hello tom

It is a bit complicated with his daughter,in February she knew he fractures in his back,Then he was told he has mm and decided he would tell her h/term when she said she would travel up.She did not come,and no phone calls since,

My own daughters know and are there for both of us.I feel she should be told but will not go against my…[Read more]

Hi Henry
Well a warm welcome to you 🙂

Sorry you had to join though, but seen as you/I or we need something when we have MM cant get a better support group 🙂

I was Diagnosed in January 2009, and since then I have had stem cell harvest and transplant, and now back at work (light dutie's)

All went well but as we all know we have our Off…[Read more]

Hi jon
You are going to have down days;I do and its my partner who has mm.He has just finished dexa starts again Friday.Iknow he is a bit down right now but being a man keeps it all in.It would be lovely to have a magic wand and turn the clock back,Try to keep chin up regards eve

hi hmason

Lot older than you but based in Deal Kent,Try 50 age group a lot out there,My partner is in 6 th day of treatment on myeloma X1 trials he got ctd side.He comes under the same consultant but not seen the big man'Worth trawling site as I found it very helpful and reassuring there are people out there who have been on this journey a long…[Read more]

Hi Eve
I also know how well this site feels to me Its like putting on an old pair of shoes 🙂 you know the tatty ones we just wont throw away 🙂

And as for worrying? well I worry about not worrying ha ha.

Does your partner not want to tell his daughter? or is he just waiting till he grasps the MM facts?

As for it changing our lives?…[Read more]

hi everbody

I would just like to tell you all how helpful I find this site,I never mention my partners name because his daughter does not know!! long story.

It is very hard sometimes I understand his feelings but as a very open person it is hard,he is just the opposite of me.If your can not do anything about it why worry about it!!!!

I…[Read more]

hi jonny

Its my partner who has mm,I have found this site very helpful it has certainly calmed my fears.my partner is in his 5th day on myeloma x1 trials he got ctd branch.I can only say he is better than he has been for many months; Jets story is so similar to my partners.

I can only advise you to get things in place in advance,eg blue…[Read more]

nicki
I have only just joined this site,and to hear there is light at the end of the tunnel is good news.We are just starting are journey ,one we did not expect to be on.It gives me hope for the future,one thing I have learned from this site is to be positive,I thank you all for that regards eve

Hi Jon
May I welcome you to this Great site 🙂 its not one we would want but seen as we have MM its the best going, as well as the Under 50'S 😎

Am same as you in the fact My Wife Family and Friends have all been very supprtive through all this and we (even i) have a lets get this party rolling and sort it sort of mind's:-D

Good Luck on…[Read more]

hy everbody

When does this kick in my partner is only 3 days into dex,this morning he went off in a mood,because i did not want him changing bedroom round,complaining I should have had fitted wardrobes by now,

Aa well as coping with illness,I have had kitchen fitted,next bathroom ,double glazing planning consent to sought out,and when i told…[Read more]

my partners the same,stabbing pain right side,On oramorph 10mg a day plus paracetamolbetween oramorph.As he feels better he is doing more.

He has only just started first round of chemo,and have been told there will be no pain!!!!!!! he is a lot better than he has been for months.the pain at the moment seems under control. it is early days,we…[Read more]

Hi Annie

And a warm Welcome from Iccle ole me 😀
Am sorry you had to join this forum but am sure you will find out its the best their is 😎 ,the help and support you get from these great folk is second to none 😎

Good Luck in your treatment.

Love

Tom "Onwards and Upwards" xxx

I can only tell you when my partner had his problems it showed up on ordinary x-rays.the skull and shoulder blades,the reason they do mri scann on spine is because there are so many little bones its hard to see on ordinary x rays.

my partner was admitted within 10 min of first appointment.48 hours later he was like a new man,all test were…[Read more]

To gill and also dave.

Thanks for info on publishers calender I will try that.
The pills are something 10 cyclo 1st 8th 15 day 20 dex run for 4dayd thalid 2 everday,plus sickness pills.that is just from hospital the rest comes from doctor.We have been told that they have put him on the intensive pathway.This is from a man that never took a…[Read more]

hi david

Have two boxes for pills,My partner insist on doing his own pills,but there are so many,some days its 45 pills other days as little as25.Plus pills from our own doctor.We have agreed that I check them as sometimes he can be confused becuase of condition.there has to be an easy way of doing this.

I hope someone can tell me of an…[Read more]

Hi Marion My partner started on trials today he was allocated to ctd group.Have found the last couple of weeks mind blowing.So much to take in and so many visits to hospital.Then coming to terms with illness and how it will effect future life.It is early days for us,the amount of tablets is mind blowing.CTD drugs then pain releave plus tablets…[Read more]

Hi Chris

I also had a rash on my body during CTD, it soon went 😀

Do you go to the AE at hospital with Hubby?? me I have been told if I have anyproblem to phone our Onc ward and speak to the Consultant or the Staff Nurse, they have more knowledge about the MM

Good Luck

Tom "Onwards and Upwards" xx

Hi Chris

And am I pleased you joined us 😀 but sorry you had to 🙁

I am sure you will all cope with whatever is thrown at youe and Hubby (sorry you didn't say his name)

Dont forget we have you now so pull up the chair and ask say what you want, we are all here for each other 😎

Tom "Onwards and Upwards" xxx

Hi Sylvia
And That we are (optimistic that is he he) me I dont think April is too far out? so the crossing to Cork should be OK

I used to hate the heat and sun and love the wind rain and snow But since getting MM you could throw me all the sunshine that you can because I defiantly feel the cold these days8-) so the sooner the better and…[Read more]

Hi Gaye

April 15th MMmm Interesting

I think it could be today 😀 well we dont need the sun 😎 do we? we just need to be a wee bit daft he he.

Photo to follow ha ha.

Weekend nearly over and a new week ready to kick off, hope you all had a great w/end and are looking forward to the new week 🙂

Have a Good Un

Love
Tom…[Read more]