Cheers Kevin
Its gonna roll well this new treatment,Happy Birthday to your Stem Cells, its great to be in remission and more so when they give you 6 months before you see Dr again.
Keep well Kevin

Tom onwards and upwardsx

Hi Stanstan, thanks it’s gone be another doable just hope it goes into remission faster so am not too near Xmas for my SCT this time.

Hi Jean, we are also expecting more than four this time round, yes we are both strong folk and will crack it.

Love to you all.

Tom onwards and upwards xxxx

Hi Charlie and Mary

Yes am fine Thanks, yes its come back but to be fair I look and feel better than I have for some months to be fair.

Aww and dont mention No Computer 🙁 when we moved all I had was my Mobile phone to go on tinternet and it just aint the same Ha ha.

We sold our Home and are now in a rented Bungalow put the money in the bank…[Read more]

Hi Megan::Am pleased its not too painful all the time but am sure the niggle knowing its with you is a bugger 🙁 Thanks for your advice, I hope phil is soon sorted x

Hi Helen:: pleased you got through it and I know I will also 🙂 am pleased you are in remission and so soon its a great feeling I can tell you. x

Hi Liz and Kev::: well mine…[Read more]

Thanks Megan, and yes they cut it down to just the once a week due to the side effects,and I hope for as few as possible Lol.
Hope Phil is sorted re the PN ??

Love Tom Onwards and Upwards x

Hi Jane

Well you are for me young lady.

sorry about your rigs and high Temp and 17 Grandkids wow well done you lot ha ha.
Chest infections is a burden for us all with this MM and High temps we just have to keep on top of it all the time, normal folk can aloow a bit of a delay before Dr is contacted but we have to contact them and have them on…[Read more]

Hi Carol
I am pleased I light your path, We have to stay strong and face it head on I am expecting another four years on this route and am sure we will get it 🙂

Good Luck on Monday and dont forget suck ice pops when they give you the Melphan like it is going out of fashion, and use the mouth wash as its also going out of fashion I used bottles…[Read more]

Hi Emma

Am ready for it as I knew it would come back and four years remission I think was good.
Yes the site has had a fair bit of logging on that bad I changed my password a few times thinking it was me ha ha.
Pleased your Mum is doing well and you had a great Xmas.

Love Tom onwards and upwards xxx

Hi Jeff

Well age and not having SCT explains it.

I also think,we do not take every thing in when it’s not good news,I am sure the consultant will explain if you ask,or see the myeloma nurse who is in charge of the trials,they are usually better at explaining it,in none medical terms.

People can be smouldering under 10 and it’s only when other…[Read more]

Hi David and Andy

Good to see you are still around and doing as well as can be! Are the Myeloma masses outside the bones David,you do not say???,
Glad the PP are right down,how are your bloods with the Revilimid ????.

Have to admit David I am not keen on the new format,my I Pad,makes it difficult to log in,and cannot get the site to remember me…[Read more]

Hi Chris

You are lucky in many ways,because of routine blood test they have caught you early plus SMM,so that’s all good news.

There is no reason why you cannot live a reasonable normal life,I would advice you to ask to join the under 50 as you will find people of your own age!!

What I will recommend is you educate yourself concerning…[Read more]

Hi Liz

No dont know what treatment will be as yet just guessing at the moment but am sure he will tell me what on Thursday as thats when I go and get my BMB results.

And Jean Elaine and I just might do Belfast this year 🙂

Catcha all Lata (now lets see if ths post goes lol)

Tom Onwards and Upwards xx
Ps photo of the young bride and I on our Holls xx

Hi Andy and Steph
Well you both know how i feel for you two but am sure it wont be long before you are coasting alone and waving to me as you pass Sunny Scunny on many of your jaunts away, I also know you both will stay strong and fight this reroute that has been thrown your way.

Love to you both

Tom Onwards and Upwards xx

Hi Liz and Kev
Its a bugger this ins thing but am sure their is loads on here that use it but for me I only go on normal ins to be honest but i dont go far, I am not saying others should but I only go when am fine, had a great time for the last week and I hope i can get another couple in this year.

And Harmony the moment has been seized with both…[Read more]

Hi Andy

Well do you feel,you have had your hand slapped!! Lol

Andy after all these years on this site and your countless experiences of so many,many different chemo,and people with different opinions and approaches!!!

Hope you intend to go out for Sunday lunch and enjoy a pint of real ale,treat it the same way as the BT .lol.

As for…[Read more]

Hi Harmony

I do not know much about counselling as I chose not to take that root,I am a firm believer that unless you have had the same experience how an earth can you help some one,there are very good books on dealing with people who suffer a trauma.

As for telling people or not to tell is a hard one,try not to have regrets about it,people will…[Read more]

Hi Deb

Have they released any information concerning the padimac trials,because the few people who I know who were on it,it did not work for them!!!!

There is no harm in trying for the new trials if you do not get carfilzomib ,you can pull out of trials,you can also find the price of drugs by going into NHS pricing for drugs.!!

I do think you…[Read more]

Hi Sal

Welcome,I think at the beginning it is a big learning curve,your husband will just want to get on with the treatment and I think you would be a help to him if you learn,t all you could about Myeloma plus side effects of the drugs,although it’s your husband who has Myeloma it will effect the whole family,and you will have to be the strong…[Read more]