Hi Mari
How are things going for Steve and yourself ,its all a bit of wait and see,not a nice position to be in,but it just might be a blip
Hope Steve is keeping fit on the bike,long rides might take his mind off things.As Deb say,s retail therapy is a good thing shops are full of lovely things,might be worth your while to take your mind off…[Read more]

Good Morning Every One
Susannah thank you for information and yes i will be interested on your husbands progress,it,s a good thing for us to know about new trials,and it has to be helpful to you to be able to talk about it openly so I am looking forward to see how things are going,about the Dex on MYeloma X1 trial the dose was reduced on Slim to…[Read more]

Hi Craig
Just read your post do not know if you have looked at the financial side of things,but i found this a great help,just to have someone come in and do some heavy stuff,worth looking into,Slim gets attendance allowance as over 65,but Etta at 54 should qualify for independent living allowance plus carers allowance.It means you can go to…[Read more]

EXERCISE FOR PEOPLE OVER 6O

I,ve tried this and it really works !

Begin by standing on a comfortable surface with plenty of room either side.

With a 5 lb potato bag in each hand extend your arms straight out from your sides hold them there as long as you can.Try to reach a full minute,and then relax

Each day you,ll find that you can…[Read more]

Hi Sue
Nice to hear from you,did not think I would get any replies ,so glad you proved me wrong.Must state from the start Slims is not in this position but I have no allusions,that if the Velcade does not work,which path we will be travelling.
I am not shy,in terms what the future might hold, my attitude is the more you know, the more chances…[Read more]

Hi Ted

Am pleased ur bruise free and am sorry to hear Anne is like me Bruised but pleased its over 😀

The Flu combi lasts one year and the pneumonia one last Ten Years :-/ and yes I asked if it was worth me having :-0 and she said you will be back for another one in ten years 😎 Lord I love that Nurse He he 😀

Tom "Onwards and…[Read more]

Hi Anna
You have come to a good place for Information and support,so may i say welcome to the club.
My husband is on Velcade,with the added complication of not knowing if Velcade is working until bone marrow taken,so bloods is the only way of telling us about his general health I get results at the start of each cycle,and it just helps me to…[Read more]

Hi Everyone
I would agree ,we need to talk about different hospitals and the general treatment we get concerning cancer it does vary from trust to trust also what drugs you might be entitled to depends on were you live.hence postcode lottery.
When you consider that myeloma is only 1% of cancers and bence jones kappa light chains is one of the…[Read more]

Hi Jo
Nice to hear from you, yes in the camper only way I can get Slim away,only going local at the moment,mainly so I can take the car it just a change of scenery takes your mind off things.
Decided to get someone to decorate as if I start it Slim will insist on helping,so clearing thing this week,and going away for awhile,painting and new…[Read more]

Hi Everyone
I can understand how you ladies feel about the menopause,I had it forced on me,they had to remove my ovaries although I was older,Did not like the idea but as I had trouble with one said the other one could get a growth on it,once i got the all clear never looked back,Lot of the tiredness went away so its not all bad,gave me a new…[Read more]

Hi
Nice to see you are doing well Bridget,ans to see that you Sharon have finished your Velcade,just looking at the way people have responded to Velcade, Dai not sleeping you Sharon tired out Slim not sleeping and no side effects,what makes the same treatment re act differently on people.
Waiting till November for a PET scan is a long time,when…[Read more]

Hi Everyone
Yes Dai it is a postcode lottery for treatment ,and from what I am hearing Nottingham does seem to come out tops.
East Kent is lacking lots of things,some patients with other forms of Cancer have to travel as far as Maidstone for specialised treatment around 65 miles one way,A friend of mine had to do it every day for a week,
The…[Read more]

Dear Julie
May I add my condolences to you and your dad.
Thank you for letting us know as so many people just go off site and we never know what has happened to them.
So glad you mum had the passing she wanted in her own home with her family with her,it must be a comfort to you both that your mum passed peacefully.
Kind Regards Eve

Hi Mari

Trust me girl you are and never will be a "Burden" on here or anywhere else 😀

And I am pleased that the pp;s for Steve were looking glum? but hey we all have little blips and need to get them tweaked 😎

Love and Hugs ((()))

Tom "Onwards and Upwards" xx

Dear Julie

Our sincere condolences, to you and your Family at this sad time.

Am sure you will have plenty of great memories to cherish over the coming months.

Love and Hugs

Tom and Elaine xxxx

Hi Terry great Photo you have added and am pleased you are doing Ok

Tom "Onwards and Upwards"

Well you all am all jabbed up both arms :-S swine flu and a double mainstream type of flu thing in one jab and pneumonia in another 😀 but today I feel a ic:-/ cle bit washed out.

Hope you all get your in on time 😎

Tom "Onwards and Upwards" x

Hi Craig

Am Pleased Etta is over the flue symptoms re the Zometa 😀

I am like Bridget in saying Make time for yourself along this journey you will need it.

My Young Bride (Elaine) looked after me when I was going through the Mill with treatment and I insisted that she Made time for herself even on Xmas day Elaine went round Family and…[Read more]

Hi Gina
Nice to hear from you,sorry it is not better news with your mum,how are her lungs,are they any better after the treatment.
It does seem to be one thing after the other,hope she begins to feel better now she has had some blood ,do not know much about revimide except in trials as the other side of CTD.
Hope it works and you can keep your…[Read more]