MANDY PHILLIPS

  • tom replied to the topic Ecstasy for myeloma in the forum Treatment 14 years, 5 months ago

    Hi Sharon

    I have seen it and I asked one of the Nurses about it when I went in for my Zometa and she says she will look into it and see what its all about 😀 so if I dont forget I will ask in about 4 weeks time 😎 Thanks for the link

    Love
    Tom "Onwards and Upwards" xx

  • tom replied to the topic Macmillan Nurses in the forum Treatment 14 years, 5 months ago

    Hi Bridget

    Well we are nawty aren't we :-0 its a bit like that program "Deal or No Deal" give good advise in the wings but when out front they just become a mess, you know in the wings you would say "Get off to the Hospice it will help" 😀 so get yourself off I have been (just for a visit and to hand in Money) they are great places and honest…[Read more]

  • tom replied to the topic A wonderful event in the forum General 14 years, 5 months ago

    And what a wonderful post Amelie 😀

    You both should be very proud to have done it.

    Am sure Bridget would be great on the triangle 😀 and if you have spare room on stage I could do?? erm well?? erm Oh I know sweep it 😎 I cant even whistle in tune ha ha

    Well done again

    Tom xxx

  • tom replied to the topic Peter in the forum General 14 years, 5 months ago

    My Dear Min

    I am so sorry your Peter has lost his brave fight against this Effin MM.

    I send you our Love and Condolences at this sad sad time, please take care of yourself, Love and Hugs from Elaine and I ((())))) xxxx

    Tom and Elaine xxxx

  • tom replied to the topic New to the forum in the forum Newcomers 14 years, 5 months ago

    Ted you cant beat Grandkids we have 5 but all young un's lol.

    Tom "Onwards and Upwards"

  • eve replied to the topic A wonderful event in the forum General 14 years, 5 months ago

    Hi Amelie
    It is nice to hear something positive,it was something he dreamed of and you made it come true,I like to think some good comes out of bad things even if it is only a learning curve.

    I hope both of you have a long wish list and you make every day count.
    When my husband was first diagnosed my thoughts were we are so lucky,we have done…[Read more]

  • eve replied to the topic Welcome Paul in the forum Under 50s 14 years, 5 months ago

    Hi Paul
    Have a drink while you can,it is allowed because your taste buds,will change some times drastically,my hubby has always liked his wine,and G&T does not like anything now LOL more for me:-P

    Good luck with your treatment Eve

  • how about DELINEATE
    Cheated a bit Slims the brains in the family
    I have started reading some post out to him though,this morning he was as shocked as I was about Peter,but I think Min would like us to post as usual
    Eve

    ATE

  • eve replied to the topic Peter in the forum General 14 years, 5 months ago

    Oh Min
    I am crying as i post so don,t worry if it does not make sense,So so sorry,I just cannot believe it,I know it can happen very quickly,but he was still was walking about.I thought he was going to get over this one.
    My heart goes out to you,I just wish I could do more.
    All my love Eve
    Min I just keep reading your post,so have come back on…[Read more]

  • what can I say except I am a woman.I have the right bits,just not working Eve

  • eve replied to the topic Niggle, Niggle in the forum Side-effects 14 years, 5 months ago

    Hi Sarah
    Glad to see you are holding up,tell us about your grandchildren. Eve

  • eve replied to the topic Macmillan Nurses in the forum Treatment 14 years, 5 months ago

    Bridget you have made me cry,and i have broad shoulders,Bridget do as they ask ,
    Go to the hospice and let them get your pain under control.
    You have always told us no one should be in pain time to walk the talk,
    hugs go out to you Eve

  • Hi
    I thought it had to be together eg:ESS ———-BLESSED.
    i had trouble too Eve

  • eve replied to the topic Welcome Paul in the forum Under 50s 14 years, 5 months ago

    Hi Paul
    I am a carer to husband Slim,I sent you an email to say something wrong with your posting,other wise a lot more people would be giving you a welcome nod,no one seems to be able to reply to it.
    My husband was on cdt to your cdr on myeloma trials,most people take revlimid before bed time helps you sleep.Specially after 4 days of dex you…[Read more]

  • eve replied to the topic Niggle, Niggle in the forum Side-effects 14 years, 5 months ago

    Dai i do not know why you expect to be informed you only the patient,it does not matter that you have been waiting all day for something and it,s been over ruled by some one further up the ladder and no one has told you,just remember you are now an institutionalised patient:-P
    I am counting those days to your holiday now .Eve;-)

  • eve replied to the topic A Right 2s/6d… in the forum Side-effects 14 years, 5 months ago

    Hi All
    Must admit I never got pocket money,but I can remember going to the pictures on a Saturday morning,I think thats were my love of western come from,but my big thing was Flash Gorden,he was always on the point of being killed and you had to come back next week to see what happened.!
    Talking about cigarettes we could buy looses I know they…[Read more]

  • Hi Min
    Hope Peters picking up a little bit,I use to worry about Slim and his dignity So i tried to be around as much as possibly,but he was so ill,he cannot remember any of it.
    I think this will alter his own perspective of illness,and i think your life will get a bit easier Min.
    Might do Peter some good to keep a picture on your phone,then…[Read more]

  • eve replied to the topic Appointments in Dairy in the forum General 14 years, 5 months ago

    I agree Min we should be able to double up at least 2 of those appointments,We rang last week just to remind them of things that needed to be done,and was told not to worry things were in hand!!!!
    when we went on Friday no appointments had been made,nurse made blood and Zometa.Told me nothing had been arranged to late to get hold of anyone.
    bank…[Read more]

  • Hey Min am sure its no help to you or Peter but I threw more pants away after my sct than I had bought in a year, dare I say it dint stop for some weeks after getting home so beware, after food no one dare go to the loo till i had been ha ha.

    I also used the throw away pants that they have in hospital 🙂 and brought some Pads home to use when…[Read more]

  • tom replied to the topic Appointments in Dairy in the forum General 14 years, 5 months ago

    Hi Eve

    Tried to cuss but this site wont allow it ha ha (get on the over 50's)

    That time table is taking the w e e , w e e (hope it lets me post this one ha ha) I am having a Zometa infusion tomorrow at 9 am then see the consultant at 11.45 🙁 BUT bless Dr Jalihal he tells me to go straight up to his clinic as soon as I have had my infusion…[Read more]

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