Hi Terry
First may i give you a welcome to this site,I am a carer to my husband but you will find lots of different people on here who can give you advice and boost you up when you need it.
I can only tell you about Velcade but others on here have been on a journey with similar problems,
may I say Velcade is not the last resort,My husband was…[Read more]

Hi Shirl
Just seen your post ,do not know how I missed it.
Well stuck in hospital with the weather so lovely out side,no fun and tired up to oxygen ,you don,t have one of those massive tanks do you,or can you get about with a portable one?
I take it the info day was at your own hospital?
anyway at least your home now,this weather is going to…[Read more]

Hi Bridget

How are you today? Hope your Pain is still kicked into touch:-D

Love and Hugs

Tom ((()))) "Onwards and Upwards" xx

Hi Liz and Kev

Hope you enjoy the break next week 😀 and hope the sun stays with us till you have had the aforementioned break 😎

Now those Pesky veins:-S they found one of mine first time 😀 last Thursday so was thinking its an in and out today:-D but my records were not at the day ward so I was sat with just having a fluid drip in…[Read more]

Morning Nettie
Well prayers said for you today so now you know you aint on your own the Lord is with you (hope he aint scared of heights:-S )

Love
Tom "Onwards and Downwards" xxx

My word is

QUESTIONABLY

Leaving BLY

To me this is what life is about at the moment:-) Eve

Hi Min
Lovely to hear you are posting again,so worried for you at one time,knowing daughter lived away and son at sea.
I have thought about starting a support group,but it would not be practical for me personally.For a start no way would Slim go!!:-P,Have been trying to get him to go to London,but no go!!!!!
He is a very self contained…[Read more]

Hi Peter
Thanks for replying,its just interesting the different ways Velcade is given,and with different drug combinations,and how effective it is on different MM,:-S
You are the first person I have heard from who was on Velcade and 3 years on is alive and kicking,half the problem is I am 80 miles away from a support group and this is a life…[Read more]

Hi Ellen
I have been posting on here since February this year,and found some thing I believed did not exist(cyber friends),so yes I mourn their loss,it also brings it home,this is going to happen to me.:-(
I would have loved my husband to have sailed through this horribly treatment,and come out the other side,like Jet,who only wants positive…[Read more]

Hi Ellen

Thank you for kicking off this difficult subject, but here is my thoughts::::

I am the one that has MM and am helped by My Wife, three sons, three daughter in laws and five (soon to be six:-D ) Granddchildren, and yes we "My Wife and I" talk about "end of life" and yes Elaine said she would look forward to the help and advice that…[Read more]

Hi Wendy

Am sorry I cant help you with this one all I had was a SCT and nothing else talked about? but am still in remission some 21 months ago and am still doing great 😀
But am sure you will have some one nip on here and help in the answers you need.

Good Luck in your recovery from your transplant:-D

Love
Tom "Onwards and…[Read more]

Hi Shirl

Sorry to hear you are having problems with GVHD, I was given a card to tell Dr's that I could suffer GVHD but to be fair never thought (nor asked) what could happen re the GVHD thyat I carry a card for:-S (yep am a numpty)

You sound like you are doing Ok with it ?

Love and Hugs

Tom "Onwards and Upwards" xxx

Hey that nutter nettie

Way to go girl 😎 but can you have a web cam fitted so as we can hear the scream as you throw your self off the bridge (sumit wrong wi you lol) but as a RC I will be sending My Prayers8-)

Love
Tom "Onwards and Downwards" xxxx

Now this must seem silly to you all:-0 but am sure I posted on this one before:-S now if i did where has it gone:-/

Aww well here it is again?

Thanks for that Carol, its great to hear stories like this one 😀 warms the cockles of my heart, when you next see your "Young Chap" please give him my regards.

Love

Tom "Onwards and…[Read more]

And a Well Done from Me David 😀 and long may it continue 😎
Would I know if mine is exotic:-/ No am sure i wont lol.

Have a great break from treatment and Doc Visits 😎

Tom "Onwards and Upwards"

HI Min
So glad you are coming back to us,and so glad you have taken that first step,from reading your mail,I think you are a very strong person,and for awhile you worried me wondering if you could get through that black tunnel and see some light at the end:-),Grand kids,are a tonic,just what you need.

As for cars cannot help you,me personally…[Read more]

Hello Peter
Welcome to the site I hope you enjoy your your journey here,finding out new information and any help you need or can give:-)
How do you rate Velcade,how long were you on it,and did you have any side effects?????
Where you on trials? and what dosage did you have.It sounds so interesting.
I would be grateful for any info as my…[Read more]

Hi Gill and you also Stephen
I am sorry to hear the news,but your Stephen have the right attitude,I can see were your thoughts are,Stephen will choose his time Gill but I think he just might surprise the medical profession.i think he has lots of things he wants to do,;-)
Slim wants to go fly fishing,will arrange it soon:-S
It,s very hard…[Read more]

Hi Linda

A warm welcome to this great site.
Good news on all your undressing events 😀

Love
Tom "Onwards and Upwards" xx

Hi Dai
Thanks I am fine,just feeling a bit low at this time,no reason,
Glad to hear your good news,and it,s lovely to see so many people coming on the site with lots of good news,
Just what we need after so much bad news,In some ways i hope Sarah and Min,do go on and get on with the job of living and enjoy their future,but as you say they will…[Read more]