Hi Gill
You must be over the moon,I am so glad for you both,never,never give up hope,we do not know what is round the corner:-)
It does make you think,were would you be,if the conversation about how much stem cells were taken last time?
Enjoy this lovely weather and have a lovely Easter .eve

Hi Everyone

Yes I can confirm kent south coast is basking in the sun,hotter than Spain,West Coast of France even Cyprus.24 degrees here in sunny Deal no wind sea as calm as can be,when its like this you cannot beat it.
We had planned a few days break only up the road,but Slim not well enough,first time out yesterday for a week,but he did enjoy…[Read more]

good on you girl,
Have a lovely evening eve

Dear Gill

What can one say,sorry does not seem enough,The only thing I can say is I believe no one dies until they have had enough,and there seems to be acceptance of death,
If it is any help to you I try to look ,at are life together and think of all the good things we have done,and when i look back I consider that we are very lucky people,I…[Read more]

HI Everybody

Thanks for the info on Maxi-Joule Bridget,I tried doctors for a product you could sprinkle on food,told only certain products on nhs.E Mailed one manufacture who sent soup samples through to district nurse for me,not very nice.Will try this see if it works.
Perkymite I would give anything to see Slim drink,a glass of wine or even…[Read more]

HI everybody

Thank you for confirming all those side effects poor Slim going through the lot, hard to watch at times.The only thing he has not done is put on weight,in fact this worries me,tried every thing,he cannot stand any of the soups and drinks to build him up,and his food intake is very poor,says he feels full all the time,would be…[Read more]

Hi Jet

Yep I kept my Lashes 😀 mind you it was the only hair i had left, and when it was growing back I could have took a bit of old rough samnd paper to my body to stop the itching lol.

No you wont need fals lashes and as for the wig some ladies look sexy with no hair 😀

Tom "Onwards and Upwards" xx

Hey Girl's

Now lets put a mans perspective into this one ha ha

Firstly I have to say for those that are due to have a SCT :: Honest it will be worth it here I sit what ?? call it 16 Months Post Transplant and am doing great 😀 for me it was and still is the best thing I could have done to make me Better8-)

Now the Tash thing, now that…[Read more]

Bridget

Peace of mind,goes a log way,it,s not just the money side of it.It is being treated if it is nothing to do with you after living together so long.The bottom line is you have no rights.
eve

Hi Sandie

Sorry cannot help with pp levels.all different,can say the x-ray the whole head,It is all put on the computer and will be there for your appointment.I know this as my partner has lesions on skull.It shows up better on ordinary x-ray.The mri scan shows better on small bones,they do not x-ray hands or feet.

Hope this gives you some…[Read more]

HI jo and gill

If truth be known I am making a honest man of him LOL.I use to tell him during are heated moments that I would marry him just so I could divorce him.

For years everybody thought we were married,just presumed,with Slims illness I have found I have had to justify myself,Having to explain are arrangements to strangers,[new laws…[Read more]

Gill
Engagement rings were easy,every time he got a tax rebate,we had a renewal of are engagement.I know what you mean about France,the property is given to the children you have no say in who ,gets it if you are not married,We looked into it one time.
In this country you are not considered next of kin to claim a body if your not married,also a…[Read more]

Thank you ladies

It has been along time coming 3 engagement rings,in 30years the things we do for a diamond lol.

I have always felt married,so it has never bothered either of us.It is the easy way to get everthing in some order.Two of my daughters can make it the other one is in nz,and my step daughter cannot take time off teaching.

The…[Read more]

Hi Min and Peter

Pleased you have an answer to the sweats its a bu%%er all these side effects.

Enjoy your Holls

Tom xx

Hi Tony

Sorry but you are way ahead of me so cant add anything apart from saying good luck in the treatment you get?

Tom

Hi Liz

I can say that when i was in and had my transplant I found it hard to drink enough and they put me on a drip also (it was easier)gosh its hard work to drink that much when you aint feeling too good as it is:-S the drip was the best for me plus I drunk when i could ((water Pamela Lol))

Me I think i had two bloods and two platlets in…[Read more]

Hi Liz

Hey you take no notice of "Tinkerbell" as she is a little tinker ha ha, I have nearly stopped drinking these days only a bttle of vodka a week now 😎

So you dont have to rush to catch up he he.

Love Tom xxx

Hi Liz

Your both more than welcome, and it wont be long before he is up and about, and there is no rush one day at a time and it will work out, I must have been 8/12 before I felt better and trust me the wait is worth it 🙂

Tell Kev to keep on the "Upwards and Onwards"

Tom xx

Hi Tony

Wish I could be of some help but your are in front on this journey,the help line can most help you here its worth a call,she can also put you in touch with some one who has had the same treatment.

My partner is on MX1 trial he has the ctd side,what the trial offers is if ctd has little effect it is next round of drugs not on nhs…[Read more]