Hi Andy
Well done on that beer, am sure you have seen my photos on face book from Sunday afternoon I had more than the one started at 12 and went home (was taken home to be fair) at 5.30 ish lol

Enjoy more beer as the weeks go on and I will help you at Scunny lol

Love to you both

Tom onwards and upwards ..

Hi Everyone

As some one who is a carer to my husband,and over a period of 3 years,and going to are local hospital 15 miles plus Kings in London 86 miles,now Royal Marsden in Sutton just on 100 miles,double with return journey I know a fair bit about it.

As Ellen says unless you are on Trials treatment by NICE is adhered too.
If your local…[Read more]

Hey Vicki how did you know I drunk Vodka lol, yes it would be rude to stop at the moment as i feel it has helped in my remission lol.

Tom Onwards and upwards xx

Hi Fiona

Well it is really nice to catch up with you princess lol !!!

It is a hard decision when it comes to an Allo ,if you are on Facebook and go into a private group called UK MYELOMA SUPPORT GROUP, Jet has put up some stuff on Allo plus there is a separate group,!!! So lots of information, Jet had hers over a year ago she only got 5 months…[Read more]

Hi Liz and Kevin

Thank you for your kind words,one of the reasons I posted this was for people to have an incite,because by the time you get to are position,all the upset and fear has gone.i suppose it’s knowing the situation before it’s confirmed,you do not ask,but wait to be told.
The bad thing about that is,since coming off Revilimide the…[Read more]

Hi Trigger

Well I had a sct in 2009 yes it was a bit of an uphill struggle at times but for me it was a doable and you know your Mum better than most, most people differ in how and what they can and do achieve, My SCT gave me 4 year drug free and that I am grateful for .

I have decided to go down the SCT route again as I think as it worked once…[Read more]

Hi Maureen and Ian

Yes a good bottle of red should be on NHS Scrips lol,and I aint got any side effects to speak of cept the Dex and sleep (lack off) so am going to have my week three of Velcade in Morning plus me ten iccle Dex Mates lol, so nearly just over half way on my first four week cycle and doing good

Enjoy whats left of the week end…[Read more]

Morning Andy and (The ever watchful) Steph

I bet its been a long week for you both ?
I hope the Anti B’s have worked for you and those lovely Neuts have got to a point where you can restart your treatment.

You can always get the beer in and invite those that aint Buggie lol.
Stay well my Friend and Steph stay on watch young Lady

Every Day is…[Read more]

Hi David

So glad for you,are the putting you on maintenance ?????

The bloods are good too,just watch out for those horrible DVT,read that e mail,wait till the wife goes out, lol

Seriously glad things are near normal long May it stay that way. Love Eve

Hi Fiona
How are things going!!! Is hubby responding to new treatment,or are you still at watch and wait,because you have not been posting I have lost track a bit,he came out of remission!!!???
Please correct me if I am wrong,the last 6 months have flown by,just when you do not want them too.

You must stop typing and delating response !!! We…[Read more]

Hi Trigger

The best thing you can do is ring Ellen on the free number above 9 to 5 weekday she can answer your questions,the reason I say this is some of your mums information plus yours seems in correct,but I could be wrong.????

My husband has had the following treatment CDT CDV and CDR these are the three chemo,s that NICE allow if not on…[Read more]

Hi Trigger

It is very much an individual choice,and it is your mums choice,I would advice that you get a second opinion ,65 is not old.
You do not say what Myeloma your mum has,or what damage she has,or if it’s effected her kidneys these are very important in any decision she makes.

My husbands consultant advised us to go to Kings and speak to…[Read more]

Now half my post is missing ???????

Hi Maureen and Ian

Pleased bloods are good it’s a step in the right direction, I hope it’s a nice bottle of red you are having

Hi Judy
Yes I do take them in morning about 5am but it still makes me lose a few days sleep to be fair and am sure I catch up on a Thursday lol

Liz and Kev

Yes I am still clocking on so far will continue until I just cant do it any-more ?

Have a great week end you all

Love Tom Onwards and upwards xxx

Hi all

Well I gave had two lots of Velcade and two lots of steroids and doing well at the moment.
Just had the sleepless nites with the Dex then the fatigue at the end of the week so it’s all good.

Carol looks like your doing well with it good on you,

Mavis yes on for another SCT at the end of this treatment it’s what I said I would do to be…[Read more]

Hi David

Revilimid is known to cause DVT ,it will be your consultants approach to it,if you stay on it or not.When Slim was on the Revilimid he was on a preventive does of Claxane 40m but this still did not prevent an artery blockage from hip to knee although he had low platelets?????,

There is a tablet called RIVAROXABAN that does the same job…[Read more]

Hi Grega

I know GCFS injections boost white cells in the blood,if you contact Ellen or Maggi on the free number above they can explain. Eve

Hi Andy

Well done Steph ,I do not know if you keep a BP gauge at home ,but I find this invaluable ,Slim never hits a high temperature ,but his blood pressure goes down,and he is not confused,but there is something not right about him,I have learned this is a prelude to bloods not being right plus,his temperature spikes very quickly,I am talking…[Read more]