eve replied to the topic New to Forum in the forum Newcomers 14 years, 5 months ago
Hi Ailleen
Welcome to the site,i have been on here since February,and must admit in the bad times could not have managed with out it.:-(
As David says some one is always ahead of you on this journey,I am a carer to my husband,It does take a little bit of time to take in,but my attitude is i want to know everything about this MM,
So do not…[Read more]
eve replied to the topic Sore toe and leg in the forum Side-effects 14 years, 5 months ago
hi Ivan
Worth checking out,blood clots one of the side effects,pity about CDT,Slims on 2 cycle of Velcade,no big side effects(touch wood).
It might seem very small ,(like a sore leg) but do get things checked out.
will not have blood clots in future with Clexane surprised you were on such a low does,you look a big man from photo,goes on weight…[Read more]
tom replied to the topic Radiotherapy Appointment Tomorrow!! Yippee!! in the forum Treatment 14 years, 5 months ago
Hi Bridget
Sorry your first lot dint go too well 🙁 But am pleased the next one was better 😀
This MM is a bit of a trickster as you say runs smooth (ish) then wallop a smack at the side of the head and it takes weeks before a decision can be made re the meds:-S am sure the know about the pain and fear folk are in and the wait should…[Read more]
tom replied to the topic 28 days post SCT in the forum General 14 years, 5 months ago
Hi Helen
Erm Now do I post a photo of me with hair?? and do I post the one with a side parting? or the one with a middle parting? or the one that was after My young Bride Elaine gave me a perm that I tried to comb out ha ha ha.
What was my head like before kids made me bald? well it was Long (past my shoulders) Jet black and wavy 😀 8-)…[Read more]
eve replied to the topic Nettie's finally gone mad!!!! in the forum General 14 years, 5 months ago
Hi Nettie
Got to say you have got some guts!!!.but understand were you are coming from,My money will be on its way to you as soon as i work out how to do it,will put it on my facebook,people seem to find it an easy way to give.
My son in law just done the three peak challenge in 24hr.in shocking conditions,the group raised 7000 for childrens…[Read more]
eve replied to the topic New to the forum in the forum Newcomers 14 years, 5 months ago
Hi Ted
Must admit never heard of phone appointment !!!. We can ring after 1pm for app.now have a doctor just for extra app and surgery has very early app and late app at 7am and up to 7pm twice a week.
it is getting past the reception desk is the big thing,for eg: my husband has injections which he does himself,my doctors do not like having to…[Read more]
eve replied to the topic Radiotherapy Appointment Tomorrow!! Yippee!! in the forum Treatment 14 years, 5 months ago
Hi Gill and Bridget,
Gill all that sea air was doing Stephen some good LOL
Talking about the h-e-l-l word,how can they consider it inappropriate !!!!!
Taken a second look at the carpet and walls urghhhhh,bought him a bucket with lid he can carry round .
Bridget good to hear you are in good spirit, or as are tom would say Onward and Upward:-)
love Eve
eve replied to the topic Radiotherapy Appointment Tomorrow!! Yippee!! in the forum Treatment 14 years, 5 months ago
Hi bridget
just caught you post before i closed down,i must tell you what went on today,
Went to hospital today,should have gone yesterday,Slim not well,but hung on till last minute,did not matter he painted the white carpet with sick,thats never ever going to come out.:-/
Saw doctor,"o yes his eyes said,no you think you have an infection,I…[Read more]
eve replied to the topic Radiotherapy Appointment Tomorrow!! Yippee!! in the forum Treatment 14 years, 5 months ago
Hi Bridget
How are you doing,!! I know by your post,you seem cheerful,its what I call a happy face:-).is the pain starting to get under control,that,s the main thing,Day by day Bridget,you have so much going for you.Keep smiling Eve
eve replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 14 years, 5 months ago
Hi Everyone
My word to day is UNDERSTANDING
I have chosen this as I think as a word it says a lot.
ING
Eve
eve replied to the topic Kidney Failure in the forum Related conditions 14 years, 5 months ago
Hi Martin
May I say thank you for letting us know about your father,condolences to all your family.
He died at home with his family,I could not think of a better way to die,I have never heard of the Crossroad girls,but i do know the Macmillan do what they can to make the passing easy,I am so glad your mother found some comfort in this.We fight…[Read more]
tom replied to the topic 28 days post SCT in the forum General 14 years, 5 months ago
Lol Helen thats been a problem for me for some years now as am sure you can tell by my photo my kids sent me bald lol.
Love
Tom xx
tom replied to the topic Radiotherapy Appointment Tomorrow!! Yippee!! in the forum Treatment 14 years, 5 months ago
Hi Bridget
How is/did it go?? hope it went well and your pain has been shoved into a cuboard (like elaine shoves my fav shoes:-S )
I also hope you didn't have a long day and they took you in and walla pain gone 😎
Catcha ya soon xxxx
tom replied to the topic 28 days post SCT in the forum General 14 years, 5 months ago
Hi Helen
You are getting better by the day you might not notice some days:-/ but you are 😀 as for the Hair bit? well just think of me looking like "Mo Mowlam" after my SCT Lol it gave Family and Friends (and I) a good laugh.
Keep up getting stronger 😎
Love
Tom "Onwards and Upwards" xx
eve replied to the topic Fingers Crossed For Me Please in the forum Off topic 14 years, 5 months ago
Hi Everyone
Dos vinho tinto, por favor!
dos vino tinto, por favor
deux vin rouge,s'il vous plait.
two red plonk, cobber!
Hehehe,Portuguese Spanish French and Australian you have to get your priorities right LOL
I forgot to tell you I am deaf,I wear hearing aids,so it,s impossibly for me to learn any new language,Good luck with french,I…[Read more]
eve replied to the topic Ecstasy for myeloma in the forum Treatment 14 years, 5 months ago
Hi Bridget
How did your chemo go? forgot to tell you tried to contact you on face book,but must have got the wrong Bridget,as never got a reply.:-/
Slim had the works,went for consultants appointment found himself on a drip within 10 mins,and in bed 30 min later did the lot over a week end,skeletal survey,MRI,and bone marrow,except for the…[Read more]
eve replied to the topic Ecstasy for myeloma in the forum Treatment 14 years, 5 months ago
Hi Sharon
They are still telling me PET scan will not tell them what is going on in the bones!!!They have decided bone marrow after 4 cycles,so we will not have result when we see consultant on 14th,will only have MRI results.:-S
Read a piece saying fish oil has been tested and found too hinder some chemo drugs,at the moment testing on…[Read more]
eve replied to the topic My father in the forum Carers 14 years, 5 months ago
Hi Sarah
So sorry about your father,but i am glad in all this misery you are going through,that you have rediscovered your sister,when the head of the family dies,some families just disintegrate others unite,I do hope you and your sister are the latter.
When my mother died to me it seemed like ending a book,gone forever,my mum was the…[Read more]
eve replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 14 years, 5 months ago
Hi everyone
My word is KINGDOM
Making DOM
Eve
tom replied to the topic Radiotherapy Appointment Tomorrow!! Yippee!! in the forum Treatment 14 years, 5 months ago
Hi Bridget
It must been a long day for you 🙁 but tomorrow its gonna kick that pain in the b**t and get your Dancing shoes on8-)
You will soon have more tattoo's than the tattoo Lady
Another nite of "Onwards and Upwards" Bridget, I hope the pain is not as strong tonite 😀
Love
Tom xxx
ps it wont let me post so have put a couple…[Read more]