Hi Heather

For me staying employed and being on Sick was for me a Goal I had, to get better and back to work to show myself I can and will do it (am a stuborn cuss lol) it warked and I went back after a year off on Light dutie's still doing those "Light Dutie's" and to be honest am getting ready for giving work up 🙁 dont get me wrong the…[Read more]

Way To Go, way to go, wayyy to Goooo, that Slim and Eve, wayy to Goooo And a great BIG WELL DONE from me and the Young Bride (Elaine)

I know for you both its been an Uphill Strugle 🙁 but as I always say "Onwards and Upwards" and you two have proved it can be done 😀 well done to you and your Team 😎

As for the SCT Eve I had mine in…[Read more]

Hi Everyone
Thanks for your wishers,I know it,s just the start,but to us its a light at the end of a very long tunnel.
We will go to kings,and see what they offer on SCT but we know how the consultant feels,but as he said Kings do hundreds and they are the experts.

We are still piled up with appointments so no travelling yet,hope to be able…[Read more]

Hi Bridget

I think you would be good as our resident expert on financial matters on this site,at our hospital there is no information except a notice board note telling you to get in touch with macmillan office.I tried this when Slim was in hospital,never received a reply,made me so angry it put me off trying.
later applied for,some…[Read more]

Hi Heather,
I have to ask where have you been,no insult,but people like you can be such a help on a site like this,we know from other people the NHS are not the best when it comes to there own staff.

If you want a honest answer from me,both of you retire as soon as possible,
I know what you are thinking,it,s not about money it,s your quality…[Read more]

Hi Pilgrim
I would agree completly about banks,many many years ago,I was desperate,saw my female bank manager who had so much faith in me,these days its computers or the legal department full of kids out of uni who decide you fate.God Help US.

Its just having the energy to fight the battle,when you have enough to worry about without banks…[Read more]

Hi Glen
My name is Eve I know Clatterbridge ,good hospital for Cancer,going back years live in the south now.

It is a bit of a shock to the system,CTD is the first chemo ,never heard of PAD but there again my husband is on Myeloma X1 trials so next chemo was Velcade,but it is a bit of a post code lottery.My hubby is still trying to get…[Read more]

Hi Kay
Sorry to hear you think its,back again,just wishing you good luck for tomorrow,Slims in the same boat except he has never had remission,tomorrow we find out if the second lot of chemo Velcade has worked,I try not to think to far ahead,as we have been here before.
Hope all goes well Kay,best wishers Eve

Hi Nicola
I know its hard but may be your dad is better off at home,you do need that home visit to asses how much help is needed,you do not say if he has a carer who can provide a good level of care.

I know what hospitals are like,the nurses just do not have the time,My husband spent 22 days in hospital 9 in itu,I spent 12 hours a day there…[Read more]

Hello Pilgrim

I think you have done the right thing finding out as much as you can,Myeloma is sometimes very hard to diagnose,and often gets over looked as a cause for some ones illness,at least you have a good GP who has taken note of what you have said and acted on it.Many people get over looked until there bones start breaking then the…[Read more]

Hi Nicola
Sorry you had to join this site,as for help no one would be able to help with so little information,may i suggest you ring Ellen first thing tomorrow.

Why have they sent you father out with out.with out some form of back up,How an earth are you coping ,what medication is your dad on,lots of questions,please ring Ellen, Eve

Hi Heather

A warm welcome to the site:-D I had my Transplant in Dec 2009 so I make that just over 2 years Post Transplant?

Diagnosed Jan 2009 went on 5 cycles of CDT then stem Transplant dec 09 but went on sick may 09 for a year back at work (Lidutiesie's) may 2010, just started doing a little bit of my old job (forklift driver/Pendant…[Read more]

Hi Chris

Well am pleased you are getting the posts 🙂

After reading your nutro pp and stuff am none the wiser Lol shamed to say I have left all that stuff to My Dr's so far and it works for me 🙂

Keep on keeping strong and its grewat that the Family Nag you when you do too much.

Catcha Lata

Tom "Onwards and Upwards"

Hi Chris
Just thought I would pop on and see how you are doing? Hope these are not going into your "Trash Can" Oh ? if they are you wont be able to read this one then will (am a silly billy)

Tom 🙂

Dear Mari
Glad to hear your Christmas was good,Slim slept through most of Christmas,but it was still better than last year,wish I could get back into reading,to be able to stop thinking about this myeloma.

No Slim did not have sub cut,when I asked about it,was told it was effecting some people,also has not come to our hospital yet!!!!!
Its…[Read more]

Dear Michelle

So So Sorry that the Bloody MM has fought off everything and left you and your Husband in Limbo.

Its a Bugger that you are both waiting for a trial to start? lord knows why they dont start one for you NOW ? am sure it wont harm but it may help.

Keep strong the team will be having talks about the what next treatment at the…[Read more]

Al Match you with that Dai you and I and also many others have great Partners (dont like the word carer)

So al say Happy New Year to Elaine and all the other Partners out there helping and coping Bloomin well.

Love and Hugs to you all xxxx

Hi Linda and Pete

Like the others A warm welcome to our little group.

Yes its a daunting thing being told you have MM then told it is a Cancer:-( but take notice of the new treatments that are on the way every month we seem to hear about this and that new treatment

May I just say never ever feel guilty about your tears or feeling down…[Read more]

Hi you all

I forgot to answer this one he he.

As for me I used to (and am sure it will come back) have a great memory and after noticing that I would forget things I asked My Cancer Nurse (Helen) and she said it is "Chemo Brain" it says it all realy :-S make me better:-D by giving me stuff that makes me forget I was poorly:-0 Cant beat it…[Read more]