Hi Gill
Well at least you are getting there,I know you said there was a good local doctor,who new about Myeloma,so that must be helpful if any thing goes wrong!!
How will travelling affect being on RCD????

We did have a week in Canterbury site as we had so many hospital appointments between us,it was cheaper and easier than travelling for…[Read more]

Thanks again for all your wishers,yes I did over do it a teeny bit!!!,i had Slims share as he does not enjoy a drink!!!.
He over did it by not resting enough,found all this energy,and paid the price on Sunday after the walk,has been sleeping most of the day and night,making up for not sleeping well on Velcade.
2 week of 5 cycle this week.
On…[Read more]

Hi Gill
RCD is the other side of myeloma X1 trials,Slim got CDT side,but we wanted the RCD,if that makes sense !!!
This is the one JET had and had such good results.As you know people are affected in different ways,but they can alter the dose,It looks if it will become one of the front line drugs for MYeloma but at the moment still a trial…[Read more]

Hi Min

A Warm Welcome Home 😀

I am very pleased you slept well both at nite and by the pool in the sunshine, its Good to chat to Peter and am sure we dont know of any Man that dare to answer back ha ha.

I know your guardian Angels as well as Peter are still looking down on you.

Love and Hugs (()))

Tom xxx

Hi Roz
You are coming up to your own 1 year soon!!,so my thoughts are with you,I have to confess when people say it gets easier!! I have my doubts the loss just becomes more acceptable,but it,s always there,but in time the good memories remain.
I hope you have planned to do something,even if it just opening a bottle of wine and enjoying that…[Read more]

Hi Everybody
I am on a bit of a high at the moment,slept well for the first time in ages.mind you G&T wine an d baileys helped.LOL but feel wonderful this morning and its such a lovely day the sun shining,and everyone seem to be out walking this morning.8-)
Min you were right about not giving up,and with out your support,i think i might…[Read more]

Hi Dad and Abi
Welcome to the site,It is no use telling you not to worry because your world has just been invaded by Myeloma,and your thinking this cannot be happening to your dad.
There is so much to take in,so just try to take it one day at a time,I found it useful to ask friends and relatives to stop phoning all the time,because I was just…[Read more]

Hello Abi and your Dad

A warm welcome to this warm band of MM'ers its a great site as you probably know by now 😀

Your first session with your Dad's Consultant will be scary and might get too much info at the start but fortunatly it will all fall into place as the months flow along.

Good Luck to your Dad on his forthcomming road to…[Read more]

Hi Eve and of course Slim

Congratulations to you Both, Slims Dr's and all the Nurses that has crossed you and Slim's Path a well done to you all.

Keep up the great work and you know that Slim and yourgoodself are an Inspiration to others.

Please see the attached Photo its your own Smily face for you Hope you like it.

Tom "Onwards and…[Read more]

Hi Sarah and Henry

Looking good that Henry is doing well on his 5th cycle 😀

And Sarah Honest it aint no good holding things back, as I tell my Youmg Bride Elaine I might have MM but I aint gonna break so if it needs saying say it 😀 and she now does (should realy tell her i dint mean her to be this loud lol)

Hope all goes well with…[Read more]

Way to go Caz

And I wish I kept some form of notes 🙁 cos i would love to see how I reacted with all my Tabs 😀

Keep it going strong.

Love
Tom "Onwards and Upwards" xxx

Well Dia
Are you doing as you should and listening to your body!!!:-P

Bridget what is it with kids,that its always mums fault,I could write a book about all the things I am responsible for,even to them marrying men over 6ft!!.It seems because I married a small man,they have hated not being taller so I am to blame, LOL.:-S
Any way it,s…[Read more]

Hi Bridget
Good to see you posting,and glad to hear not many side effects from Bendamustine.Sue,s husband who is on it,is not bringing PP down,but again not going up.
As for the apology about inhalers I do not expect one,this is what this site is about information and discussion and we women can talk talk and talk.Eve

Hello Roz
The inhalers work,and you pay a price if you forget to use them!!,When i first started using them,many years ago, I fought it like h e l l big mistake realised it is very much a preventive medication.
My daughter blames me for all her ailments!! even to the point of having big breast,to drip gravy down.LOL. The woe,s of being a mum. love Eve

Hi Dai

Am Sorry you weren't well enough to attend the confrence but am pleased you listened to Janet, and I know that Janet knows best 😀

As for your Feeling Guilty for not attending well you can take a bit more of your Good advise on board for yourself "If need to Rest and dont go out"

Wishing you a speedy recovery and Thank Janet for…[Read more]

Hi Bridget
I have purple and blue one,s
Purple as soon as I get up and last thing of a night preventive
Blue to use any time,but if you use it before a walk or before going up hill,or any time before you do any movement it works far better than,when your chest restricts or a coughing fit starts.
If I forget I pay a price.So I am extra…[Read more]

Hi Dai
Inhalers are preventive,use them before you need them!!!!
I did not reply to your post about the conference,sounds silly but I was angry with you for not looking after yourself FIRST,then I felt guilty because I was the one pushing you!!!! I should have realised you only a male and like most male species do not know when to stop .LOL:-P…[Read more]

Hi Pauline
Good for you,I am a great believer,in what ever you want to do,mine just happens to be camper vans,you could not explain to anyone the kick you get out of it.Have had campers for over 18 years,travelled as far as the Sahara Dessert just wish we had done more,but feel ever so lucky,we did not wait until Slim was 65 as MM took over are…[Read more]

Oh Gill

Do not talk about dentist,Monday spent in hospital to have a tooth removed had to have it done but that was the SITUATION.
Taking pain killers,such a coward I am.

ION