eve replied to the topic need a chat in the forum Newcomers 14 years, 2 months ago
Hi Jenny
I would agree with most of your comment concerning team approach,from what I can gather they have a meeting on Fridays were individual cases may or may not be decided on and then you have to fight your corner.
If you go in to my profile,you can e-mail me personally as I feel when you are dealing with individual consultants its better to…[Read more]
eve replied to the topic There is tough and there is tough in the forum End of Life and Grief 14 years, 2 months ago
Hi Bridget
It did not seem a trauma at the time,more unbelievable,Slim was ready to let the whole thing go,but looking back he was already in a great deal of pain because he was wrongly diagnosed.
As I was not married to Slim at the time there was only so much I could do,his mum was a very difficult woman,she seemed to upset anybody in here…[Read more]
eve replied to the topic There is tough and there is tough in the forum End of Life and Grief 14 years, 2 months ago
Hi Everyone
I like the thought of bringing loved ones home,as a child I remember my nan in the parlour,it seemed very natural as a child.
A year September Slims mum died,we had taken a funeral plan out in case we were in nz,as he is an only child we wanted all the arrangements done in case we were away costing £3000.
She was in care and a…[Read more]
tom replied to the topic Happy Birthday To My Stem Cells in the forum General 14 years, 2 months ago
Thanks Folks My Stems say thank you 😀 and Amelie am sure my Cells said the want Red Wine or Vodka rather than Cake He he. And All of them say Thank You Sue xxx
tom replied to the topic Support group xmas dinner x x in the forum General 14 years, 2 months ago
Hi Shirl
Am Pleased you are getting better though slightly over cooked lol.
Am sure Stephen wont mind doing the bits and bobs, Keep Good and stay strong
Love
Tom "Onwards and Upwards" xx
tom replied to the topic Might be my last Zometa in the forum Treatment 14 years, 2 months ago
Thanks Folks am gonna be well chuffed if its true 😎 as am fed up going on the vein Hunt :-S Lol
Tom "Onwards and Upwards" xx
eve replied to the topic There is tough and there is tough in the forum End of Life and Grief 14 years, 2 months ago
Hi Mavis
Thank you for your reply,must admit did not realise were the money went concerning,the burial fee.
I hope your not offended with any of my comments,it is just a general observation,I seem to be hitting funerals a lot lately,at an age were you go to more funerals than weddings:-S
I do envy people who have a faith,as it must be a great…[Read more]
tom replied to the topic CHRISTMAS in the forum Off topic 14 years, 2 months ago
Yep Jean looks like you are the first for the snow this year?
And am pleased with the photo's also am one proud Dad and Granddad that cant wait for Xmas (honest am worse than a kid lol)
Love (snowfree) Tom xxx
tom replied to the topic Happy Birthday To My Stem Cells in the forum General 14 years, 2 months ago
Hi Roz
And My Stem Cells say Thank you for your Birthday wishes 🙂 xxx
tom replied to the topic Every Single Day in the forum Off topic 14 years, 2 months ago
Great Song Dai, and Bridget you dont know what you are missing not having speakers 😀
Tom x
tom replied to the topic CHRISTMAS in the forum Off topic 14 years, 2 months ago
Hi Eve
Well it aint snowing here in Sunny Scunny and it aint sunny neither Lol.
Our Tree is up and ready Grandkids (Kaitlan, Jack and you all klnow Baby Max 🙂 helped Grandma put it up 😀 see photo 😎
Aw bless eve you know the young bride overlooks a lot of my little hiccups bless.
I never stand in queues but am sure thats just a man…[Read more]
eve replied to the topic CHRISTMAS in the forum Off topic 14 years, 2 months ago
Hi Everyone
We have snow some were,according to the weather forecast,it,s not in my little corner.
I think it,s time to find the Christmas decorations!!!!
Tom I think you have survived two dish washers,because there is so much more to you,that your young bride,over looks the little hiccups.:-)LOL
I love Christmas,but it does bring home,how…[Read more]
tom replied to the topic Revlimid and fluey aches in the forum Side-effects 14 years, 2 months ago
Hi Debs
Well as you know am 2 years post SCT and since SCT I have suffered more coughs bad chests and flu (ish) symptoms way too often But all X rays and ultra sounds are clear8-) so I think its a case of keeping an eye on it for ever more :-/ and yep it does wear you down :-S.
Good Luck to us all this winter and lets hope its a warm and…[Read more]
tom started the topic Might be my last Zometa. in the forum Treatment 14 years, 2 months ago
Hi all
Well am told that this next Zometa infusion might be my last as I will be over two years post transplant when I have my next one on the 22nd December.
If thats correct (will have to wait till then to get it confirmed) then that means I will be Treatment Free 😎 and hopefully my visits to see the Dr will be extended 8-)…[Read more]
tom replied to the topic Lesbians (and gay men) with Myeloma in the forum General 14 years, 2 months ago
Hi Jo
Yes its great news (but i was always expecting a good responce 😀 )
And My Stems are I are in for the long haul 😎 oh and dont mention Bambie lol
Love and Hugs
Tom "Onwards adn Upwards" xxx
tom replied to the topic Happy Birthday To My Stem Cells in the forum General 14 years, 2 months ago
Good Morning Shirl's and Bridget
My Stem's thank you for the Birthday wishes 😎
Shirley I hope ur doing well I know at my first year I was still a bit rough (ish)still way too tired, but here I am two years on and still get tired but I thinks thats an age thing now Lol.
Bridget, Elaine (my young bride) hasn't made a cake since you could…[Read more]
tom started the topic Happy Birthday To My Stem Cells. in the forum General 14 years, 2 months ago
Today My Stem Cells are two yep two years old:-D
And for that I thank all at Scunthorpe General and Castle Hill, my Family and Friends and that include all you My "On line" Friends.
Now lets roll for the next Birthday that my Stem's are going to have.
Tom "Onwards and Upwards" xxx
tom replied to the topic Lesbians (and gay men) with Myeloma in the forum General 14 years, 2 months ago
Hi Jet
Well explained 😀
Am pleased you are doing Ok, as for the tired bit well am Post Transplant two years today (happy birthday Stems) and still in remission but still get tired still get tearful BUT I think I was like that before I got MM lord I could cry at "Little House On Prairie" lol:-D
Good Luck and wish you a Long Remission…[Read more]
eve replied to the topic Treatment failed in the forum General 14 years, 2 months ago
Hi Claudette
I am so glad you posted to Chrissie,and I am so glad I read your post,one because I hope your post gives Chrissie some strength,and two you have made me realise once Slims not on the trials any more we will be able to travel again in our campervan,go back to are way of life.I know I should just be grateful that he is still here ,but…[Read more]
eve replied to the topic PROGRESS SO FAR in the forum Treatment 14 years, 2 months ago
Hi Bridget
Glad the treatment is not to harsh on you,how many cycles will you do before you have test to see if its working????
I agree with you about the blood test,the only thing that convincers us now is BMB,Slims blood results have always been good,and kappa lightchains do not show true readings. Slim does not mind BMB just finds it a little…[Read more]