eve replied to the topic Prioritising in the forum General 11 years, 7 months ago
Hi Helen
Slims ok about BMB he has had at least 6 says its not pleasant ,but would rather know the situation with Myeloma.
Only because we have been hear before the symptoms are all there,fatigue big time,body aching all over,colouring not good,appetite small,going backward with health,Slims a stubborn man takes a lot to admit to pain,but…[Read more]
eve replied to the topic Prioritising in the forum General 11 years, 7 months ago
Hi Everyone
By the time Pat reads these post,cleaner hired plus making lots of arrangements,away from work!!!
We were lucky we had a good head start on all of you,over a short period a long time ago,we made big decisions completely changing are life's ,sold business kept a small flat to let,and off we went,dog as well,travelling everywhere…[Read more]
eve replied to the topic Press pause then wait and see… in the forum Treatment 11 years, 7 months ago
Hi Dai
Well I must have read it wrong as well,Revidimide and Velcade had to be used before eligibility for Muks 5 .Which if only patients who were on CDR then Velcade then relapsing would be eligible,I would think they will be hard pushed to find patients!!!!
I would seriously question eligibility !!! Good luck Dai. Love Eve
eve replied to the topic Prioritising in the forum General 11 years, 7 months ago
Hi Everyone
Getting a cleaner is the best thing I did,only 2hrs but makes a difference,mind you she sought of hinted about my 20 year old dyson,and she did bring her own steamer,I went out and bought one the next week,no doggy smells to be found,when Slim has a moan about her moving things,I have to have words with him,he has old man syndrome…[Read more]
tom replied to the topic to SCT or Not to SCT in the forum General 11 years, 7 months ago
Hi Clare and Mum
Well know nowt about "Barts" but I went same rout as your Mum looks like she will be traveling Mine was 5 sessions of CTD then round the bend to SCT and that was in December 2009, I am now 57 and sat here in remission and Drug free.
Did I regret it Nope not once, a bit of a struggle but I knew it was going to work.
Love…[Read more]
tom replied to the topic Prioritising in the forum General 11 years, 7 months ago
Hi Pat
Well I for one don't blame you getting a cleaner in and I would take the glasses off till he/she starts then you wont see the dust Lol.
Keep taking the Tabs Girl you are moving the correct way.
Love from "Dusty" Tom Onwards and Upwards. xxxx
eve replied to the topic Prioritising in the forum General 11 years, 7 months ago
Hi Pat
Yes there is,I stand in amazement at people who do not get help in the house ,but if cleaning floats your husbands boat????,it's ok. I intend to spend as much time with Slim,not cleaning,less cooking and more going out.
As for depression it must come with the territory ,its the ability to recognise it,do something about it,and not…[Read more]
eve replied to the topic Mums reaction to Zometa infusion and Thalidomide with injection of Warfarin? in the forum General 11 years, 7 months ago
Hi Sandiex
Your mum should only get zometa side effects for a short while and it does work wonders with bones for a short period. Why Warfarin and not Claxane you could do them for mum they will do the same job but cost more, I would consider Claxane to be very important as chemo side effects are blood clots!!!,
Sandiex Osteo Cronosis of…[Read more]
eve replied to the topic My Velcade Journey in the forum Treatment 11 years, 7 months ago
Hi David
Have been told war horse is a wonderful stage production,my granddaughters loved it,might get to see it myself one day.
The new combo of drugs should see you through the paracetamol gives an extra dimention to any morphine drug,plus if you have liquid back up as well.Slims on combination ,just about keeps pain under control,he is…[Read more]
eve replied to the topic to SCT or Not to SCT in the forum General 11 years, 7 months ago
Hi Clare
Welcome to the Myeloma club!!,patient,carer or family,I hope you get a good response to all questions.
My husband is 69 this year he had SCT after two courses of chemo,CDT plus Velcade., He only got 6 months remission. After the 100 days,he went to Kings I can assure you these top notch London hospitals,know there job,they do it all…[Read more]
tom replied to the topic ANOTHER SCT JOURNEY ABOUT TO START in the forum General 11 years, 7 months ago
Hi Scott
Well a good luck from iccle ole me on this road to remission 😀
It is a bit of a "Wringer" type of treatment BUT I have to say its well worth it on this road you have been forced onto, this is now your road to remission and I for one wish you well, I went through it in December 09 and I sit her in remission and drug free so I can…[Read more]
tom replied to the topic Date for SCT in the forum Treatment 11 years, 7 months ago
Hi Vicki and Colin
Am sure I don't know who says onwards and upwards 😛 but am sure that "Person" is correct Lol
Love Tom oh and that Onwards and Upwards Chappie Lol xxx Have a good week you all xxx
tom replied to the topic 70 Today in the forum Off topic 11 years, 7 months ago
Happy Birthday To You Happy Birthday Frank Happy Birthday to you.
The Big 70 not looking bad on it Frank that Young bride is soo looking after you 🙂
I have sent you an Photo Frank.
Enjoy 😀
Tom
eve replied to the topic On Tour in the forum Off topic 11 years, 7 months ago
Hi David
It's beautiful at the moment sunny without wind.Eve
tom replied to the topic Date for SCT in the forum Treatment 11 years, 7 months ago
Hi Jacquie and Geoff
Good Luck with it all its going to be worth it all.
Love tom Onwards and Upwards xx
tom replied to the topic Keith Hindmarch in the forum General 11 years, 7 months ago
Thank you Ellen, Keith and Sue I still have fingers crossed for you Both.
Love and Hugs sent to you Both.
Tom xx
tom replied to the topic On Tour in the forum Off topic 11 years, 7 months ago
Have A good one David, and am sure the weather will stay good for you
Tom Onwards and Upwards
tom replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 7 months ago
Hey Ladies and Gentlemen
The Elephant nor its nor its comments cant do me or anyone any harm, I like most if not all of us understand whats looming up am afraid.
Carry on you lot 😀
Love Tom Onwards and Upwards x
eve replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 7 months ago
I am pleased this little thread has opened to a large one . Thanks to you Dai were would we be without you,
When Slim came out of remission, it just seemed if I could not be open about it and slipped it into some ones post.as Andy says you start not posting,it seems all doom and gloom,but this is the time you need opinions around you ,this…[Read more]
eve replied to the topic Happy Christmas and a HEALTHY New Year to you all in the forum Off topic 11 years, 7 months ago
Helen
Given Elizabeth a buzz on Facebook. eve