Good thoughts on your next visit Ted 😀

I know how you feel am same everytime I give bloods and am in remission 😎

As for the thread Ted have never counted the posts but am sure it could be a winner He he

Tom "Onwards and Upwards" 😀

91 posts Ted am sure its the winner He he

Hi Min
And you enjoy yourself on your Holls have a good time with Tony, and am sure your computer thing :-S work well when you are on your Holls.

Have a good Time
Love and Hugs ((()))

Tom "Onwards and Upwards" xxx

Hi Jenny

Welcome to our (now your) site and social club?

Good Luck on your treatment and forthcomming Transplant:-D I had mine December 2009 😀 and doing great8-)

Its a challenge each day trying to fight what you used to do? to now what you can do, listen to your body and when it tells you to rest (and it will) then rest.

Love…[Read more]

Hi Mari am pleased you are both calmer and hope you are still same as its been a few days since I have been on here:-S

Love

Tom "Onwards and Upwards" xx

Well done Peter, I have never been to a Info day either ? will I get to one?? Lord knows too much on My agenda but I will try to get to one, you never know I might enjoy it he he.

Tom "Onwards and Upwards"

Hi Sandy

Am pleased you are avin the spots sorted 😎 I had a Rash after my SCT but no one seemed to worried about it and it went away on its own :-D.

After My SCT I never stayed away from people just made sre they had no Illness and I sailed through the Post sc bit.

Love to you all

Tom "Onwards and Upwards" xx

Hi Deedee

How are things going these days? I have not been on for a bit so am just doing a "Catch Up"

Love

Tom "Onwards and upwards" xx

Na then Jim

A warm Welcome to this great site, it has some great folk on here8-)

All I can add is Good Luck M8 as I have not been on any trail, just ctd then stem cell transplant:-D all in 2009 and am a young (ish) 56 😎 Keep fit.

Hi Michelle
Am using one post instead of two (saving Ink 😛 )

I also wish your Dad well with his…[Read more]

Hi Jim
Just to say welcome.

Myeloma X1
Husband started trials February this year,allocated CTD side,did 6 cycles with a small blip in between had septic pneumonia 22 days in hospital not very nice,with hindsight,should have been on Clexany,from day one,this is not automatic,but would have saved a lot of problems with blood clots.
ON trails…[Read more]

Hi Gilly
Nothing surprises me these days,they have got in touch with there legal side before they approached you,I take it this stemmed from a written warning and a consultation,Well to put it bluntly they want you out,
I do not know your circumstances,or how much you need to live,but you can either fight them,but do you need all the hassle,they…[Read more]

Hi Christine
Cannot help you much on this one,except to say,Velcade did create a feeling of anxiety and general accident prone moments,not sure if it was Velcade,but put it down to doing to much and not drinking enough fluids.

Your dad must be feeling pretty bored not being able to do much,and being so young and active,surprised you cannot get…[Read more]

Hi Mal & Bruce
When I first read your posting,I thought,sct with kidney failure,that takes a very brave man,and you are just showing us it can be done.
I am so glad it,s going so well for you and wish you a speedy recovery and long remission:-)
Hope you are both home soon drinking a glass of bubbly to celebrate life.
Best wishes Eve&Slim
PS…[Read more]

Hi Peggy
just noticed your unfinished post,not that i can help you with side effect as Slim has very little,but can offer you some sympathy as its not very nice when these things are happening,
hope thing are a little bit better Eve

Hi Dai
It all ways seem to start at the weekend,horrible,feel you cannot trouble people,and know you are going to end up in A&E fighting your corner,Slim had bloods taken as par usual,but from getting up knows he is not himself,hospital says he is ok,but cancelled any plans for weekend.doubling fluid intake,ankles BIG,and just not himself.cannot…[Read more]

Hi Everyone
David how about Nosology,meaning the branch of medicine that deals with
classification of diseases

How about for OIL

OLIGARCH

love Eve

Hi Dai and Everyone else
I was not sure were to put this post ,and as this topic is included I thought you might like some % of are problems with meds.

As you know Slim did CDt 6 cycles now Velcade on 4 Cycle.=10 Cycles altogether to date.
Out of 10 cycles we have only had the tablets ON TIME twice making that 20% of the time,on the bad days…[Read more]

Hi Debs
We will not be making it tomorrow,left it till last minute,because it means a stay up there or 160 mile around trip,from the coast in Kent and Slim on first week of 4 cycle Velcade.
Been to the hospital this morning,for bloods,and he is just not himself,so tomorrow is out,was looking forward to meeting everybody,but either way with a dog…[Read more]

Hi Mal and Bruce

Pleased his temp has dropped, I used to hate it when I got them 🙁
and sleep is good cant wait til I get into my bed tonight 😀

Love to you Both

Tom "Onwards and Upwards" xx

Hi Dai

Sorry for the delay :-S not sure how I missed this post?? But a Well Done 😀

Am sure the Amoxicillin will throw that dreaded infection out 😉 so it will be an "Onwards and Upwards"

Tom "Onwards and Upwards"

Hi Elaine
Just popped in to say welcome,I am a carer and do not know how i would have managed without this site and all my cyber friends they have helped me so much through some bad times,so its all been worth while.and you also gain so much knowledge,and helps you to know what is going on in other hospitals.
Also what treatments are…[Read more]