eve replied to the topic It was only a transfusion…. in the forum Carers 14 years, 2 months ago
Hi Chelle
We all have days like that,because you get desperate for something to work, I must admit to being a pill popper ,mainly to keep my emotions under control,It cannot help your husband to see you so upset,so my advice is go and see your doctor,get some help,because you have to be the strong one at this point in time.
I am sure other…[Read more]
eve replied to the topic Blood Clots in the forum Side-effects 14 years, 2 months ago
Hi Helen
It does seem worrying at first,but as soon as you mum starts the injections she will improve.
Slim had a mass of blood clots in lungs,no one realised as he did not get out of breath,plus holes from damage with pneumonia.He has been injecting himself for over 6 months now and we expect this to continue for some time.
If you put a word…[Read more]
tom replied to the topic Keeping up appearances in the forum General 14 years, 2 months ago
Gosh Lol are all you Ladies ganging up on poor Slim (pluck im when asleep) but the best way to do the Brows is to wet them and comb them Upwards and trim the long bits off and their you have it a nice set of brows all tidy and neat 😎 and am sure Slim will love the new look 😎
But if you do go down the road of waiting while Slim is asleep can…[Read more]
tom replied to the topic another newcomer! in the forum Newcomers 14 years, 2 months ago
Hi Carol
Yep I think we all know about the days weeks rollinginto one 🙁 its a shame realy but when that has happened we have lost a lot of the bad bits also 😀 and thats a good thing.
As for the Grandkids we decidied not to tell ours as it wont help them or us BUT they noticed when Granddads Just not right? they dont say anything till a…[Read more]
tom replied to the topic Keeping up appearances in the forum General 14 years, 2 months ago
Oh Eve you made me (and still am) Laugh out loud aww poor Slim he he, I remeber My Transplant and that made mine fall out and one of the Nurses cut it short:-0 short:-S but it was still "Moth eaten" so when I got home the first thing I did was take the shaver to it and took it down to Raw Wood yep a male Sinead :-S only hair I had was Eye…[Read more]
eve replied to the topic CHRISTMAS in the forum Off topic 14 years, 2 months ago
Hi Sarah
I live about 40 min from you,and Deal is frost free,on are way to Canterbury this morning you could see frost in the small villages low down of the road,but otherwise this little corner of England tends to have French weather.
I am glad you are going to have all the family,its so important the first year,if your worried about the out…[Read more]
eve replied to the topic SCT in the forum Treatment 14 years, 2 months ago
Hi Only me
Just to try and give you a little bit of support,i cannot help you as Slim has not had SCT,but am posting to say people who have been in your mums position,say it,s worth it in the end so hang in there,this post should take it back to top and more people might see it and reply to you.
Good Luck Eve
eve replied to the topic Keeping up appearances in the forum General 14 years, 2 months ago
Hi Everyone
Well last night I did it, could not look at the moth eaten man any longer,so decided to get my scissors out,he moaned all the way through it,told him he was lucky I did not get the dog clippers out:-P
Have cut Slims hair very short to give it more body,he tells me,when he was a marine he never had it so short,think he is telling…[Read more]
eve replied to the topic another newcomer! in the forum Newcomers 14 years, 2 months ago
Hi Carol
That,s wonderful news about your family,very hard on your daughter to make that trip,but she is so far away and the worry must be awful.:-S
My daughter could not get over how Slim looked so ill!!! but saying that has now put on 1st 8lb and looks so much better has his bad days when he tries to do to much,:-( but is OKish.
When Slim had…[Read more]
eve replied to the topic CHRISTMAS in the forum Off topic 14 years, 2 months ago
Hi Jean
It sounds if you are going to have a wonderful long Christmas,make the most of it,as the family get bigger they start to scatter,so make sure you have a wonderful Christmas.
The weather here is beautiful,as long as the sun is shining ,we go for at least 2 walks a day having the dog,and for the end of November it is wonderful.
I have…[Read more]
tom replied to the topic bad news 🙁 in the forum General 14 years, 3 months ago
Hi Gina
Just wanted to ask how things are? I know it will be a busy time for you all, but this is just to let you know I am thinking of you all.
Love Tom xx
tom replied to the topic Support group xmas dinner x x in the forum General 14 years, 3 months ago
Hi Shirley
Sorry to hear about your Lungs re GVHD BUT am pleased you had a great time at the groups Xmas Dinner and the moral of this one is Get out Often and eat good food with good people it always helps 😀
Love
Tom "Onwards and Upwrds" xxx
tom replied to the topic Keeping up appearances in the forum General 14 years, 3 months ago
Hi Helen and the rest of you young Ladies am sure its an awful thing to happen to a lady during and after treatment 🙁 as for me when I lost ALL my hair (cept eyelashes) it was the only time i looked poorly and that I didn't like as I dont class myself as being poorly I class it as My Today Challenge He he, and that works for me am honestly…[Read more]
eve started the topic CHRISTMAS. in the forum Off topic 14 years, 3 months ago
Hi Everyone
28 days to Christmas,does it feel like it ? have I started doing any shopping ?,the answer is no.I do not know why,as I enjoy Christmas although we are usually abroad for Christmas so it is less hectic.8-)
Last year Slim was so ill he could not manage the starter so dinner never came,this year we are going to my daughters home,and I…[Read more]
eve replied to the topic Plasmacytoma in the forum Related conditions 14 years, 3 months ago
Hi Everyone
Plasmacytoma is treated with chemo unless it causing damage to spinal cord,Slim has tumour on spine plus lesions on shoulder blades and skull,when I asked about how long he had,had it,and what stage it was at,I was told,the do not do stages any more and they considered when it became painful was the start of it!!!!!
I can see why…[Read more]
eve replied to the topic About As Off Topic As You Can Get 3 in the forum Off topic 14 years, 3 months ago
Hi Everyone
DETRIMENTAL leaving TAL
Eve
eve replied to the topic Keeping up appearances in the forum General 14 years, 3 months ago
Hi Everyone
You do make me laugh Tom,Slims hair looks a bit moth eaten and he has not had SCT,just 11 cycles of different chemo,but cannot complain it is starting to do the trick.
Helen it is so nice to hear you so cheerful,I thought I would mention a few products that might help eg: Polytar from boots, it help with itchy skin,.Aqua cream you…[Read more]
tom replied to the topic Where Are You ? in the forum Off topic 14 years, 3 months ago
Hi Jo just sent you an Email and it has a .dot missing t.lappin1@ntlworld.com hope you get mine Jo and will hear from you soon
Love Tom xxx
tom replied to the topic Keeping up appearances in the forum General 14 years, 3 months ago
He he what did the poor hairdresser say? I remember my older Brother going to a "Posh" Barbers to have his haircut and the Hairdresser said "Is Sir chewing Gum?" and my brother said yes I am so the Hairdresser got some tissue and offered it up to my Brothers mouth and asked him to "Spit it in here I cant cut your hair properly if your chewing as…[Read more]
tom replied to the topic REPRIEVE AT THE ELEVENTH HOUR in the forum Treatment 14 years, 3 months ago
Wow and a well done to you Jo, bet your pleased you have a consultant that aint that hot on Paperwork or you would have started it all for nothing.
Keep your "Partial Remission and make it into a complete one, you now have Josiah. to help
Love and Hugs (())) sent
Tom "Onwards and Upwards" xxxx