it, done the 5 cycles of CDT then Stem Transplant.

Good Luck in your road to remission, and some one will pop on and give you the information you ask

Keep strong

Tom "Onwards and Upwards"

And may I say its a great photo, you look "Posh"

Love Tom xxx