Hi Craig

Well I am shocked,sorry you have to get people on board and start ruffling a few feathers,if you cannot get help from macmillan nurses go to local papers specially now as the lords have just thrown out a bill concerning disabled people.

No one gets Myeloma over night,you have to get your doctor on board,to put it bluntly this is out…[Read more]

Hi Craig and Etta

Sounds if you have been through the mill a bit,I can only tell you Slim was in this position,in may last year,in a wheelchair,at this present moment he is out walking the dog.!!!!!

As you say with food a little and often,as much as you can Slim has now put on 1st 8ib,after loosing 4 st.so getting there.I found buying small…[Read more]

Hi Everyone
Well the garden of England has become a white garden over night.

Woke up and the ground is white and the sky dark grey plenty more on the way.Hard to say how much has fallen as its drifted and looks lots in some places.Eve

Hi James
Welcome to the site.
It,s my husband with Myeloma,he is in remission after ctd then vcd,and going to Kings this month to see if sct is possible,because he is on Myeloma X1 trials,he will be randomised either for treatment or no treatment.

At the moment we do not think SCT will be the solution,as his lungs were damaged with pneumonia…[Read more]

Hi Bridget

Well it is the 4th and snow warnings are out,very cold with wind,but no snow,it would not surprise me,if this little corner misses it. Eve

HI jet
You have hit the 3 F???,see if you can work it out with out my help????

before you hit 50 the 3 F was something different.

Eve

Thank you all for replying

Slim has finished Velcade,but the complaint went in before we new he had remission,but that does not matter I am concerned for people who come after us.I wish I could put the hospitals reply on here,but I cannot not,but reading between the lines,it does not pay to go on trials,you will spend more time in the…[Read more]

Dear Roisin

I am so sorry for your loss, its a bugger of an ilness this MM.

I send My Condolences to you all at this sad time.

Love and Hugs Tom xxxxx

Hi Graham

Just to let you know I was diagnosed in Jan 09, that was after I went to see my GP in December 08 with what can only be described as I felt that I had a rolled up towel under my lower eib (left side) I felt no pain or any distress apart from the feeling that I had a "Fat" Lower rib :-S

To cut a long story shorter (I hope) after…[Read more]

Hi Marion

The reason I mentioned cc club,is lots of there places have lodges now,so no roughing it.We have a motor home and there sites are good.Follow you own needs,do not worry about your drugs,I am sure any place will help you.

Have a good holiday Eve.

Hi Marion

Just to answer your query ,I use to have a B&B,and have had all sought from guest in my fridge and freezer,most will help you out just ask on booking,if they say no,you would not stay anyway.
What is Aranesp EPO!!!!!!

If you like the Camping,have you thought about,booking through the Camping and Caravan Club,I would look at there…[Read more]

Hi Cinzia from Australia

I found you post in the middle of old post,so people might miss it.If I was you I would post on related illnesses more people will see it,start your own posting:-)

Any way welcome to the site,every one on here will help you all they can,there are people from different countries,so do not feel like an outsider.

I…[Read more]

Hi Bridget

Sorry to hear your right arm is starting to go haywire lol yep they (laptops) feel like our right arm at time oh and my mobile lol. a good computer repair shop might have some second hand ones for you.

And I am saying nowt on the home painting and wallpapering except my young bride (Elaine) is one top notch decorator 😎 and she…[Read more]

Well you two aint we done well 😀 reading this today has made me warm and smiley on this cold dank Sunday (sat here on my own) and long may it continue to get better:-D

Love and Hugs to you both (((h)))) xxxx

Tom "Onwards and Upwards" xx

Hi Sarah and Henry

A well done on the collection 😀 I also done mine in one sitting 😀 and enough for two transplants 😎 but and its a big but they put them into THREE bags :-/ yes three so one bag isn't enough so they gave me all three bags and that as you know leaves nothing in the bank (lord i know how that feels lol) but hey ho am sure I…[Read more]

Hi Carol

Am pleased to read your Xmas washectic 😀 yep ours was also, what with three sons with wifes/Girl friends and 5 Grandchildren aged from 10 months up to 8 years it was bedlam(in a good way lol)

Good Luck for the stem cell capture and hope its as good as mine was (enough for two on the first sitting) but at the bagging dept when…[Read more]

And I also it has made me smile in many of your thoughts he he.
Keep up the Good Fight and keep on Prattling 🙂

Tom "Onwards and Upwards"

Hi Everyone
I know what your talking about Bridget with computers,hated them when I was at work now I could not survive with out one.my daughters use to give me there old ones,bit slow but worked last year got my own lap top,this year I Pad,Slim uses that more because it,s not heavy and good for games.

I am decorating the bedroom at the…[Read more]

Dear Chrissie

I am pleased that it was a beautiful funeral for David and you were surrounded by good family and friends, Its such a sad time ans I for one always am not sure what to say but am sure the words of comfort and Love that you have and are getting is a great help to you at this sad time.

I send My Love and Hugs to you and your…[Read more]